Neuroendocrine Tumors (NETs): Discussions | Page 45

The blood tests are supposed to help diagnose. There is a bunch, your arms will be...

https://connect.mayoclinic.org/comment/971087/

Discussion: Anyone had nauseous, gas burping as symptoms for NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 27, 2023

Hang in there @ahilker! I had similar situation, no primary site discovered during surgery, pNET debulked,...

https://connect.mayoclinic.org/comment/866356/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 25, 2023

My initial biopsy said metastatic neuroendocrine carcinoma. Indicating stage 4 and the origin being somewhere else....

https://connect.mayoclinic.org/comment/1148328/

Discussion: Straight to the liver: Anyone have NETs originating in strange areas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 27 3:36pm

Thank you both for the very helpful responses! I was able to meet with an oncologist...

https://connect.mayoclinic.org/comment/755235/

Discussion: Questions on Recurrence & Likelihood of Multiple NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 29, 2022

I have had ampulla of vater small cell cancer with Mets to the. Went through my...

https://connect.mayoclinic.org/comment/39450/

Discussion: Treatment for Stage IV Ampullary Cancer

Support Group: Cancer

Posted: Feb 8, 2018

Cobraman: Hi! I received diagnosis of small intestine (duodenum) NET tumor that had metastasized to liver...

https://connect.mayoclinic.org/comment/868984/

Discussion: Life expectancy with NETs and lifetyle as it progresses

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 30, 2023

First, your husband is fortunate to have you supporting him. Second - there are so many...

https://connect.mayoclinic.org/comment/1022928/

Discussion: My husband has had his second PRRT and is doing well!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 26 9:36am

A couple of immediate suggestions, as we have all fought this battle for NET's. There is...

https://connect.mayoclinic.org/comment/856394/

Discussion: Diagnosed with Stage 4 pNET: What should I know?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 8, 2023

Hello! Welcome to the ' zebra club' :). I had somewhat complicated case , as had...

https://connect.mayoclinic.org/comment/1074310/

Discussion: newly diagnosed pNET on tail of pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 25 9:15am

@margaret12 Depending on the type of imaging (MRI, CT), my liver lesions have been described as...

https://connect.mayoclinic.org/comment/830370/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 22, 2023

Thanks or reaching out to me. I am being seen by a medical oncologist at University...

https://connect.mayoclinic.org/comment/827264/

Discussion: Lanreotide Manufacturers: anyone have experience with either?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 16, 2023

@merpreb Merry, Thanks for asking, I'm doing OK, right now. I need to have an upper...

https://connect.mayoclinic.org/comment/232764/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Dec 10, 2018

Hello @matt2024 ! I too have pNET but with liver metastases. Had distal pancreatectomy ( with...

https://connect.mayoclinic.org/comment/1082347/

Discussion: Grade 1 Non-functioning (NF) NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 7 8:25am

I never heard of that test I have to google that , what I can tell...

https://connect.mayoclinic.org/comment/768133/

Discussion: Newly diagnosed - neuroendocrine tumor in intestines

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 1, 2022

Hi Teresa. Thanks for the nice welcome! As a result of elevated Alk P in my...

https://connect.mayoclinic.org/comment/907216/

Discussion: Looking for information on CAPTEM treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 3, 2023

Hi, Mark, I was diagnosed in 2007 with a carcinoid tumor that had wrapped around several...

https://connect.mayoclinic.org/comment/809267/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 10, 2023

Hi Mark: I have commented before about my experience with PRRT, so will try not to...

https://connect.mayoclinic.org/comment/807548/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 7, 2023

I’m not sure why things are offered in a different order Some things I read say...

https://connect.mayoclinic.org/comment/956820/

Discussion: Is everyone with pNETs on creon?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 31, 2023

Hi Colleen. I was have Nets in my cecum, small intestines, lymph nodes, liver and heart....

https://connect.mayoclinic.org/comment/971488/

Discussion: Should NET w/liver met patient stop rx that has Seratonin?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 28, 2023

I want to report in on my current situation. My GP referred me to a local...

https://connect.mayoclinic.org/comment/808662/

Discussion: Long Time Survivor With Concerns re Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 9, 2023

Neuroendocrine Tumors (NETs) Support Group