Neuroendocrine Tumors (NETs) Support Group | Page 5

Hello @oilyproudnana and welcome. It looks like your biopsy confirmed lung NETs. Is that correct? I...

https://connect.mayoclinic.org/comment/1392531/

Discussion: Has anyone had NET show up on CT scan, I had CT scan in 23

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 12, 2025

I am a 19+ year Stage IV Lung Cancer survivor because I was able to go...

https://connect.mayoclinic.org/comment/776728/

Discussion: Husband diagnosed: high grade carcinoma with neuroendocrine features

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 23, 2022

Yes 2nd opinion says it mimics a lung carcinoid (solid round nodule / slow growth)

https://connect.mayoclinic.org/comment/831614/

Discussion: Lung nodule could be slow growing carcinoid: Watch and wait is scary

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 25, 2023

@nana120 So they didn’t remove your lung NET? Or had it already metastasized when first discovered?

https://connect.mayoclinic.org/comment/939523/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 30, 2023

Hi, my nodule is also 2.3 cm but is in the upper left lung. Biopsy is...

https://connect.mayoclinic.org/comment/1076544/

Discussion: Lung nodule could be slow growing carcinoid: Watch and wait is scary

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 28, 2024

I forgot to saying she got also lung infection, we thought because of the chemotherapy but...

https://connect.mayoclinic.org/comment/804781/

Discussion: Neuroendocrine Lung stage 4B with metastasis in liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 1, 2023

@jessie1990 Understood. Still consult with a NETs specialist. Lung specialists are not necessarily NETs specialists and...

https://connect.mayoclinic.org/comment/1427228/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 30, 2025

I have been diagnosed with a VERY rare lung disease called DIPNECH. Saw the expert at...

https://connect.mayoclinic.org/comment/1162603/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 25, 2024

Diagnosed 1/27/23 lung NET Bronchoscope on 1/24/23 results on 1/26/23 lymph nodes chest ok but nodule...

https://connect.mayoclinic.org/comment/803360/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 29, 2023

@kim1965 So good to hear a positive report. I had no reason to think my "symptoms"...

https://connect.mayoclinic.org/comment/1540710/

Discussion: Diagnosis Frustrated: How you were diagnosed with NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 1 8:12pm

It is good to learn that there are other options. I have been told that with...

https://connect.mayoclinic.org/comment/1524902/

Discussion: Previous heart surgery & risks of surgery to remove lung net

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 11 8:13pm

We have NET in our family. Dad had small bowel nets with successful surgery. He had...

https://connect.mayoclinic.org/comment/1539444/

Discussion: Blood Clots, DVT and Neuroendocrine Cancer - Be aware.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 31 9:21am

In life there are both clubs we seek to join and clubs that seek to join...

https://connect.mayoclinic.org/comment/1357919/

Discussion: Initial imaging and tests; what to expect after initial NETs diagnosis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 27, 2025

Here's more information about submitting a request for a second opinion at Mayo Clinic http://mayocl.in/http://mayocl.in/1mtmR63. Let...

https://connect.mayoclinic.org/comment/981830/

Discussion: Stage four high-grade neuroendocrine carcinoma

Support Group: Lung Cancer

Posted: Dec 16, 2023

Thank you so much for sharing your experience. My PET scan showed numerous spots in the...

https://connect.mayoclinic.org/comment/835101/

Discussion: Newly diagnosed-Primary Malignant Neuroendocrine of Lung

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 31, 2023

Hello @juliab56, many people here have had lung surgeries; resections, lobectomy, or full pneumonectomy. I’m sure...

https://connect.mayoclinic.org/comment/1459883/

Discussion: Anyone have a pneumonectomy? How are you doing now?

Support Group: Lung Cancer

Posted: Dec 13, 2025

I was diagnosed last year with a lung tumor and had my left lower lobe of...

https://connect.mayoclinic.org/comment/1314408/

Discussion: Diagnosis Frustrated: How you were diagnosed with NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 27, 2025

@hopeful33250 I've had a 5 week check up after surgery doc said there is abit of...

https://connect.mayoclinic.org/comment/1500631/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 8 2:40am

I had 2 typical lung carcinoids diagnosed a little over a year ago. One was in...

https://connect.mayoclinic.org/comment/1056209/

Discussion: Lung nodule could be slow growing carcinoid: Watch and wait is scary

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 24, 2024

@aliatl Hi thanks for Reaply, sorry to here about your wife, she got Diogenes last summer...

https://connect.mayoclinic.org/comment/804697/

Discussion: Neuroendocrine Lung stage 4B with metastasis in liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 1, 2023