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Public Support Group 255 total results
Comments (240)
Oh, I also suggest you hook up with a NETs specialty team (likely at a university...
https://connect.mayoclinic.org/comment/1391742/
I too appreciate being able to read of people's experiences, I live in Australia and I...
https://connect.mayoclinic.org/comment/1223283/
Yes, please get a second opinion from a NETs multidisciplinary team familiar with DIPNECH before your...
https://connect.mayoclinic.org/comment/1208016/
I do actually go to Mayo-pulmonologist. He said Dipnech is a label that is hard to...
https://connect.mayoclinic.org/comment/846032/
Rona I appreciate your reply. I will be getting my baseline scans and bloodwork in mid...
https://connect.mayoclinic.org/comment/1275395/
Thank you for reply, I don't have a net's team, I rely on my thoracic surgeon...
https://connect.mayoclinic.org/comment/1142739/
Hi @bcraft. I'm new to this site too and what brought me here was a search...
https://connect.mayoclinic.org/comment/838450/
Hi tatteesmom3, are you seeing a NETS (neuroendocrine tumor) multidisiciplinary team or just a local oncologist...
https://connect.mayoclinic.org/comment/844936/
@nvent5 Hi. For DIPNECH and typical carcinoids, I'm being treated at UCLA by the multi-disciplinary NETs...
https://connect.mayoclinic.org/comment/1526189/
I also had a typical carcinoid, about the same size as yours, and I had a...
https://connect.mayoclinic.org/comment/1524005/
Hi @netnan, I was diagnosed with a 17mm typical carcinoid early this year. I also have...
https://connect.mayoclinic.org/comment/1107076/
I have DIPNECH, also had my right middle lobe removed in October 2023. At this point,...
https://connect.mayoclinic.org/comment/1244351/
Yes, the tumor I had ablated was malignant (typical carcinoid). It was biopsied first. The microwave...
https://connect.mayoclinic.org/comment/1208685/
Welcome @triveraderubio As you likely know "diffuse idiopathic pulmonary neuroendocrine cell hyperplasia (DIPNECH) is a rare...
https://connect.mayoclinic.org/comment/772200/
Doctor recommended another test before making the surgery decision. A Netscan. We'll see what that indicates...
https://connect.mayoclinic.org/comment/660238/
My dipnech was also found by chance, I had fallen down some steps and landed on...
https://connect.mayoclinic.org/comment/1143736/
You are Right about being your own Advocate. That's how I found out I had DIPNECH....
https://connect.mayoclinic.org/comment/1065383/
Do you see a pulmonologist or oncologist? Reason I’m asking I was told there’s only 1...
https://connect.mayoclinic.org/comment/853997/
I also have NET and DIPNECH. Both were found in August of 2024 when my tumor...
https://connect.mayoclinic.org/comment/1288119/
Hello @ocean3131 and welcome to the NETs support group on Mayo Connect. I'm sorry to hear...
https://connect.mayoclinic.org/comment/987604/
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