Neuroendocrine Tumors (NETs) Support Group | Page 3

We have been told that PRRT is effective. My husband had high uptake on positive receptors....

https://connect.mayoclinic.org/comment/1003830/

Discussion: NET in illeum, surgery or proper nutrition?!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 25, 2024

Update: on to PRRT …

https://connect.mayoclinic.org/comment/1328564/

Discussion: Help understand interval progression

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 16, 2025

@kurtjazzy01 I had 6 rounds of PRRT and didn't have any pain. It does require 2...

https://connect.mayoclinic.org/comment/1406540/

Discussion: PRRT Question

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 2, 2025

@rkklinger i hesitated like you and had been offered it 2 years before as one option...

https://connect.mayoclinic.org/comment/1568547/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 6 9:31pm

Treatment with prrt or octreotide

https://connect.mayoclinic.org/comment/90130/

Discussion: I have recently been diagnosed with my third neuroendocrine tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 10, 2016

@kjstein Thanks for the useful info. Another question is - Are the radiation protocols after Alpha...

https://connect.mayoclinic.org/comment/1538812/

Discussion: Is anyone taking cabozantinib (Cabometyx)?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 30 12:42pm

Teresa- Was responding to Alpha PRRT with Ac-225 in GEP-NETs, seeking " patients with inoperable, advanced,...

https://connect.mayoclinic.org/comment/1346475/

Discussion: Y90 AND Captem Combo

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 12, 2025

Is PRRT available at the Mayo Clinic?

https://connect.mayoclinic.org/comment/182416/

Discussion: PRRT has been approved by the FDA Jan 26, 2018, as expected

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 6, 2018

Have they suggested prrt therapy?

https://connect.mayoclinic.org/comment/887440/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 29, 2023

My brother had PRRT after having surgery and Octreotide injections every 28 days. The tumor growth...

https://connect.mayoclinic.org/comment/877313/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 12, 2023

Has anyone had experience with PRRT? Most of my tumors are in my liver and I...

https://connect.mayoclinic.org/comment/1525397/

Discussion: Previous heart surgery & risks of surgery to remove lung net

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 12 1:21pm

@harley4650, I encourage you to read and ask questions in this related discussion as you consider...

https://connect.mayoclinic.org/comment/752040/

Discussion: Newly diagnosed with NET in liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 20, 2022

@rhb18 I read similar accounts before starting PRRT. Think the main determinant is grade, how many...

https://connect.mayoclinic.org/comment/1548481/

Discussion: Started PRRT treatment: Anyone experience tumor markers increasing?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 12 8:18am

Hello @susan481, On Connect, we have numerous discussions from members who have had treatment with PRRT....

https://connect.mayoclinic.org/comment/1328871/

Discussion: PRRT and Lanreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 17, 2025

Just to update I have recently had my second PRRT treatment and my CgA markers have...

https://connect.mayoclinic.org/comment/1548406/

Discussion: Started PRRT treatment: Anyone experience tumor markers increasing?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 12 7:06am

@mmar2025: My experience with PRRT was similar to some if the symptoms you have mentioned. When...

https://connect.mayoclinic.org/comment/1584044/

Discussion: Has anyone had cramping pain in left side nearing 3rd PRRT treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 26 5:41pm

Hi When my oncologist suggested PRRT I went to Mayo in Jacksonville for a second option...

https://connect.mayoclinic.org/comment/1558017/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 23 7:39pm

Everolimus and a Clinical Trial for Alpha PRRT.

https://connect.mayoclinic.org/comment/1389578/

Discussion: I saw the surgeon. More confused than ever.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 8, 2025

Hello @amk1122 and welcome to the NETs support group on Mayo Connect. I am sorry to...

https://connect.mayoclinic.org/comment/949381/

Discussion: PRRT for NETs: Questioning whether I should continue or not

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 17, 2023

I see that you had PRRT in 2020 and it’s been stable since. I will have...

https://connect.mayoclinic.org/comment/811900/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 15, 2023