Neuroendocrine Tumors (NETs) Support Group

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Comments (907)

Hello @tonyhasumners and welcome to the NETs discussion group on Mayo Connect. I moved your message...

https://connect.mayoclinic.org/comment/804469/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 31, 2023

Hi merr and everyone else. Its been awhile since i,ve been in here. So far summer...

https://connect.mayoclinic.org/comment/233060/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Sep 18, 2019

@padovani- Welcome to Mayo Connect! I'm sure that you feel all of these things and I...

https://connect.mayoclinic.org/comment/232730/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Dec 8, 2018

My oncologist does not recommend a surgery because my proscatic cancer has spread to liver, lung...

https://connect.mayoclinic.org/comment/1232046/

Discussion: How much can it cost for (MiNEN) surgery at Mayo Clinic?

Support Group: Visiting Mayo Clinic

Posted: Feb 8, 2025

Hi @nana120 I believe your hair loss will stabilize. My hair has really thinned due to...

https://connect.mayoclinic.org/comment/1008942/

Discussion: Anyone have hair loss with lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 3, 2024

My primary was a tumor wrapped around my small intestine, discovered in 2007. I have been...

https://connect.mayoclinic.org/comment/898391/

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 19, 2023

Your outcomes are so fantastic! Bless your heart, you have so much courage. If you don't...

https://connect.mayoclinic.org/comment/1252623/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 7, 2025

Hi all, I’m new to this forum and this condition. Started with GI pain and inconsistent...

https://connect.mayoclinic.org/comment/876745/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 11, 2023

@anasashesh87 I am only speaking from personal experience. cancer. Long before anything turned up on scans,...

https://connect.mayoclinic.org/comment/1496371/

Discussion: Someone can help?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 2 12:06pm

I have sensitive skin. I had this very same problem with one of my 4 scars...

https://connect.mayoclinic.org/comment/232924/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Mar 30, 2019

It is interesting, isn’t it? However, I didn’t have those allergy symptoms like sneezing, etc. several...

https://connect.mayoclinic.org/comment/1205467/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 6, 2025

Great explanation! I also have both, but not needing treatment at this point. It can be...

https://connect.mayoclinic.org/comment/1411054/

Discussion: DO I need 2 teams if I have both Nets-lung and DIPNECH?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 8, 2025

At 67 I was given my diagnosis of stage 3 lung Nets that has metastasized to...

https://connect.mayoclinic.org/comment/1019087/

Discussion: I have 3 neuroendocrine tumors in left lung: Can I handle radiation?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 20, 2024

Teresa, Thanks! He ordered a couple of repeat CT scans, had many of my previous images...

https://connect.mayoclinic.org/comment/271263/

Discussion: Possible NET with No Evidence of Tumor: Mediastinal Mass

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 30, 2019

I am experiencing all the emotions that everyone here is experiencing... I have Stage 4 inoperable...

https://connect.mayoclinic.org/comment/232999/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Aug 28, 2019

I'm not sure when I have my next scan. In fact, all I have had is...

https://connect.mayoclinic.org/comment/1228005/

Discussion: Already on oxygen - diagnosed with DIPNECH: What happens next?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 2, 2025

Hello @spaztwobe and welcome to the NETs support group. I see that @dbamos1945 and @tstern7 have...

https://connect.mayoclinic.org/comment/1315211/

Discussion: Diagnosis Frustrated: How you were diagnosed with NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 28, 2025

I apologize for not responding earlier. I was waiting to hear maybe where your tumor is....

https://connect.mayoclinic.org/comment/1363339/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 4, 2025

Yes, it is scary. Waiting, making the decision. I have Nets. in both of my lungs....

https://connect.mayoclinic.org/comment/1061631/

Discussion: Lung nodule could be slow growing carcinoid: Watch and wait is scary

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 3, 2024

Hi @chana Sorry to hear about your new diagnosis. I see you are seeking treatment in...

https://connect.mayoclinic.org/comment/886357/

Discussion: Feeling discouraged and too many specialists

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 28, 2023

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