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Public Support Group 756 total results
Comments (689)
I totally understand the desire for a conservative approach. While there is likely a primary somewhere,...
https://connect.mayoclinic.org/comment/1157998/
@vinnie694 Hi Vinnie, forgive me is PRRT the same as Lutathera?? I was reading about an...
https://connect.mayoclinic.org/comment/1469546/
@cewald62, my wife has NET in the liver still after finding the primary tumor on the...
https://connect.mayoclinic.org/comment/1146827/
@tgsenn70 & et al: so sorry you are in the position of choosing NET tumor treatment....
https://connect.mayoclinic.org/comment/1415807/
@splendtous: I hope you are getting helpful information to form your decision on NET cancer tumor...
https://connect.mayoclinic.org/comment/1365392/
@grammato3: My experience with Somatuline Depot 120mg injections for NET is definitively NOT the same as...
https://connect.mayoclinic.org/comment/1334543/
amk1122, I think overall I lost about 10 lbs between the start of PRRT and the...
https://connect.mayoclinic.org/comment/948662/
A few comments: 1. She was able to complete the 4 treatments - thankfully without any...
https://connect.mayoclinic.org/comment/968659/
Yes, I was able to tolerate PRRT well. The treatments went exactly as they were explained...
https://connect.mayoclinic.org/comment/713543/
@sophiarose I’m sorry you’re having such a rough time with treatment. I have been taking the...
https://connect.mayoclinic.org/comment/1128152/
@tinerobison My wife was diagnosed with NET in April 22, with about a 3x5cm mass on...
https://connect.mayoclinic.org/comment/997134/
Thank you Teresa. In August of 2019 I went to the ED for abdominal pain, after...
https://connect.mayoclinic.org/comment/257017/
@marct First of all, I can only tell our story which is very similar. My wife...
https://connect.mayoclinic.org/comment/992359/
Hi @mir123 Thanks for sharing your info. I understand there is little historical info to go...
https://connect.mayoclinic.org/comment/909352/
Gig666, I am somewhat appalled that your docs didn't give you more options rather than just...
https://connect.mayoclinic.org/comment/1054944/
My husband on 1/22/2022 was diagnosed 3 mm carcinoid tumor in his small intestines. We found...
https://connect.mayoclinic.org/comment/1003703/
@tgsenn70 Greetings! I went through the PRRT in early 2024. It involved 4 sessions over 8...
https://connect.mayoclinic.org/comment/1416005/
I am 48, well-diff, grade 3 (ki67 17-29), unknown primary with tumors in liver (innumerable), pancreas,...
https://connect.mayoclinic.org/comment/1117054/
@gmapam Your NETs oncology team should be able to tell you. You need to have somatostatin...
https://connect.mayoclinic.org/comment/912394/
According to the article “Multiple Primary Tumors Over a Lifetime” on CancerNetwork.com, “A cancer of a...
https://connect.mayoclinic.org/comment/810100/
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