Neuroendocrine Tumors (NETs) Support Group | Page 27

I’m tired. No cancer diagnosis. Lots of cancer in my family… mom, aunt, grandma and my...

https://connect.mayoclinic.org/comment/882282/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 21, 2023

Hello @larenn and welcome to Mayo Connect. It sounds as if you have a rather complex...

https://connect.mayoclinic.org/comment/793773/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 7, 2023

Hello @coco1, I see that @char1962 has already connected with you. I would like to join...

https://connect.mayoclinic.org/comment/748313/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 11, 2022

You are so welcome and thank you for words of encouragement. Sounds like you have a...

https://connect.mayoclinic.org/comment/826704/

Discussion: NET lung with Liver Metastasis (stage 4)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 15, 2023

Thank you and we feel the same way. Why not monitor at this point. She feels...

https://connect.mayoclinic.org/comment/1111437/

Discussion: NET on liver: Question about treatments when no symptoms

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 25, 2024

Thank you Colleen for posting, this is a great initiative. I, like JoAnn am also retired...

https://connect.mayoclinic.org/comment/949715/

Discussion: Calling all Firefighters: The National Firefighter Registry for Cancer

Support Group: Cancer

Posted: Oct 18, 2023

@elementalmiss, I'd like to add my welcome. I added your question to the Neuroendocrine Tumors (NETs)...

https://connect.mayoclinic.org/comment/1378363/

Discussion: Atypical Carcinoid Tumor - lower left lobectomy. Radiation questions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 24, 2025

@ekri, good to hear that the surgery was able to have clear margins. You're asking good...

https://connect.mayoclinic.org/comment/1013386/

Discussion: Atypical pulmonary carcinoid

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 10, 2024

Oh nice! I didn't realize there were individual groups, that's super helpful. Thank you! No, I...

https://connect.mayoclinic.org/comment/1357875/

Discussion: Initial imaging and tests; what to expect after initial NETs diagnosis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 27, 2025

Just had my scan at the Mayo Clinic was also nervous (my cancer is terminal) as...

https://connect.mayoclinic.org/comment/233030/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Sep 1, 2019

@nannybb there's still half of tumor left in my lobe they only removed half of it...

https://connect.mayoclinic.org/comment/1447707/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 26, 2025

@jessie1990 My net tumors were never classified as typical or atypical. The growth rate of my...

https://connect.mayoclinic.org/comment/1430272/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 3, 2025

@alamogal635 - I'm with you on the guilt and shame. In my blog I go into...

https://connect.mayoclinic.org/comment/232935/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Apr 5, 2019

I have a question. I was diagnosed about year and half ago with small MCC lesion...

https://connect.mayoclinic.org/comment/1312210/

Discussion: Merkel Cell Carcinoma: Immunotherapy while on antirejection meds

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 25, 2025

Thank you very much for your post. I've been dealing with lung nodules cropping up since...

https://connect.mayoclinic.org/comment/1206060/

Discussion: Concerns after lobectomy for carcinoid tumor in lung

Support Group: Lung Cancer

Posted: Jan 7, 2025

Welcome, @sandip. I moved your message to this existing discussion: - Neuroendocrine tumor in small bowel...

https://connect.mayoclinic.org/comment/873174/

Discussion: Neuroendocrine tumor in small bowel with lymph nodes involved

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 5, 2023

@nannybb they asked me same question did I smoke yes I'm off them 4 years do...

https://connect.mayoclinic.org/comment/1436272/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 11, 2025

Good day, Yes, I think this is my case. Mine is 9mm and mean. I am...

https://connect.mayoclinic.org/comment/1350762/

Discussion: What's next after SiNETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 18, 2025

Hi Jane @gram26 I would agree with Theresa to check out all the DIPNECH comments on...

https://connect.mayoclinic.org/comment/882190/

Discussion: Should I see a NET specialist?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 21, 2023

I have DIPNECH, also had my right middle lobe removed in October 2023. At this point,...

https://connect.mayoclinic.org/comment/1244351/

Discussion: DIPNECH diagnosis. Has anyone had radiation?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 24, 2025