Neuroendocrine Tumors (NETs): Discussions | Page 4

Welcome @triveraderubio As you likely know "diffuse idiopathic pulmonary neuroendocrine cell hyperplasia (DIPNECH) is a rare...

https://connect.mayoclinic.org/comment/772200/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 11, 2022

My dipnech was also found by chance, I had fallen down some steps and landed on...

https://connect.mayoclinic.org/comment/1143736/

Discussion: Anyone living long-term with DIPNECH on lungs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 18, 2024

You are Right about being your own Advocate. That's how I found out I had DIPNECH....

https://connect.mayoclinic.org/comment/1065383/

Discussion: Neuroendocrine cells in Breast and Lungs DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 10, 2024

I also have NET and DIPNECH. Both were found in August of 2024 when my tumor...

https://connect.mayoclinic.org/comment/1288119/

Discussion: I am 75 and have carcinoid tumors NET in lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 23 10:19am

Hello @ocean3131 and welcome to the NETs support group on Mayo Connect. I'm sorry to hear...

https://connect.mayoclinic.org/comment/987604/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 28, 2023

Do you see a pulmonologist or oncologist? Reason I’m asking I was told there’s only 1...

https://connect.mayoclinic.org/comment/853997/

Discussion: What do I need to know about NETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 3, 2023

Hi @netnan, I was diagnosed with a 17mm typical carcinoid early this year. I also have...

https://connect.mayoclinic.org/comment/1107076/

Discussion: Sarcoidosis and Lung NET, upcoming surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 17, 2024

OMG. Yes yes yes so much the same. I was told by my pulmonary doctor that...

https://connect.mayoclinic.org/comment/1329979/

Discussion: DIPNCEH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 18 1:58pm

I would strongly request a PET. I've had one recently to see if my dipnech tumours...

https://connect.mayoclinic.org/comment/1142721/

Discussion: Neuroendocrine cells in Breast and Lungs DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 16, 2024

Are you taking a treatment? So interesting, these various symptoms, like GERD! I had it for...

https://connect.mayoclinic.org/comment/1330063/

Discussion: DIPNCEH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 18 4:06pm

I was diagnosed with DIPNECH in June of last year. I have surgery to remove the...

https://connect.mayoclinic.org/comment/1244389/

Discussion: DIPNECH diagnosis. Has anyone had radiation?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 24 9:13am

@colleenyoung Hi Colleen, I'm so glad you posted this article. Believe it or not, it was...

https://connect.mayoclinic.org/comment/1055394/

Discussion: New DIPNECH diagnosis, need advice on doctors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 22, 2024

Hi @queengemini16 What is your surgeon’s and oncologist’s recommended course of action? Are you planning to...

https://connect.mayoclinic.org/comment/1006882/

Discussion: New DIPNECH diagnosis, need advice on doctors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 30, 2024

I have GERD too. Before my DIPNECH and lung NETs was diagnosed even though we knew...

https://connect.mayoclinic.org/comment/1329913/

Discussion: DIPNCEH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 18 12:24pm

Hi @californiazebra This tumor that was ablated was the only one that the dotatate pet ‘lit’...

https://connect.mayoclinic.org/comment/1071219/

Discussion: Anyone living long-term with DIPNECH on lungs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 19, 2024

Tom, that’s frustrating about your incidental findings too. I hope both conditions were successfully treated. I...

https://connect.mayoclinic.org/comment/958681/

Discussion: Anyone have a small pancreatic IPMN cyst that turned out to be cancer?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 3, 2023

I had a large one in my left lower lobe. Almost 2cm and they weren't sure...

https://connect.mayoclinic.org/comment/1318419/

Discussion: Diagnosis Difficulties

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 2 8:50am

Typical carcinoids and DIPNECH are not associated with smoking. The majority of cases are non-smokers and...

https://connect.mayoclinic.org/comment/1288434/

Discussion: I am 75 and have carcinoid tumors NET in lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 23 5:59pm

Hi @donnapeck51 I’m sorry to hear about your Merkel cell carcinoma. I’m not a doctor but...

https://connect.mayoclinic.org/comment/1172492/

Discussion: Anyone living long-term with DIPNECH on lungs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 12, 2024

@mieczyslaw If you have a lot of tumorlets in both lungs it sounds suspect for DIPNECH....

https://connect.mayoclinic.org/comment/962492/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 10, 2023

Neuroendocrine Tumors (NETs) Support Group