Neuroendocrine Tumors (NETs) Support Group

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Comments (1,498)

This is all very new to me. I was just diagnosed in December 2022. I have...

https://connect.mayoclinic.org/comment/804031/

Discussion: Neck and face red flushing

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 30, 2023

I met with my oncologist. The big tumors on my pancreas are about half the size...

https://connect.mayoclinic.org/comment/834133/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 29, 2023

I was diagnosed with stage 4 pancreatic NETs to liver in 8/22. I will start my...

https://connect.mayoclinic.org/comment/903632/

Discussion: Should I want more treatment after pancreatic nets with lymph nodes?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 28, 2023

I have a 3 cm tumor near the tail of my pancreas, and “too numerous to...

https://connect.mayoclinic.org/comment/1015671/

Discussion: Anyone heard about Histotripsy for liver NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 14 11:29am

Hi, see above on 7/11 from me previously in re: to history. Stage 4 PNET, with...

https://connect.mayoclinic.org/comment/1109828/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 22 9:50am

I had 3 ER visits where there were a variety of inconclusive diagnosis. Not sure if...

https://connect.mayoclinic.org/comment/1173512/

Discussion: How many doctors did you see to get to your NETS diagnosis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: 4 days ago

I'm so sorry for the long pain! I had my drain for about a month. Uncomfortable,...

https://connect.mayoclinic.org/comment/811543/

Discussion: Scared - Suspected NET on tail of the pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 14, 2023

I’d like support last round suggestions, as my wife also had too many tumors to count...

https://connect.mayoclinic.org/comment/874754/

Discussion: Diagnosed with Stage 4 pNET: What should I know?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 8, 2023

Hi Teresa, I had been having MRI scans every 4-6 months after removal of the primary...

https://connect.mayoclinic.org/comment/801786/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 26, 2023

Hello @shellster and welcome to Mayo Connect. If you would like to post with other members...

https://connect.mayoclinic.org/comment/953257/

Discussion: Learn About NETs and monthly meetings

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 24, 2023

New to this forum. Had total bowel blockage which was found to have been caused by...

https://connect.mayoclinic.org/comment/894648/

Discussion: What do I need to know about NETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 12, 2023

Thank you so much for the responses! I have been out of pocket and just now...

https://connect.mayoclinic.org/comment/167648/

Discussion: Lesions, Cystic liver mets, vs Tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 17, 2017

I can only offer my experience. I have ankle swelling with my liver met. It is...

https://connect.mayoclinic.org/comment/884247/

Discussion: Anyone have swelling with liver metastases?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 24, 2023

Lyons1234 I just read your post I see you were on Everolimus I am to starting...

https://connect.mayoclinic.org/comment/942782/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 6, 2023

LACNETS is sponsoring a presentation on 12/09 by An IR who specializes in all noninvasive treatment...

https://connect.mayoclinic.org/comment/974007/

Discussion: Anyone heard about Histotripsy for liver NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 2, 2023

Mark, I was diagnosed with NETs (grade 2/3, inoperable, incurable) in Jan 2020 at Mayo Rochester....

https://connect.mayoclinic.org/comment/807712/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 7, 2023

new here. was just diagnosed with LiverNET. My symptoms were fatigue and diarrhea. Had an ultrasound,...

https://connect.mayoclinic.org/comment/796012/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 13, 2023

@ajnaudra There is one support group in Michigan - not close by - but in Grand...

https://connect.mayoclinic.org/comment/184518/

Discussion: Carcinoid Cancer and working

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 14, 2018

@padovani- Welcome to Mayo Connect! I'm sure that you feel all of these things and I...

https://connect.mayoclinic.org/comment/232730/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Dec 8, 2018

Hello, I also have a question about Afinitor. Apparently, its better at treating the PIK3 CA...

https://connect.mayoclinic.org/comment/600088/

Discussion: How to get a second opinion for an international patient??

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 7, 2021

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