Neuroendocrine Tumors (NETs) Support Group

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Comments (201)

It sounds like a slow growing tumor especially grade 1 low ki-67 wait and watch is...

https://connect.mayoclinic.org/comment/1272860/

Discussion: PanNET and CgA results

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 2, 2025

@alanbeavfan I have/had acinar cell carcinoma of pancreas along with NSCAC of the lungs (diagnosed 2...

https://connect.mayoclinic.org/comment/1484242/

Discussion: Anyone have Pancreatic Acinar Cell Carcinoma?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 16 7:35pm

I'm so happy to meet you all having the same tumor here. I'm not brave to...

https://connect.mayoclinic.org/comment/1088429/

Discussion: Pancreatic NETs: Looking to connect with anyone with insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 17, 2024

Hi Pete, kindly advise if you have yearly followed up scans after the whipple surgery thou...

https://connect.mayoclinic.org/comment/814240/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 20, 2023

@lanierj1 So the one they are watchong is in pancreas, but not in an easy spot...

https://connect.mayoclinic.org/comment/1402211/

Discussion: So, now just still waiting, losing my mind being worried and new quest

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 26, 2025

Hi Teresa, Thanks for your prompt response. The last Whipple was not successful because of tumor...

https://connect.mayoclinic.org/comment/1056705/

Discussion: Questions Regarding Results after PRRT Treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 24, 2024

I recommend a whipple if the next EMR finds HGD or the margin is still positive...

https://connect.mayoclinic.org/comment/1315782/

Discussion: Pancreatic Cancer Q&A with Dr. Stauffer, Mayo Surgeon: May 29

Support Group: Pancreatic Cancer

Posted: May 29, 2025

@pontiac - have you had evaluation as to why you are still hypoglycemic post Whipple? I...

https://connect.mayoclinic.org/comment/836851/

Discussion: Ways to control hypoglycemia caused by insulinoma in pancreas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 3, 2023

I had the whipple and chemo for 6 months. I would suggest that you stay away...

https://connect.mayoclinic.org/comment/1445506/

Discussion: How do I eat after digestive tract surgery?

Support Group: Digestive Health

Posted: Nov 23, 2025

I had my whipple surgery done on May 2020. You need to take care of your...

https://connect.mayoclinic.org/comment/1121471/

Discussion: Whipple surgery with no chemo.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 11, 2024

Hi I really need more feedback from this whipple surgery? I gained a lot of weight......

https://connect.mayoclinic.org/comment/1089461/

Discussion: Pancreatic NETs: Looking to connect with anyone with insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 18, 2024

I had Whipple and liver ablation, liver resection in 2019 primary NET was on the head...

https://connect.mayoclinic.org/comment/958846/

Discussion: Found PNET on tail of pancreas but told it’s nonfunctional

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 4, 2023

Very good news that there wasn't any spread. I also had a fistula after my Whipple...

https://connect.mayoclinic.org/comment/811620/

Discussion: Scared - Suspected NET on tail of the pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 14, 2023

Hi my name is Marilyn, I'm at Mayo Clinic now ( actual one of their hospitals)...

https://connect.mayoclinic.org/comment/134652/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 13, 2018

I just had the tumour removed along with 1/2-2/3 of my pancreas. Spleen saved but infarcted....

https://connect.mayoclinic.org/comment/1354275/

Discussion: NET tumor of pancreas (1 cm) diagnosed

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 22, 2025

Hello, I was recently diagnosed with a PNET in my pancreas. I believe its stage 1...

https://connect.mayoclinic.org/comment/848296/

Discussion: PNET Surgery: My recovery journey

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 23, 2023

@pete1962, I'd like to add to the helpful post from @lu7. (I wish you both successful...

https://connect.mayoclinic.org/comment/817128/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 25, 2023

Yes I have. It takes couple days for them to answer. I'm in Oklahoma going thru...

https://connect.mayoclinic.org/comment/839768/

Discussion: Ways to control hypoglycemia caused by insulinoma in pancreas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 8, 2023

After my whipple surgery @ pancreas head in May 2023, my Chromograni A went down from...

https://connect.mayoclinic.org/comment/966777/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 18, 2023

Hello @mn86az and welcome to Mayo Connect. I am sorry to hear of your dad's recurrence...

https://connect.mayoclinic.org/comment/1293779/

Discussion: Pancreatic Cancer: Anyone have liver metastasis after Whipple?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 30, 2025

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