Neuroendocrine Tumors (NETs) Support Group

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I appreciate that you shared your experiences with me. I am thinking of going for a...

https://connect.mayoclinic.org/comment/859481/

Discussion: Just diagnosed with PNET: Any thoughts on watch & wait approach?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 13, 2023

Hi @Sweet 63, My wife Kim was diagnosed with NET in April of this year. We...

https://connect.mayoclinic.org/comment/777027/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 24, 2022

Thank you for all the information. I have nonfunctioning lung to liver Net just found out...

https://connect.mayoclinic.org/comment/671705/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 17, 2022

I was diagnosed in 1993 by a doctor who performed a colonoscopy after heavy rectal bleeding....

https://connect.mayoclinic.org/comment/771371/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 9, 2022

Hi I’m Charlotte and I just became a member , I’m living with Net my first...

https://connect.mayoclinic.org/comment/747800/

Discussion: Learn About NETs and monthly meetings

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 10, 2022

My symptoms were bloating, severe abdominal pain resulting in slight temperature spike and vomiting. This happen...

https://connect.mayoclinic.org/comment/829669/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 21, 2023

I have had 11 tumors removed from pancreas in 2 surgeries. They were grade 2 tumors....

https://connect.mayoclinic.org/comment/843298/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 14, 2023

I have metastasis liver net with unknown primary they believe it is in my gut I...

https://connect.mayoclinic.org/comment/922592/

Discussion: Anyone still have pancreas pain while taking Lanteotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 1, 2023

I was on Flofox chemotherapy for six months and my tumors [liver and pancreas] and a...

https://connect.mayoclinic.org/comment/824415/

Discussion: NET lung with Liver Metastasis (stage 4)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 11, 2023

I was diagnosed with NETs in the liver December 2022, Had a PET scan to determine...

https://connect.mayoclinic.org/comment/1147007/

Discussion: After initial tests/consults at Mayo: When does NETs treatment start?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 25 8:16am

Hi Teresa, I had a tiny NET found in my rectum on my first colonoscopy. It...

https://connect.mayoclinic.org/comment/1170587/

Discussion: NET of the Rectum: Anyone at Mayo Jacksonville? What can I expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 9 9:48am

Hi Carrie! I am do sorry to hear your news and I completely empathize with your...

https://connect.mayoclinic.org/comment/1073202/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 23 9:38am

I began PRRT in June 2024 and today received the 3rd infusion without any issues. I...

https://connect.mayoclinic.org/comment/1150466/

Discussion: Straight to the liver: Anyone have NETs originating in strange areas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 1 8:38pm

@kim1965 Hi kim1965 A lot has gone on since my last post. My tumor is stage...

https://connect.mayoclinic.org/comment/837243/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 4, 2023

Colleen, Thank you! I was concerned with the growth hormone because it does make his organs...

https://connect.mayoclinic.org/comment/675397/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 27, 2022

I couch any comment we 'we are all different' and the treatment strategies are diverse and...

https://connect.mayoclinic.org/comment/671329/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 16, 2022

Hello @wolf359 and welcome to the NETs support group on Mayo Connect. I so appreciate you...

https://connect.mayoclinic.org/comment/930465/

Discussion: Anyone still have pancreas pain while taking Lanteotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 15, 2023

I eat banana pancakes once or 2 times a week ( 1egg, 1/4 cup of oats,...

https://connect.mayoclinic.org/comment/939571/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 30, 2023

Thanks! We got a CT scan earlier this week and met with our cancer team today....

https://connect.mayoclinic.org/comment/887433/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 29, 2023

My husband was diagnosed 2 years ago after finding a 2” tumor pressing on his spinal...

https://connect.mayoclinic.org/comment/885643/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 26, 2023

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