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Comments (1,498)
I’ll speak to 3 & 4. My wife with NETs (ileum), 50 METS to liver has...
https://connect.mayoclinic.org/comment/134661/
Lanreotide monthly since dec 2023. NET currently stable after scan in May . Diagnosed in Oct...
https://connect.mayoclinic.org/comment/1104370/
Hello Karen (@kjstein) Welcome to Mayo Clinic Connect! I am glad to hear that you have...
https://connect.mayoclinic.org/comment/713478/
Hi, I too have NETs that were discovered in my ileum after being in the ER...
https://connect.mayoclinic.org/comment/777826/
Thank you. I do have a pain doctor at Mayo - for another (random?) nerve pain...
https://connect.mayoclinic.org/comment/905585/
Hi Teresa. I now know that I am NET. I didn't even know what that was...
https://connect.mayoclinic.org/comment/776779/
Wow! You are truly a determined person and a good example for me. I have often...
https://connect.mayoclinic.org/comment/854458/
Hi. My primary was found in the terminal ileum. Metastasis to nodes, liver, and other organs.i...
https://connect.mayoclinic.org/comment/160176/
My husband has been on CAP and TEM and also a monthly injection of lanreotide for...
https://connect.mayoclinic.org/comment/885058/
I, too, have high grade (2/3) metastatic NETs—liver, pancreas, lungs, bone, adrenal gland, parotid gland. I...
https://connect.mayoclinic.org/comment/811356/
I also had multiple small lesions in my liver and a few larger ones. I decided...
https://connect.mayoclinic.org/comment/813447/
Great info and of course I’m sorry for all you’ve been through. I have not had...
https://connect.mayoclinic.org/comment/796507/
Hello, I too was diagnosed with Carcinoid Center in May of 2017. Mine is located in...
https://connect.mayoclinic.org/comment/184516/
We did not have a choice with a mass on pancreas. Had to remove tail, spleen...
https://connect.mayoclinic.org/comment/842059/
I’m so glad you reached out to us with your swelling concerns. My treatment of Somatuline...
https://connect.mayoclinic.org/comment/883717/
How old are you? Why is surgery not an option ? Im 55yr old male. I...
https://connect.mayoclinic.org/comment/917185/
I was diagnosed with a NET on the head of my pancreas at 42, after 6...
https://connect.mayoclinic.org/comment/783855/
When he was diagnosed it was already metastasized throughout his whole body. That same year they...
https://connect.mayoclinic.org/comment/176684/
When my husband Joe was diagnosed it was already metastasized throughout his body. That first year...
https://connect.mayoclinic.org/comment/181984/
Hi, @amani79--My father-in-law was diagnosed last spring, after having a suspicious spot on his liver for...
https://connect.mayoclinic.org/comment/163140/
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