Neuroendocrine Tumors (NETs) Support Group | Page 4

Hi my name is Marilyn, I'm at Mayo Clinic now ( actual one of their hospitals)...

https://connect.mayoclinic.org/comment/134652/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 13, 2018

I just had the tumour removed along with 1/2-2/3 of my pancreas. Spleen saved but infarcted....

https://connect.mayoclinic.org/comment/1354275/

Discussion: NET tumor of pancreas (1 cm) diagnosed

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 22, 2025

Hello @casey1959, Several members of this discussion group have had a Whipple procedure. I'm sure some...

https://connect.mayoclinic.org/comment/1530368/

Discussion: How do I eat after digestive tract surgery?

Support Group: Digestive Health

Posted: Mar 19 6:13am

Hello, I was recently diagnosed with a PNET in my pancreas. I believe its stage 1...

https://connect.mayoclinic.org/comment/848296/

Discussion: PNET Surgery: My recovery journey

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 23, 2023

@pete1962, I'd like to add to the helpful post from @lu7. (I wish you both successful...

https://connect.mayoclinic.org/comment/817128/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 25, 2023

I had Whipple surgery in July 2024. Currently taking 1200 Creon with meals. Having constant constipation...

https://connect.mayoclinic.org/comment/1481457/

Discussion: How do I eat after digestive tract surgery?

Support Group: Digestive Health

Posted: Jan 13 1:42pm

@pamsbass Hello, I am the wife of someone who was diagnosed 2 years ago with an...

https://connect.mayoclinic.org/comment/1481371/

Discussion: Need more information on NET in head of pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 13 12:13pm

Yes I have. It takes couple days for them to answer. I'm in Oklahoma going thru...

https://connect.mayoclinic.org/comment/839768/

Discussion: Ways to control hypoglycemia caused by insulinoma in pancreas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 8, 2023

After my whipple surgery @ pancreas head in May 2023, my Chromograni A went down from...

https://connect.mayoclinic.org/comment/966777/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 18, 2023

Hello @mn86az and welcome to Mayo Connect. I am sorry to hear of your dad's recurrence...

https://connect.mayoclinic.org/comment/1293779/

Discussion: Pancreatic Cancer: Anyone have liver metastasis after Whipple?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 30, 2025

Things do get better, I had hit 106 lbs, scared me as I was losing 4...

https://connect.mayoclinic.org/comment/1473636/

Discussion: How do I eat after digestive tract surgery?

Support Group: Digestive Health

Posted: Jan 3 12:55pm

I’m still having trouble eating after my whipple surgery. It turns out after the doctors viewed...

https://connect.mayoclinic.org/comment/1445769/

Discussion: How do I eat after digestive tract surgery?

Support Group: Digestive Health

Posted: Nov 23, 2025

I don't have a comprehensive answer for that, but sometimes diabetes sneaks up on you along...

https://connect.mayoclinic.org/comment/985310/

Discussion: Weight Loss after Whipple: What strategies helped you?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 22, 2023

Hi Mark, hope PRRT worked well for your wife My son had an unsuccessful Whipple operation...

https://connect.mayoclinic.org/comment/1046188/

Discussion: Questions Regarding Results after PRRT Treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 6, 2024

I had high Chromograni A before whipple surgery to remove a Nuroendocrine gastrinoma tumour in the...

https://connect.mayoclinic.org/comment/804136/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 31, 2023

Biggest question is what grade is it? Could have already been there for a long time....

https://connect.mayoclinic.org/comment/1344307/

Discussion: NET tumor of pancreas (1 cm) diagnosed

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 9, 2025

I had a Whipple at Mayo Rochester in October 2024 as well and my scan last...

https://connect.mayoclinic.org/comment/1260581/

Discussion: Pancreatic Cancer: Anyone have liver metastasis after Whipple?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 17, 2025

My PNET was found 6 years ago and on 10/1/2019 I had Whipple surgery. I have...

https://connect.mayoclinic.org/comment/1338548/

Discussion: PNET removed 2 years ago: Can it come back at another site?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 30, 2025

I've been dealing with it. I had multiple tumors on my pancreas, with lesions on my...

https://connect.mayoclinic.org/comment/830996/

Discussion: Neuroendocrine Insulinoma: Is treatment different for this type?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 24, 2023

@lindabees Wow. Thank you for the respond. 5 years ago I had mini Whipple(PNET). A month...

https://connect.mayoclinic.org/comment/1408178/

Discussion: Has anyone had NET show up on CT scan, I had CT scan in 23

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 4, 2025