Neuroendocrine Tumors (NETs): Discussions | Page 28

Hello @perryleeoneal and welcome to the NETs support group on Mayo Connect. I appreciate you sharing...

https://connect.mayoclinic.org/comment/1312862/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 25 7:24pm

Hoping all is going well for you. My husband is in the middle of his 4th...

https://connect.mayoclinic.org/comment/942780/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 6, 2023

@michellesimpson10 My wife received a diagnosis of mass of pancreas near tail of pancreas, and too...

https://connect.mayoclinic.org/comment/845638/

Discussion: New diagnosis of NET: What should I know and do to plan?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 19, 2023

I know this is a bit of an older thread, but for those who had metastasis...

https://connect.mayoclinic.org/comment/842575/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 13, 2023

Can’t say enough about the CAP/TEM chemo option. For my wife it resulted in approximately a...

https://connect.mayoclinic.org/comment/1255694/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 11 3:24pm

@tomrennie, how are you doing? Your case is similar to my wife’s. Our team is recommending...

https://connect.mayoclinic.org/comment/1038369/

Discussion: Treatment for GI NET with liver mets not working: Options?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 22, 2024

It’s really hard to say the right things! I can tell you the diagnosis is a...

https://connect.mayoclinic.org/comment/1246314/

Discussion: Grade 3, poorly differentiated duodenal NET metastasized to liver-

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 27 5:38am

Hi, I went for whipple in 2020 as found a PNET Gastrinoma Grade1 Functional. In July...

https://connect.mayoclinic.org/comment/1162931/

Discussion: NET on liver: Question about treatments when no symptoms

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 26, 2024

@kaw627 @hopeful33250 @retiredinkazoo @lindaldotson @dbamos1945 From the e-mail I received from LACNETS: "Join us on Saturday,...

https://connect.mayoclinic.org/comment/972907/

Discussion: Anyone heard about Histotripsy for liver NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 30, 2023

Hi, His primary is undetermined. It has metastisized to liver, lymph nodes, mesentery, and the fat...

https://connect.mayoclinic.org/comment/911173/

Discussion: Has anyone had NETs metastasized to heart?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 11, 2023

I hope you get a good report on your liver spot. I had a similar spot...

https://connect.mayoclinic.org/comment/754461/

Discussion: Questions on Recurrence & Likelihood of Multiple NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 27, 2022

My wife (NETs) and I are very interested in nutrition. In 2015 and 2016 she had...

https://connect.mayoclinic.org/comment/275687/

Discussion: What topics do you want for the Neuroendocrine Support Group?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 1, 2019

I go to Moffitt in Tampa. I get santosattan. (sp) I have 23 tumors on my...

https://connect.mayoclinic.org/comment/881449/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 19, 2023

My primary tumors removed have over 20 in liver they have been stable for over 4...

https://connect.mayoclinic.org/comment/303700/

Discussion: NETs, Toilet Paper, a rant and a little humor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 25, 2020

The Dr that did the y-9o on me called me and warned me 1 bead got...

https://connect.mayoclinic.org/comment/1335558/

Discussion: Severe pain after stage2 y90 treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 26 10:38am

You've been diagnosed with Neuroendocrine cancer? Symptoms? How was this discovered? Maybe you are needing a...

https://connect.mayoclinic.org/comment/1370852/

Discussion: Surgery on Small Intestine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 14 7:25pm

@ahtaylor My wife’s primary tumor was a mass on the pancreas tail. Our initial findings of...

https://connect.mayoclinic.org/comment/828363/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 19, 2023

https://connect.mayoclinic.org/comment/802019/

Discussion: NET in body of pancreas: What are my treatment options?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 26, 2023

Links, Sounds like you have what I have. Mine started in my Pancreas and is in...

https://connect.mayoclinic.org/comment/807256/

Discussion: Pancreatic NETs: Looking to connect with anyone with insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 6, 2023

HI - Has anyone received the HistoTripsy treatment --> In our case, my father , around...

https://connect.mayoclinic.org/comment/1243011/

Discussion: Has anyone out there tried Histotripsy for tumors in the liver?

Support Group: Liver Cancer

Posted: Feb 22 11:59am

Neuroendocrine Tumors (NETs) Support Group