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Public Support Group 1,009 total results
Comments (931)
At 67 I was given my diagnosis of stage 3 lung Nets that has metastasized to...
https://connect.mayoclinic.org/comment/1019087/
@panorman3: Lanreotide 28 day shots help control digestion issues, can have side effect like gas, cramps,...
https://connect.mayoclinic.org/comment/1479972/
I discovered by a self orderded MRI in Mar. of 2023 that I had Nets. I...
https://connect.mayoclinic.org/comment/1195148/
Thank you so much!! It has been such a horrible last few years. When I started...
https://connect.mayoclinic.org/comment/134550/
Hi Stevestenberg31 Your detail was very helpful and I am at a crossroads right now. I...
https://connect.mayoclinic.org/comment/919701/
My first MRI was Dec 2022 when I was diagnosed. PET Scan was January 2023 to...
https://connect.mayoclinic.org/comment/1165530/
I totally understand the desire for a conservative approach. While there is likely a primary somewhere,...
https://connect.mayoclinic.org/comment/1157998/
I started on Eberolimus 10mg daily March 2023. I developed mouth sores which bece more manageable...
https://connect.mayoclinic.org/comment/1117855/
@cewald62, my wife has NET in the liver still after finding the primary tumor on the...
https://connect.mayoclinic.org/comment/1146827/
My primary NET was in the small intestine lining—did not show up in any scans. I...
https://connect.mayoclinic.org/comment/918263/
Yes, I was admitted into hospital emergency room from bloating, abdominal pain, and vomiting, and unable...
https://connect.mayoclinic.org/comment/1459416/
Hi I had an exceptional NET specialist who started me Lanreotide after 3 injections the side...
https://connect.mayoclinic.org/comment/847916/
Absolutely open to sharing. I was diagnosed originally in 2020 after a 30 day bout with...
https://connect.mayoclinic.org/comment/1292381/
amk1122, I think overall I lost about 10 lbs between the start of PRRT and the...
https://connect.mayoclinic.org/comment/948662/
Digestion issues are different for everyone. I had about a yard of small intestine removed and...
https://connect.mayoclinic.org/comment/879118/
I was diagnosed in 1993 by a doctor who performed a colonoscopy after heavy rectal bleeding....
https://connect.mayoclinic.org/comment/771371/
Stable is good! It does not mean a cure however it gives us a break physically...
https://connect.mayoclinic.org/comment/1337831/
@swede79: I am assuming you have been diagnosed with Neuroendocrine tumor (carcinoid) cancer. Lanreotide 120 mg...
https://connect.mayoclinic.org/comment/1252202/
I was diagnosed with large cell NETs a year ago. Unfortunately mine was determined to be...
https://connect.mayoclinic.org/comment/899101/
Hello sorry to hear about your diagnosis but glad you found this forum. I was diagnosed...
https://connect.mayoclinic.org/comment/851412/
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