Neuroendocrine Tumors (NETs): Discussions | Page 5

I hope you get answers soon. As someone who recently had a lung NET I know...

https://connect.mayoclinic.org/comment/1332822/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 22 2:03pm

Hi. I have not been told that there is any metastasis. There is a small nodule...

https://connect.mayoclinic.org/comment/1068551/

Discussion: Grade 1 Non-functioning (NF) NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 15, 2024

Yes, thanks for the advice. I plan on getting a 2nd opinion and will spend time...

https://connect.mayoclinic.org/comment/1030506/

Discussion: What questions should I ask oncologist tumor types and chemo treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 9, 2024

@annie12345 Typical carcinoids are not from smoking (smokers get atypical carcinoids). Nothing you did. My brother...

https://connect.mayoclinic.org/comment/1330066/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 18 4:10pm

I went to Mayo for a 2nd opinion because the University of Minnesota was trying to...

https://connect.mayoclinic.org/comment/1088194/

Discussion: On choosing a surgeon for pulmonary carcinoid resection…

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 16, 2024

Surgery done may 3rd gor tumor on sm intestine surgery being schedule for lung tumor then...

https://connect.mayoclinic.org/comment/873232/

Discussion: Neuroendocrine tumor in small bowel with lymph nodes involved

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 5, 2023

I was diagnosed with non-small cell neuroendocrine lung cancer. Stage 1. I had my right lower...

https://connect.mayoclinic.org/comment/962356/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 10, 2023

so very glad to hear that your cough is just occasional now. My goodness, fratured a...

https://connect.mayoclinic.org/comment/1067497/

Discussion: Describe your recovery from lung NET surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 13, 2024

melmangen The intratumoral vascular invasion is a useful prognostic factor for pathological stage 1 small cell...

https://connect.mayoclinic.org/comment/794073/

Discussion: NET (Lung + liver metastatis) Radical nephrectomy done for RCC

Support Group: Kidney Cancer

Posted: Jan 8, 2023

You definitely need to get a second opinion from a NETs specialist. Other types of lung...

https://connect.mayoclinic.org/comment/1242687/

Discussion: DIPNECH diagnosis. Has anyone had radiation?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 22 2:36am

Hi! I have probably had lung nodules for twenty or more years. Three years ago my...

https://connect.mayoclinic.org/comment/1163694/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 27, 2024

I had been diagnosed in another hospital and had half had half my lung removed. Thought...

https://connect.mayoclinic.org/comment/1169575/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 7, 2024

I had the pet scan because I had lung cancer and had to be checked every...

https://connect.mayoclinic.org/comment/749035/

Discussion: Neuroendocrine local SCLC: What does it all mean?

Support Group: Lung Cancer

Posted: Sep 13, 2022

@annie12345 My largest was 2.6 cm and they destroyed it with microwave ablation 4 years ago...

https://connect.mayoclinic.org/comment/1330723/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 19 2:57pm

No I am not. My pathology after my lung surgery was sent to Mayo, and that...

https://connect.mayoclinic.org/comment/1288895/

Discussion: I am 75 and have carcinoid tumors NET in lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 24 11:26am

I do not have experience with ostricide shots but usually given it prior to any medical...

https://connect.mayoclinic.org/comment/1266755/

Discussion: Liver function (birirubin, globulin, glucose, iron) and Octreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 25 4:57pm

@jsudjian I don't see any mention of you having NETs so it doesn't seem like it...

https://connect.mayoclinic.org/comment/1378264/

Discussion: Worried about carcinoid syndrome

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 24 1:04pm

I was diagnosed with a lung disorder - DIPNECH. I’m looking to connect with others who...

https://connect.mayoclinic.org/comment/987590/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 28, 2023

Okay. Please update us when you know more details. In the meantime, know that lung NETs...

https://connect.mayoclinic.org/comment/1263033/

Discussion: Neuroendocrine cell tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 20 10:31pm

Hi Larenn, May I ask how large your lung tumor and subcutaneous nodule were? I have...

https://connect.mayoclinic.org/comment/825153/

Discussion: Stage 4 Carcinoid tumor: What treatments have you had?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 12, 2023

Neuroendocrine Tumors (NETs) Support Group