Neuroendocrine Tumors (NETs) Support Group | Page 28

I have neuroendrocrine tumors in my liver.six years ago it was near my bowels. Then the...

https://connect.mayoclinic.org/comment/1109539/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 21, 2024

Thank you so much for the information. I’ll start Lutethera infusion on February 6th . I...

https://connect.mayoclinic.org/comment/995130/

Discussion: Update: Lutethera treatment is over

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 10, 2024

I'm curious - do you have lesions in your liver that are considered cancerous? While 'waiting',...

https://connect.mayoclinic.org/comment/917145/

Discussion: Laparoscopic Possible Open Surgery Resection - Small Bowel NETS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 22, 2023

Sorry for the delay in responding. Where are things today? Any changes? I have a pancreatic...

https://connect.mayoclinic.org/comment/1143967/

Discussion: Pancreatic NETs: Looking to connect with anyone with insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 19, 2024

My understanding is a grade 3 of the lung is considered small cell or non small...

https://connect.mayoclinic.org/comment/813610/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 18, 2023

Hi @pamsbass, I had a Pyloric preserving pancreaticoduodenectomy (modified Whipple) liver resection and liver ablation in...

https://connect.mayoclinic.org/comment/1001236/

Discussion: Need more information on NET in head of pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 21, 2024

Thanks for sharing. What was the size of your larger tumors? What type of ablation did...

https://connect.mayoclinic.org/comment/1380118/

Discussion: Questions for surgeon-considerations choosing PRRT or surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 26, 2025

@susan481 Welcome to Mayo Connect. I have never heard the terms interval progression. Where did you...

https://connect.mayoclinic.org/comment/1326220/

Discussion: Help understand interval progression

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 13, 2025

Cyst in the liver are pretty common. I have several. They are only a problem if...

https://connect.mayoclinic.org/comment/818581/

Discussion: Lesions, Cystic liver mets, vs Tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 28, 2023

The hematologist's PA called me yesterday with my scan results. I have small tumors in my...

https://connect.mayoclinic.org/comment/809220/

Discussion: Long Time Survivor With Concerns re Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 10, 2023

Have non-operable S4 primary tumor in Mesentery, too close to liver blood supply. Had total hysterectomy...

https://connect.mayoclinic.org/comment/1443174/

Discussion: S4, G2 NETS in mesentery. Declined Exploratory Surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 20, 2025

Sorry you haven’t had luck with the lanreotide injections. My husband was diagnosed as a high...

https://connect.mayoclinic.org/comment/1050488/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 14, 2024

I’m 63, no systems at all. NET discovered while getting a hernia repaired in April of...

https://connect.mayoclinic.org/comment/837694/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 4, 2023

Hi,Sorry to hear about your diagnosis. One thing doctors and research haveshown is that most neuroendicrine...

https://connect.mayoclinic.org/comment/90131/

Discussion: I have recently been diagnosed with my third neuroendocrine tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 10, 2016

Your tracking great with being a strong advocate for your son's health with this diagnosis. Our...

https://connect.mayoclinic.org/comment/1288159/

Discussion: Son, 48 diagnosed with PNET pancreatic cancer 8cm tail & spleen

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 23, 2025

Stay hopeful as it’s amazing how much medicine is advancing in this area. I have (small...

https://connect.mayoclinic.org/comment/1530028/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 18 2:35pm

@tgsenn70 I would share the swelling with your care team especially the abdomen. When I first...

https://connect.mayoclinic.org/comment/1529983/

Discussion: Liver NETs: Anyone has extreme swelling in feet and ankles?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 18 1:51pm

@nannybb I've some gathering of blood vessels on my liver they said its noting to worry...

https://connect.mayoclinic.org/comment/1464462/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 20, 2025

I had a liver embolization in June and no itches all of July. However, most of...

https://connect.mayoclinic.org/comment/1387996/

Discussion: Why do almost none of the sites online mention severe itching?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 6, 2025

Yes, I had the swollen feet and joints before I started Lanreotide shots every month. I...

https://connect.mayoclinic.org/comment/1197423/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 26, 2024