Neuroendocrine Tumors (NETs): Discussions | Page 35

Was it as large? His is 6.7 mm. What was your symptoms? Did you have multiple...

https://connect.mayoclinic.org/comment/1230654/

Discussion: Adrenocortical carcinoma (ACC) outcomes: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 6 10:23am

I was diagnosed 2 years ago, with stage 4 ,started in my lower intestines and metastasized...

https://connect.mayoclinic.org/comment/1202170/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 2 7:17am

Hello Karen (@immmm) - Welcome to Mayo Connect, thank you for being an advocate for your...

https://connect.mayoclinic.org/comment/167642/

Discussion: Lesions, Cystic liver mets, vs Tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 15, 2017

I’m living with net as well, pancreas which has metastasized to my liver. Discovered about 5years...

https://connect.mayoclinic.org/comment/1252221/

Discussion: Is there a particular diet to have when starting Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 7 5:50am

@ds231, you're right. Fenbendazole is formulated for veterinary use and can cause irreparable liver damage. -...

https://connect.mayoclinic.org/comment/1290388/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 26 11:23am

My husband has a neuroendocrine tumor in the small intestine found by accident as they were...

https://connect.mayoclinic.org/comment/1272924/

Discussion: Anyone have a neuroendocrine tumor in small intestine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 2 8:33pm

Just FYI, my NETs in my liver that is the largest tumor is metastatic from my...

https://connect.mayoclinic.org/comment/939449/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 30, 2023

I've been dealing with it. I had multiple tumors on my pancreas, with lesions on my...

https://connect.mayoclinic.org/comment/830996/

Discussion: Neuroendocrine Insulinoma: Is treatment different for this type?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 24, 2023

@stevestenberg31 My wife@Kim1965, in April 22 diagnosed with mass on pancreas and also too many lesions...

https://connect.mayoclinic.org/comment/830142/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 22, 2023

The doctors didn't say anything about veins, but since that part of the pancreas shares blood...

https://connect.mayoclinic.org/comment/1321687/

Discussion: PNET in Tail of Pancreas, Portal and Splenic Veins

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 6 1:10pm

Keep us posted! After my first 2 surgeries to remove/ablate a total of 11 insulinomas, the...

https://connect.mayoclinic.org/comment/896644/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 16, 2023

I grew up in Oklahoma my Dad died of congestive heart failure my step mom died...

https://connect.mayoclinic.org/comment/845761/

Discussion: New DIPNECH diagnosis, need advice on doctors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 19, 2023

My sister was diagnosed with a well differentiated Pancreatic Neuroendocrine tumor Grade 3 Stage 4. It...

https://connect.mayoclinic.org/comment/1105243/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 14, 2024

I took lanreotide injections for a year and the side effects for me were worse than...

https://connect.mayoclinic.org/comment/933243/

Discussion: Anyone still have pancreas pain while taking Lanteotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 20, 2023

Great Info. I am so sorry to hear of your reoccurrences and now mets to the...

https://connect.mayoclinic.org/comment/896402/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 15, 2023

I was diagnosed in 2012 as a typical mid-gut, Ileum primary, liver mets and lymphnode mets...

https://connect.mayoclinic.org/comment/869112/

Discussion: Life expectancy with NETs and lifetyle as it progresses

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 30, 2023

@helloitsme It is nice to see so many comments to you! Congrats for choosing Mayo Phoenix...

https://connect.mayoclinic.org/comment/851553/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 29, 2023

Kim has had a rocky first week after surgery on March 1st. Went home from hospital...

https://connect.mayoclinic.org/comment/824732/

Discussion: PNET Surgery: My recovery journey

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 11, 2023

Hello @bluedane and welcome to the NETs discussion on Mayo Clinic Connect. I am so glad...

https://connect.mayoclinic.org/comment/814509/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 20, 2023

Sorry to hear what you are going through! I have stage 4 grade 2 metatastic to...

https://connect.mayoclinic.org/comment/1282937/

Discussion: New To NETS - Stage 4 / Grade 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 16 5:22am

Neuroendocrine Tumors (NETs) Support Group