Neuroendocrine Tumors (NETs) Support Group | Page 34

My wife just finished 4 PRRT treatments and are awaiting our PET scan on June 7th,...

https://connect.mayoclinic.org/comment/1048867/

Discussion: Questions Regarding Results after PRRT Treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 11, 2024

Karen, thank you for sharing that. I was diagnosed in March, 22. I’ve been on Lanreotide...

https://connect.mayoclinic.org/comment/729591/

Discussion: PRRT for NETs: Questioning whether I should continue or not

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 22, 2022

Stable is good! It does not mean a cure however it gives us a break physically...

https://connect.mayoclinic.org/comment/1337831/

Discussion: Liver and Pancreas Stable

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 29, 2025

I had most my pancreas removed as well as spleen and gallbladder in 2020. In 2023...

https://connect.mayoclinic.org/comment/1217431/

Discussion: PNET removed 2 years ago: Can it come back at another site?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 20, 2025

@zacharycat My progression and treatments: diagnosed with Nets stage 4 mets to liver Jan. 2021, well...

https://connect.mayoclinic.org/comment/1537920/

Discussion: Is anyone taking cabozantinib (Cabometyx)?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 29 10:59am

I’m in the same boat. I had no symptoms. It started in my pancreas and spread...

https://connect.mayoclinic.org/comment/811233/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 14, 2023

How high is your Gastrin mine was 2,000 I had pet scan to find all tumors...

https://connect.mayoclinic.org/comment/1459196/

Discussion: Did anyone else have a long struggle to getting a NETs diagnosis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 12, 2025

I am also going through the same thing but the tumors are through out (inside) my...

https://connect.mayoclinic.org/comment/1282983/

Discussion: NET in jejunum spread to liver: Treatment options?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 16, 2025

Thanks for sharing. Mine was better by the end of the week. Blood test were run...

https://connect.mayoclinic.org/comment/1210425/

Discussion: Clay colored bowels & diarrhea side effects with Octreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 13, 2025

Thank you and my best for you as well. At this point my team, I and...

https://connect.mayoclinic.org/comment/1279927/

Discussion: Small Intestine Resection

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 12, 2025

Just following up. I had the calcium stimulation test on Tuesday. The liver was positive for...

https://connect.mayoclinic.org/comment/843297/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 14, 2023

Sol, fatty liver seems to be a common problem. I apparently have it as well. I...

https://connect.mayoclinic.org/comment/1376449/

Discussion: Neuroendocrine Tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 22, 2025

@kc43, the liver is an amazing organ. I'm glad to hear that it has recovered 70%...

https://connect.mayoclinic.org/comment/1013222/

Discussion: Update: Lutethera treatment is over

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 10, 2024

Hello @jenntx10 and welcome to Mayo Connect. Is it my understanding that you are sharing an...

https://connect.mayoclinic.org/comment/771344/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 9, 2022

I believe the CT scan is good for finding changes in the size of the tissue...

https://connect.mayoclinic.org/comment/1384574/

Discussion: Stage 4 Carcinoid tumor: What treatments have you had?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 1, 2025

I'm petite, and so far I'm keeping the same weight throughout the treatment. My oncologist wants...

https://connect.mayoclinic.org/comment/1376892/

Discussion: Neuroendocrine Tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 22, 2025

Hi. I too am on a watch and wait recommendation and am very uncomfortable with that....

https://connect.mayoclinic.org/comment/848478/

Discussion: Has anyone chosen the Watch and Wait and regretted that choice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 24, 2023

I don’t know what to say. Mine is an Insulinoma, Pancreas and spread to my Liver....

https://connect.mayoclinic.org/comment/866991/

Discussion: Life expectancy with NETs and lifetyle as it progresses

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 26, 2023

@lully2505 , how might we help guide you through tour upcoming surgery. My wife had a...

https://connect.mayoclinic.org/comment/938747/

Discussion: Found PNET on tail of pancreas but told it’s nonfunctional

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 29, 2023

I’m new to this world of Oncology as well. My dx NET tumor with metastasized to...

https://connect.mayoclinic.org/comment/774811/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 18, 2022