Neuroendocrine Tumors (NETs): Discussions | Page 34

Well differentiated, grade 2, neuroendocrine tumors in tail of pancreas and spread to some lobes of...

https://connect.mayoclinic.org/comment/1265518/

Discussion: Well differentiated Neuroendocrine Grade 2 in rectum

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 24 8:49am

I am curious as to your symptoms. I have stage 4?carcinoid metastasis in the liver and...

https://connect.mayoclinic.org/comment/1266749/

Discussion: Grade 3, poorly differentiated duodenal NET metastasized to liver-

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 25 4:45pm

I had both sides of my liver done I found eating small meals multiple times a...

https://connect.mayoclinic.org/comment/977500/

Discussion: After liver embolization: Looking for the best diet + food suggestions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 9, 2023

I have pancreas to liver NET. The chemotherapy drug I was on was Flofox and a...

https://connect.mayoclinic.org/comment/825587/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 13, 2023

P.S. I was given 3 to 5 years initially. A lot of what oncologists say about...

https://connect.mayoclinic.org/comment/772405/

Discussion: Prognosis for Metastasized NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 12, 2022

That is great news Diane, I won’t know anything more until I have a biopsy in...

https://connect.mayoclinic.org/comment/664858/

Discussion: I've had 3 cancers: Thyroid cancer, Lung Cancer and Breast Cancer

Support Group: Cancer

Posted: Dec 23, 2021

Thank you. I’ve heard so many good things about Dr Sonbol and I’m feeling really comfortable...

https://connect.mayoclinic.org/comment/858487/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 12, 2023

My wife has stage 4 technically with mass on pancreas and metastasis on liver. But after...

https://connect.mayoclinic.org/comment/843780/

Discussion: High grade 2 and 3 neuroendocrine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 15, 2023

@kim1965 That is great to hear about how well treatment has gone for your wife. My...

https://connect.mayoclinic.org/comment/834225/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 29, 2023

@splendrous While I don't have liver METs, I do have many pancreatic cysts. Every other year...

https://connect.mayoclinic.org/comment/1216663/

Discussion: MRI or CatScan as follow up imaging for metastatic liver tumor?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 19 2:11pm

My first ER visit came after passing out from hypoglycemia at home. No memory of anything...

https://connect.mayoclinic.org/comment/1360732/

Discussion: Diagnosing or Ruling out Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 31 12:09pm

What are your thoughts on having SBRT performed on a handful of small liver lesions and...

https://connect.mayoclinic.org/comment/1313342/

Discussion: Pancreatic Cancer Q&A with Dr. Stauffer, Mayo Surgeon: May 29

Support Group: Pancreatic Cancer

Posted: May 26 12:20pm

I will be having another MRI 2/29/24. My last one was Feb 2023. I have multiple...

https://connect.mayoclinic.org/comment/1003831/

Discussion: PNET on tail of pancreas with numerous bilobar hepatic metastases

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 25, 2024

A quick update for my wife is doing ok, 90 day checkup after surgery showed no...

https://connect.mayoclinic.org/comment/907311/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 3, 2023

I had emergency surgery in Dec of 2020. That is when the tumors were found. However,...

https://connect.mayoclinic.org/comment/728274/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 18, 2022

I have a primary pancreatic net with metastasis to the liver functioning gastrinomas. I was first...

https://connect.mayoclinic.org/comment/1035496/

Discussion: Anyone have experience with "functioning" Pancreatic NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 17, 2024

Hello @feebee and welcome to Mayo Clinic Connect's discussion about NETs. Personally, I am a survivor...

https://connect.mayoclinic.org/comment/217319/

Discussion: Embolization

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 6, 2019

That's fantastic news! The CAP/TEM combo has also worked well for us also. We got 80%...

https://connect.mayoclinic.org/comment/844065/

Discussion: Keep Fighting

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 16, 2023

I had pancreatic surgery in February. Have metastases in liver. Just had my first Lanreotide injection...

https://connect.mayoclinic.org/comment/826603/

Discussion: Lanreotide Manufacturers: anyone have experience with either?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 15, 2023

Thank you for your prompt response. Yes, she has NETS with liver metastasis. This is a...

https://connect.mayoclinic.org/comment/167644/

Discussion: Lesions, Cystic liver mets, vs Tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 15, 2017

Neuroendocrine Tumors (NETs) Support Group