Neuroendocrine Tumors (NETs): Discussions | Page 3

No. He has pnets. I know lung nets are a bit of different animal. In addition...

https://connect.mayoclinic.org/comment/1329069/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 17 10:38am

I think you would be making another trip. I’d call and inquire. Your surgeron team should...

https://connect.mayoclinic.org/comment/772109/

Discussion: Might we have to Travel Twice to Mayo?

Support Group: Visiting Mayo Clinic

Posted: Nov 11, 2022

@annie12345 After you read thru all the posts, let me know what questions you still have....

https://connect.mayoclinic.org/comment/1329039/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 17 10:13am

I was diagnosed with non small cell carcinoma, they removed part of lung, then diagnosed with...

https://connect.mayoclinic.org/comment/1393035/

Discussion: Neuroendocrine carcinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 13 5:09pm

Hi @tammyv615 Finally someone else who had a lung tumor ablated! I can’t say the procedure...

https://connect.mayoclinic.org/comment/1071170/

Discussion: Anyone living long-term with DIPNECH on lungs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 19, 2024

@remi- Good morning. I've had 2 types of lung cancer, one now for 12 years. Mine...

https://connect.mayoclinic.org/comment/284784/

Discussion: I've had 3 cancers: Thyroid cancer, Lung Cancer and Breast Cancer

Support Group: Cancer

Posted: Dec 21, 2019

Thanks Colleen. After 23 years fighting fires and 142 fires June this year had severe pneumonia...

https://connect.mayoclinic.org/comment/950022/

Discussion: Calling all Firefighters: The National Firefighter Registry for Cancer

Support Group: Cancer

Posted: Oct 19, 2023

Just FYI, my NETs in my liver that is the largest tumor is metastatic from my...

https://connect.mayoclinic.org/comment/939449/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 30, 2023

Is the endometrium cancer NETs? If not, I’m not sure how they would be related unless...

https://connect.mayoclinic.org/comment/1223490/

Discussion: Relationship between endometrium cancer and DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 28 12:14am

A small nodule was discovered incidentally in an x-ray 10 years ago in my left lower...

https://connect.mayoclinic.org/comment/1056356/

Discussion: Lung nodule could be slow growing carcinoid: Watch and wait is scary

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 24, 2024

@sophiarose You’re very welcome! Here’s a a section from the Mayo informational page about afinitor (everolimus)...

https://connect.mayoclinic.org/comment/1004238/

Discussion: Afinitor - Anyone have pneumonitis as a side effect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 26, 2024

Greetings....I am still standing and living a normal life at 85 with my disease in the...

https://connect.mayoclinic.org/comment/801669/

Discussion: Neuroendocrine Lung stage 4B with metastasis in liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 25, 2023

Hello, everyone. I just signed up for this group and hope I'm in the right place....

https://connect.mayoclinic.org/comment/656143/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 20, 2021

I am a 19+ year Stage IV Lung Cancer survivor because I was able to go...

https://connect.mayoclinic.org/comment/776728/

Discussion: Husband diagnosed: high grade carcinoma with neuroendocrine features

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 23, 2022

Yes 2nd opinion says it mimics a lung carcinoid (solid round nodule / slow growth)

https://connect.mayoclinic.org/comment/831614/

Discussion: Lung nodule could be slow growing carcinoid: Watch and wait is scary

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 25, 2023

@nana120 So they didn’t remove your lung NET? Or had it already metastasized when first discovered?

https://connect.mayoclinic.org/comment/939523/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 30, 2023

I forgot to saying she got also lung infection, we thought because of the chemotherapy but...

https://connect.mayoclinic.org/comment/804781/

Discussion: Neuroendocrine Lung stage 4B with metastasis in liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 1, 2023

I have been diagnosed with a VERY rare lung disease called DIPNECH. Saw the expert at...

https://connect.mayoclinic.org/comment/1162603/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 25, 2024

Hi, my nodule is also 2.3 cm but is in the upper left lung. Biopsy is...

https://connect.mayoclinic.org/comment/1076544/

Discussion: Lung nodule could be slow growing carcinoid: Watch and wait is scary

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 28, 2024

Diagnosed 1/27/23 lung NET Bronchoscope on 1/24/23 results on 1/26/23 lymph nodes chest ok but nodule...

https://connect.mayoclinic.org/comment/803360/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 29, 2023

Neuroendocrine Tumors (NETs) Support Group