Neuroendocrine Tumors (NETs) Support Group

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Comments (201)

Hi Mark, hope PRRT worked well for your wife My son had an unsuccessful Whipple operation...

https://connect.mayoclinic.org/comment/1046188/

Discussion: Questions Regarding Results after PRRT Treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 6, 2024

I don't have a comprehensive answer for that, but sometimes diabetes sneaks up on you along...

https://connect.mayoclinic.org/comment/985310/

Discussion: Weight Loss after Whipple: What strategies helped you?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 22, 2023

Biggest question is what grade is it? Could have already been there for a long time....

https://connect.mayoclinic.org/comment/1344307/

Discussion: NET tumor of pancreas (1 cm) diagnosed

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 9, 2025

I had high Chromograni A before whipple surgery to remove a Nuroendocrine gastrinoma tumour in the...

https://connect.mayoclinic.org/comment/804136/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 31, 2023

I had a Whipple at Mayo Rochester in October 2024 as well and my scan last...

https://connect.mayoclinic.org/comment/1260581/

Discussion: Pancreatic Cancer: Anyone have liver metastasis after Whipple?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 17, 2025

I've been dealing with it. I had multiple tumors on my pancreas, with lesions on my...

https://connect.mayoclinic.org/comment/830996/

Discussion: Neuroendocrine Insulinoma: Is treatment different for this type?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 24, 2023

My PNET was found 6 years ago and on 10/1/2019 I had Whipple surgery. I have...

https://connect.mayoclinic.org/comment/1338548/

Discussion: PNET removed 2 years ago: Can it come back at another site?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 30, 2025

@lindabees Wow. Thank you for the respond. 5 years ago I had mini Whipple(PNET). A month...

https://connect.mayoclinic.org/comment/1408178/

Discussion: Has anyone had NET show up on CT scan, I had CT scan in 23

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 4, 2025

I thought enucleation referred to eye surgery. The terms I heard for pancreatic surgery were distal...

https://connect.mayoclinic.org/comment/1344388/

Discussion: NET tumor of pancreas (1 cm) diagnosed

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 9, 2025

Hang in there. A Whipple procedure can be a challenging and scary procedure. I had mine...

https://connect.mayoclinic.org/comment/799905/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 21, 2023

In 2019 a 6mm PNET was found on the head of my pancreas. In October of...

https://connect.mayoclinic.org/comment/1397878/

Discussion: New pNET so scared

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 21, 2025

I got diagnosed incidentally after having tachycardia in my doctor office. Was sent to a cardiologist...

https://connect.mayoclinic.org/comment/1348096/

Discussion: New PNET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 14, 2025

I had to keep a drain in for four months after my whipple surgery due to...

https://connect.mayoclinic.org/comment/807872/

Discussion: Surgery of PNET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 7, 2023

Hi Teresa, Dx was in 2009 when I went to the ER with worse headache I...

https://connect.mayoclinic.org/comment/933446/

Discussion: Anyone still have pancreas pain while taking Lanteotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 20, 2023

Hi - PNet diagnosis in September of ‘20 …. (4) total tumors …. Three in pancreas...

https://connect.mayoclinic.org/comment/1304507/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 15, 2025

Hi I was diagnosed with stage 4 pNET in July of 2023, I had a Whipple...

https://connect.mayoclinic.org/comment/1268507/

Discussion: Pancreatic Cancer: Anyone have liver metastasis after Whipple?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 28, 2025

Hi vtn, I did the watch and wait for a small PNET on the head of...

https://connect.mayoclinic.org/comment/859339/

Discussion: Just diagnosed with PNET: Any thoughts on watch & wait approach?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 13, 2023

Grade 2. My Whipple went well but Mets to the liver in about a year. PRRT...

https://connect.mayoclinic.org/comment/1060558/

Discussion: Questions Regarding Results after PRRT Treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 1, 2024

The amazing woman who diagnosed my insulinoma just from conversation ( test to prove later )...

https://connect.mayoclinic.org/comment/624497/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 8, 2021

Congratulations to your son on the success of the treatment and the reduction in size of...

https://connect.mayoclinic.org/comment/1056441/

Discussion: Questions Regarding Results after PRRT Treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 24, 2024

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