Neuroendocrine Tumors (NETs): Discussions | Page 1

Thank you for responding As per my liver surgeon I have to get an MRI to...

https://connect.mayoclinic.org/comment/829075/

Discussion: Bland embolization or transarterial chemoembolization (TACE)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 20, 2023

I was in for a healthy heart check and spots were seen my liver. I promptly...

https://connect.mayoclinic.org/comment/812546/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 16, 2023

@carcinoid23462 Hello Sandy I appreciate you sharing your treatments for carcinoids. You mentioned that the doctor...

https://connect.mayoclinic.org/comment/746356/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 6, 2022

I do not have experience with ostricide shots but usually given it prior to any medical...

https://connect.mayoclinic.org/comment/1266755/

Discussion: Liver function (birirubin, globulin, glucose, iron) and Octreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 25 4:57pm

I've only just been diagnosed with two neuroendocrine tumors in the liver. I'm very interested in...

https://connect.mayoclinic.org/comment/795642/

Discussion: What topics do you want for the Neuroendocrine Support Group?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 12, 2023

Thank you,,,, l called Dana Farber, Boston for second opinion. Will see May 10th. I do...

https://connect.mayoclinic.org/comment/1056725/

Discussion: NET not found on PET/CT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 24, 2024

I was diagnosed with stage 4 pancreatic NET with liver metastasis in 8/22. I learned what...

https://connect.mayoclinic.org/comment/995254/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 10, 2024

Thank you Your information was very interesting I am just starting my road to wherever I...

https://connect.mayoclinic.org/comment/718692/

Discussion: Newly diagnosed with NET in liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 18, 2022

I was diagnosed March 2022 stage 4 grade 2 18%, primary tumour on the tail of...

https://connect.mayoclinic.org/comment/1049788/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 12, 2024

I have neuroendocrine primary in midgut and mets to liver about 20 small tumors, the primary...

https://connect.mayoclinic.org/comment/90144/

Discussion: I have recently been diagnosed with my third neuroendocrine tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 31, 2016

https://connect.mayoclinic.org/comment/1198291/

Discussion: I recently learned of histotripsy treatment for metastatic NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 27, 2024

Hi mssewest, I had three cancerous liver carcinomas in my liver and was treated with Y90...

https://connect.mayoclinic.org/comment/664839/

Discussion: I've had 3 cancers: Thyroid cancer, Lung Cancer and Breast Cancer

Support Group: Cancer

Posted: Dec 23, 2021

I was tested for histotripsy by Dr Silk at NYU Langone for my 3mm liver tumor...

https://connect.mayoclinic.org/comment/1194891/

Discussion: I recently learned of histotripsy treatment for metastatic NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 21, 2024

Hi I am so sorry to hear of your situation I had primary NET liver cancer...

https://connect.mayoclinic.org/comment/776351/

Discussion: Does sandostatin work?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 22, 2022

Thanks carcinoid tumors/liver.

https://connect.mayoclinic.org/comment/85537/

Discussion: Anyone gone to Mayo Clinic in Rochester Minnesota for carcinoid tumors?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 24, 2015

My oncologist said because the liver and colon feed from same blood supply??

https://connect.mayoclinic.org/comment/1242535/

Discussion: I recently had surgery to remove NET in small intestine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 21 5:52pm

Yes, the plan is to remove the mass on tail of pancreas, spleen, gall badder, and...

https://connect.mayoclinic.org/comment/817761/

Discussion: PNET Surgery: My recovery journey

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 26, 2023

I had Whipple and liver ablation, liver resection in 2019 primary NET was on the head...

https://connect.mayoclinic.org/comment/958846/

Discussion: Found PNET on tail of pancreas but told it’s nonfunctional

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 4, 2023

Thank you, always like positive feedback. It is great you are doing well. The oncologist said...

https://connect.mayoclinic.org/comment/1220030/

Discussion: PNETs: What comes first? Surgery or try to shrink tumor with chemo?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 23 6:46pm

I only had a biopsy on my liver. I have many tumors of all sizes on...

https://connect.mayoclinic.org/comment/1237754/

Discussion: Lanreotide Question

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 15 5:34pm

Neuroendocrine Tumors (NETs) Support Group