Neuroendocrine Tumors (NETs): Discussions | Page 3

Hello @ocean3131 and welcome to the NETs support group on Mayo Connect. I'm sorry to hear...

https://connect.mayoclinic.org/comment/987604/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 28, 2023

I too have small carcinoids in my lungs. In August 2022 I had my right upper...

https://connect.mayoclinic.org/comment/1264503/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 22 9:04pm

So sorry to hear about all your issues. I have DIPNECH also, dx’d after my RML...

https://connect.mayoclinic.org/comment/1222859/

Discussion: Already on oxygen - diagnosed with DIPNECH: What happens next?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 27 8:50am

Hey Teresa, it looks like we were writing at the same time :) Here's some information...

https://connect.mayoclinic.org/comment/134263/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 17, 2017

Hello @cgshields1129 and welcome to the NETs support group on Mayo Connect. It sounds as if...

https://connect.mayoclinic.org/comment/1227266/

Discussion: 4 treatment options from my doctor, which one should I start with?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 1 8:00pm

If you’re able, always get a 2nd opinion before surgery. My lung tumor was found incidentally...

https://connect.mayoclinic.org/comment/1209090/

Discussion: Diagnosed with DIPNECH yesterday!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 11 11:59am

They are flushing versus hot flashes. Flushing just turns you red, but you do not sweat....

https://connect.mayoclinic.org/comment/1203269/

Discussion: What does my dentist need to know about my NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 3 3:17pm

Hi @aclanton @terradean My largest 2.6 cm tumor was destroyed with microwave ablation. Not a fun...

https://connect.mayoclinic.org/comment/1076548/

Discussion: Lung nodule could be slow growing carcinoid: Watch and wait is scary

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 28, 2024

Hi , I am 72 . I was diagnosed with Carcinoid tumors all over my lungs....

https://connect.mayoclinic.org/comment/1061171/

Discussion: Describe your recovery from lung NET surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 3, 2024

I had 2 typical lung carcinoids diagnosed a little over a year ago. One was in...

https://connect.mayoclinic.org/comment/1056209/

Discussion: Lung nodule could be slow growing carcinoid: Watch and wait is scary

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 24, 2024

Welcome, @lchaney1951. I moved your question to the Neuroendocrine Tumors (NETs) support group here: https://connect.mayoclinic.org/group/neuroendocrine-tumors-nets/ where...

https://connect.mayoclinic.org/comment/1022343/

Discussion: Carcinoid tumor right middle lobe.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 25, 2024

What I did was to do a deep dive into the process. First I set my...

https://connect.mayoclinic.org/comment/1000033/

Discussion: Possible NET: Waiting for the endo appointment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 19, 2024

Hi, I had two very small typical carcinoids removed Nov. 21 They took my entire lower...

https://connect.mayoclinic.org/comment/989821/

Discussion: Questions I should ask before surgery for Lung NETs?

Support Group: Lung Cancer

Posted: Jan 1, 2024

The doctor said the typical carcinoids have nothing to do with my colon cancer. I had...

https://connect.mayoclinic.org/comment/976777/

Discussion: Anyone had surgery to remove typical carcinoids of the lung?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 7, 2023

Hi, I was diagnosed with carcinoid tumor in my lower left lung, after ct scans, bronchoscopy...

https://connect.mayoclinic.org/comment/975118/

Discussion: Anyone with carcinoid tumors in lung and stomach?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 4, 2023

@mcohan Most doctors, even radiologists, pulmonologists and oncologists haven't even heard of DIPNECH. I recently went...

https://connect.mayoclinic.org/comment/965599/

Discussion: Anyone had surgery to remove typical carcinoids of the lung?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 16, 2023

@nana120 I wasn't told of any dietary restrictions when I started my octreotide injections, but maybe...

https://connect.mayoclinic.org/comment/937831/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 28, 2023

The carcinoid heart disease caused a lot of swelling to the point it was putting pressure...

https://connect.mayoclinic.org/comment/911346/

Discussion: Has anyone had NETs metastasized to heart?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 11, 2023

I get my injections every 4 weeks. I have had 4 and will do my first...

https://connect.mayoclinic.org/comment/896537/

Discussion: How long do I wait between injections and PET scans.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 16, 2023

Hi Mike @mikecincy Sorry to hear you've joined the NETs club. It looks like you're doing...

https://connect.mayoclinic.org/comment/885633/

Discussion: NET found by colonoscopy. What to expect and how should I approach

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 26, 2023

Neuroendocrine Tumors (NETs) Support Group