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Comments (721)
I has dx’d with DIPNECH last fall after having my right middle lobe removed for 1...
https://connect.mayoclinic.org/comment/1143500/
Mine is on the lungs , several of them. I was coughing more than normal 8...
https://connect.mayoclinic.org/comment/1065169/
@auntiemum, I've added your discussion to the Neuroendocrine Tumors (NETs) Support Group as well. See a...
https://connect.mayoclinic.org/comment/1045834/
Yes to all, flushing also, extreme bouts Diarrhea with mucous. Itching of skin, all problems had...
https://connect.mayoclinic.org/comment/1022130/
Hello @mlbschuler, I moved your discussion and combined it with an existing discussion titled, "Neuroendocrine cells...
https://connect.mayoclinic.org/comment/1004013/
@mieczyslaw If you have a lot of tumorlets in both lungs it sounds suspect for DIPNECH....
https://connect.mayoclinic.org/comment/962492/
I know that the surgery for me is the best option; however I also know that...
https://connect.mayoclinic.org/comment/900214/
Hi @hopeful33250. Our story is a lot of drama so far. Around Christmas my husband had...
https://connect.mayoclinic.org/comment/872940/
I wish I had an answer for you, but I doubt that even your doctor can...
https://connect.mayoclinic.org/comment/867084/
I have had three cycles, so far, of Lutathera, starting in December 2022. and have my...
https://connect.mayoclinic.org/comment/859738/
Dear puddknocker, I had a big para in the skull base in the vagus nerve, I...
https://connect.mayoclinic.org/comment/856706/
Hi billyfeet, I had two NETs on the tail of my pancreas both over 2 cms....
https://connect.mayoclinic.org/comment/842530/
In ‘07 I had a bronchial Carcinoid tumor removed. It is very slow growing but when...
https://connect.mayoclinic.org/comment/831739/
Nice to hear from a fellow Badger. Certianly hope all goes well for your wife's recovery...
https://connect.mayoclinic.org/comment/827544/
Thank you we do have an appointment virtually with Dr Shafique. Moms had metastasized to lungs...
https://connect.mayoclinic.org/comment/805159/
We live in Orlando Florida. Mom came to the ER of Orlando Health Hospital thinking she...
https://connect.mayoclinic.org/comment/804283/
@arnana54, welcome. Carcinoid tumors are slow growing neuroendocrine tumors. If they spread it is most typically...
https://connect.mayoclinic.org/comment/794083/
Fingers crossed that you get answers soon, @gigi65. Wow, 2 cancers in different lungs 10+ and...
https://connect.mayoclinic.org/comment/777319/
I have been with Mayo in Rochester since Feb 2020. I have grade 3 NETs in...
https://connect.mayoclinic.org/comment/765344/
Hello @amd12 I appreciate the added information. Like you, I was confused about my carcinoid tumors...
https://connect.mayoclinic.org/comment/657547/
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