Neuroendocrine Tumors (NETs) Support Group

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Comments (721)

I have a Lung NET that has spread to one of my lymph nodes. Was told...

https://connect.mayoclinic.org/comment/861198/

Discussion: Net unknown cause of breathing problems

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 17, 2023

Hello @hopeful33250 I have no problem in sharing my experiences at all. I was initially experiencing...

https://connect.mayoclinic.org/comment/917370/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 22, 2023

@gmapam Your NETs oncology team should be able to tell you. You need to have somatostatin...

https://connect.mayoclinic.org/comment/912394/

Discussion: How do I know somatostatin is in my system?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 13, 2023

Hello, In May '22, after surgery to remove a tumor in my right lung and a...

https://connect.mayoclinic.org/comment/823582/

Discussion: Stage 4 Carcinoid tumor: What treatments have you had?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 9, 2023

My situation sounds a little similar in that they marked my tumor from a CT scan...

https://connect.mayoclinic.org/comment/944168/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 8, 2023

I wrote you a very long detailed reply to help you and some how it got...

https://connect.mayoclinic.org/comment/911496/

Discussion: Has anyone had NETs metastasized to heart?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 11, 2023

Hi @helloitsme, your reaction to finding out you have NETs is normal. Even though NETs is...

https://connect.mayoclinic.org/comment/851198/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 29, 2023

@azkidney57 - Good afternoon. You are so lucky to be cancer free right now! Scanxiety is...

https://connect.mayoclinic.org/comment/233070/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Sep 19, 2019

Banner Health Patient: JAN COMPUTED TOMOGRAPHY Report: Noncalcified pulmonary nodules some of which is detailed below....

https://connect.mayoclinic.org/comment/1221647/

Discussion: Already on oxygen - diagnosed with DIPNECH: What happens next?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 25 5:25pm

Hello @paula7 and welcome to Mayo Clinic Connect. Most folks with a diagnosis of neuroendocrine (NET)...

https://connect.mayoclinic.org/comment/828882/

Discussion: Anyone else got neuroendocrine cervical cancer?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 20, 2023

Welcome @odikaflog to Mayo Connect. When I wrote "we" I was trying to include everyone, but...

https://connect.mayoclinic.org/comment/232752/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Dec 9, 2018

Hi Emily, My strength after the lobectomy was slow at the beginning. My surgery was September...

https://connect.mayoclinic.org/comment/975317/

Discussion: Anyone with carcinoid tumors in lung and stomach?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 5, 2023

Hello @sylvian and welcome to the NETs discussion on Mayo Clinic Connect. As you can see,...

https://connect.mayoclinic.org/comment/827446/

Discussion: Newly diagnosed-Primary Malignant Neuroendocrine of Lung

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 17, 2023

Hi @kim2022 I see this post is from November of last year. Hope all is going...

https://connect.mayoclinic.org/comment/807987/

Discussion: Stage 4, High-Grade Neuroendocrine carcinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 8, 2023

JULY 22 I was diagnosed with uterine cancer adenocarcinoma and had a hysterectomy, no node or...

https://connect.mayoclinic.org/comment/1076685/

Discussion: Lung nodule could be slow growing carcinoid: Watch and wait is scary

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 28, 2024

Has anyone had a combo of NETS...then a strange b!old starting low, low Iron, infusions, brought...

https://connect.mayoclinic.org/comment/1031321/

Discussion: High risk surgery. Is it worth it?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 10, 2024

Hello I have a couple of NETs tumors. One in the lung one in the mediastinum....

https://connect.mayoclinic.org/comment/1198328/

Discussion: Any advice for someone recently diagnosed with NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 27, 2024

Hi, thank you! Yes, I do intend to address all my side effect issues with the...

https://connect.mayoclinic.org/comment/1103497/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 11, 2024

Hi @dipnech67 I would be happy to speak with you. I just sent you a private...

https://connect.mayoclinic.org/comment/1055386/

Discussion: New DIPNECH diagnosis, need advice on doctors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 22, 2024

Hi Rose830, I had to look up Merkel Cell Cancinoma as I'm not familiar with it....

https://connect.mayoclinic.org/comment/844303/

Discussion: What do I need to know about NETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 17, 2023

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