Neuroendocrine Tumors (NETs): Discussions | Page 30

I had most my pancreas removed as well as spleen and gallbladder in 2020. In 2023...

https://connect.mayoclinic.org/comment/1217431/

Discussion: PNET removed 2 years ago: Can it come back at another site?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 20 11:52am

@jiamgmx24: RE: Histrotripsy Update: Seattle WA Swedish Hospital has a Histrotripsy program with NET Liver patients....

https://connect.mayoclinic.org/comment/1178965/

Discussion: Has anyone out there tried Histotripsy for tumors in the liver?

Support Group: Liver Cancer

Posted: Nov 24, 2024

My husband has had the insulinoma metastasized to liver since 2022. He also couldn’t do the...

https://connect.mayoclinic.org/comment/1144312/

Discussion: Pancreatic NETs: Looking to connect with anyone with insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 20, 2024

Karen, thank you for sharing that. I was diagnosed in March, 22. I’ve been on Lanreotide...

https://connect.mayoclinic.org/comment/729591/

Discussion: PRRT for NETs: Questioning whether I should continue or not

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 22, 2022

My wife just finished 4 PRRT treatments and are awaiting our PET scan on June 7th,...

https://connect.mayoclinic.org/comment/1048867/

Discussion: Questions Regarding Results after PRRT Treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 11, 2024

Hello @trivia I appreciate you describing Bland Liver Embolization. I had not heard of this procedure...

https://connect.mayoclinic.org/comment/768682/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 2, 2022

I've been on the same journey. Diagnosed March 2024 with PNETS.... Grade 2, Stage 4 metastasis...

https://connect.mayoclinic.org/comment/1333049/

Discussion: First scan after 3 months of lanreotidec

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 22 9:26pm

I’m in the same boat. I had no symptoms. It started in my pancreas and spread...

https://connect.mayoclinic.org/comment/811233/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 14, 2023

Just following up. I had the calcium stimulation test on Tuesday. The liver was positive for...

https://connect.mayoclinic.org/comment/843297/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 14, 2023

Thank you and my best for you as well. At this point my team, I and...

https://connect.mayoclinic.org/comment/1279927/

Discussion: Small Intestine Resection

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 12 9:18am

I am very curious also. I had breast cancer 11 years ago, now I have a...

https://connect.mayoclinic.org/comment/664484/

Discussion: I've had 3 cancers: Thyroid cancer, Lung Cancer and Breast Cancer

Support Group: Cancer

Posted: Dec 22, 2021

Thanks for sharing. Mine was better by the end of the week. Blood test were run...

https://connect.mayoclinic.org/comment/1210425/

Discussion: Clay colored bowels & diarrhea side effects with Octreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 13 8:27am

I am also going through the same thing but the tumors are through out (inside) my...

https://connect.mayoclinic.org/comment/1282983/

Discussion: NET in jejunum spread to liver: Treatment options?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 16 7:05am

I was diagnosed with Stage 4 midgut NETs in Sept. 2021. I have metastses in the...

https://connect.mayoclinic.org/comment/668464/

Discussion: Liver neuroendocrine tumors: I would like to talk with others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 6, 2022

I don’t know what to say. Mine is an Insulinoma, Pancreas and spread to my Liver....

https://connect.mayoclinic.org/comment/866991/

Discussion: Life expectancy with NETs and lifetyle as it progresses

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 26, 2023

@kc43, the liver is an amazing organ. I'm glad to hear that it has recovered 70%...

https://connect.mayoclinic.org/comment/1013222/

Discussion: Update: Lutethera treatment is over

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 10, 2024

Hello @jenntx10 and welcome to Mayo Connect. Is it my understanding that you are sharing an...

https://connect.mayoclinic.org/comment/771344/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 9, 2022

I recommend a high quality MRI which is the best modality (although also imperfect) to identify...

https://connect.mayoclinic.org/comment/1315829/

Discussion: Pancreatic Cancer Q&A with Dr. Stauffer, Mayo Surgeon: May 29

Support Group: Pancreatic Cancer

Posted: May 29 1:11pm

If you don't mid me asking, What was your grade and stage 11 years ago? My...

https://connect.mayoclinic.org/comment/1285740/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 19 11:09pm

We aren't doctors, but generally NET is slow growing in most cases, and the key is...

https://connect.mayoclinic.org/comment/859028/

Discussion: Just diagnosed with PNET: Any thoughts on watch & wait approach?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 12, 2023

Neuroendocrine Tumors (NETs) Support Group