Neuroendocrine Tumors (NETs) Support Group

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Comments (1,498)

I can’t have debunking or Lithotrypsy as my liver has over 100 tumors per estimate. Fortunately,...

https://connect.mayoclinic.org/comment/995622/

Discussion: Update: Lutethera treatment is over

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 11 1:05pm

Good morning, NET group. My saga continues with the introduction of a new med protocol, Temozolomide....

https://connect.mayoclinic.org/comment/1060712/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 2 8:32am

size doesn't really matter, it depends more on the type of cancer in the lung. They...

https://connect.mayoclinic.org/comment/815650/

Discussion: What tumor size is typical for removing part of the lung?

Support Group: Lung Cancer

Posted: Feb 22, 2023

Hello Tom: - many thanks The term "somatostatin receptor type 2A": I read about this in...

https://connect.mayoclinic.org/comment/808601/

Discussion: PRRT has been approved by the FDA Jan 26, 2018, as expected

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 9, 2023

Teresa: My wife Sharon has recently had a C/T which showed additional lesions in the liver...

https://connect.mayoclinic.org/comment/800327/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 22, 2023

Hello @cottagepeople! My pancreatic NET was found during an EUS for a liver biopsy! I was...

https://connect.mayoclinic.org/comment/775334/

Discussion: Investigations for pancreatic lesions, NETs? Confused and concerned

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 20, 2022

After 7 cycles of the above chemo (pills) treatment, our Cancer Care Team at Froedert Hospital...

https://connect.mayoclinic.org/comment/781681/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 6, 2022

I'm doing OK, now. I have had an EGD every two years. In the in-between years,...

https://connect.mayoclinic.org/comment/661102/

Discussion: Learn About NETs and monthly meetings

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 9, 2021

Hi- the extensive surgery I had was a right hemicolotomy. I which takes out all of...

https://connect.mayoclinic.org/comment/102022/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 14, 2016

It's been awhile, but I wanted to update each of you kind souls on my Merkel...

https://connect.mayoclinic.org/comment/847355/

Discussion: Merkel cell-radiation effective on chest-new 2 cm spot on liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 22, 2023

I agree. Im 55yrs old. I was 185lbs when i started my once a month Lanreotide...

https://connect.mayoclinic.org/comment/860207/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 15, 2023

Absolutely, I apologize for not explaining it better. At our initial diagnosis of NETwe we’re terrified...

https://connect.mayoclinic.org/comment/933208/

Discussion: Diagnosed with Stage 4 pNET: What should I know?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 20, 2023

I had a follow up with the Oncologist earlier this week. I inquired about a NET...

https://connect.mayoclinic.org/comment/835888/

Discussion: Newly diagnosed-Primary Malignant Neuroendocrine of Lung

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 1, 2023

Thanks for your post. Can you tell me how old your wife is please? I had...

https://connect.mayoclinic.org/comment/1075303/

Discussion: newly diagnosed pNET on tail of pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 26 5:59pm

I understand your fear of what’s to come I’m a NET survivor first diagnosed in September...

https://connect.mayoclinic.org/comment/777324/

Discussion: Merkel cell-radiation effective on chest-new 2 cm spot on liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 25, 2022

This site was given to me at Mayo's in Mn.. I am sooo glad to be...

https://connect.mayoclinic.org/comment/134546/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 21, 2019

Thank you for this up date. I was diagnosed July 2022..have had chemo-Fo-flox every two weeks...

https://connect.mayoclinic.org/comment/867436/

Discussion: Life expectancy with NETs and lifetyle as it progresses

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 27, 2023

I wouldn’t mind at all but it’s lengthy 😁 2008-At Stanford Specialists:Distal pancreatectomy with splenectomy 2009-Began...

https://connect.mayoclinic.org/comment/978180/

Discussion: Found PNET on tail of pancreas but told it’s nonfunctional

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 10, 2023

Thank you, yes that is me and my passion that the pain keeps me from. I...

https://connect.mayoclinic.org/comment/733482/

Discussion: Pituitary and pNET: Can't do the things I love anymore

Support Group: Brain Tumor

Posted: Aug 2, 2022

Hello, ginnym3! I went to debulking surgery for a large pancreatic tumour (20×16 cm) with liver...

https://connect.mayoclinic.org/comment/966535/

Discussion: Any tips about Cytoreductive, debulking Surgery?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 17, 2023

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