Neuroendocrine Tumors (NETs): Discussions | Page 33

@harley4650 Sorry, the links somehow combined so I'll try again: West coast hospitals with histotripsy https://blog.providence.org/blog/revolutionary-procedure-brings-new-hope-to-liver-cancer-patients-at-providence-providence-swedish...

https://connect.mayoclinic.org/comment/1047150/

Discussion: Spreading NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 7, 2024

Hi @lindabees , Thanks for your encouraging story. What did the second doctor do to erase...

https://connect.mayoclinic.org/comment/1003894/

Discussion: PNET on tail of pancreas with numerous bilobar hepatic metastases

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 26, 2024

This is the protocol. Do the chemo meds (captem) so it shrinks the tumor then to...

https://connect.mayoclinic.org/comment/1321086/

Discussion: PNET in Tail of Pancreas, Portal and Splenic Veins

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 5, 2025

Hi! I live in Calgary and I have Stage 4 pNET with overwhelming liver mets. My...

https://connect.mayoclinic.org/comment/1204588/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 5, 2025

I have metastatic insulinoma. Mets to the liver. PRRT has not been part of my treatment...

https://connect.mayoclinic.org/comment/1087158/

Discussion: Pancreatic NETs: Looking to connect with anyone with insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 15, 2024

Good morning I have NETS in my small bowels and Liver, also with carcinoid syndrome, diarrhea,...

https://connect.mayoclinic.org/comment/1507896/

Discussion: Anyone have pancreatic neuroendocrine tumors with carcinoid syndrome?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 17 8:12am

@katydurgin Hello so sorry you’re going thru this. My MEN1 test came back negative I figure...

https://connect.mayoclinic.org/comment/1491345/

Discussion: Anyone else with a diagnosis of MEN-1?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 26 5:02pm

@hopeful33250 Hello, I’m still in testing phase. I have four lesions on my liver, and some...

https://connect.mayoclinic.org/comment/1415252/

Discussion: I have a neuroendocrine tumour in the small bowel and liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 14, 2025

Hello @trivia I appreciate you describing Bland Liver Embolization. I had not heard of this procedure...

https://connect.mayoclinic.org/comment/768682/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 2, 2022

@jiamgmx24: RE: Histrotripsy Update: Seattle WA Swedish Hospital has a Histrotripsy program with NET Liver patients....

https://connect.mayoclinic.org/comment/1178965/

Discussion: Has anyone out there tried Histotripsy for tumors in the liver?

Support Group: Liver Cancer

Posted: Nov 24, 2024

My husband has had the insulinoma metastasized to liver since 2022. He also couldn’t do the...

https://connect.mayoclinic.org/comment/1144312/

Discussion: Pancreatic NETs: Looking to connect with anyone with insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 20, 2024

My wife just finished 4 PRRT treatments and are awaiting our PET scan on June 7th,...

https://connect.mayoclinic.org/comment/1048867/

Discussion: Questions Regarding Results after PRRT Treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 11, 2024

Karen, thank you for sharing that. I was diagnosed in March, 22. I’ve been on Lanreotide...

https://connect.mayoclinic.org/comment/729591/

Discussion: PRRT for NETs: Questioning whether I should continue or not

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 22, 2022

Stable is good! It does not mean a cure however it gives us a break physically...

https://connect.mayoclinic.org/comment/1337831/

Discussion: Liver and Pancreas Stable

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 29, 2025

I had most my pancreas removed as well as spleen and gallbladder in 2020. In 2023...

https://connect.mayoclinic.org/comment/1217431/

Discussion: PNET removed 2 years ago: Can it come back at another site?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 20, 2025

@zacharycat My progression and treatments: diagnosed with Nets stage 4 mets to liver Jan. 2021, well...

https://connect.mayoclinic.org/comment/1537920/

Discussion: Is anyone taking cabozantinib (Cabometyx)?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 29 10:59am

I’m in the same boat. I had no symptoms. It started in my pancreas and spread...

https://connect.mayoclinic.org/comment/811233/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 14, 2023

Thank you and my best for you as well. At this point my team, I and...

https://connect.mayoclinic.org/comment/1279927/

Discussion: Small Intestine Resection

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 12, 2025

How high is your Gastrin mine was 2,000 I had pet scan to find all tumors...

https://connect.mayoclinic.org/comment/1459196/

Discussion: Did anyone else have a long struggle to getting a NETs diagnosis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 12, 2025

I am also going through the same thing but the tumors are through out (inside) my...

https://connect.mayoclinic.org/comment/1282983/

Discussion: NET in jejunum spread to liver: Treatment options?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 16, 2025

Neuroendocrine Tumors (NETs) Support Group