Neuroendocrine Tumors (NETs): Discussions | Page 26

Yes, I had the swollen feet and joints before I started Lanreotide shots every month. I...

https://connect.mayoclinic.org/comment/1197423/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 26, 2024

My sisters has now spread to the peritoneam (lining of the abdomen), and pelvic area. She...

https://connect.mayoclinic.org/comment/1100726/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 7, 2024

Hello, my NET is metastasized to my liver from my lung diagnosis in Dec 2022. My...

https://connect.mayoclinic.org/comment/1349514/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 16 10:37am

I did not tolerate well the milk shakes, probably due to milk, but also cacao is...

https://connect.mayoclinic.org/comment/919089/

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 26, 2023

https://connect.mayoclinic.org/discussion/is-there-a-particular-diet-to-have-when-beginning-lanreotide-injection/Reading what others have said confirms that as NET patients we are all different. I was...

https://connect.mayoclinic.org/comment/1252413/

Discussion: Is there a particular diet to have when starting Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 7 9:30am

I hope you are doing well and have no recurrence of NETs! Do you mind sharing...

https://connect.mayoclinic.org/comment/1239322/

Discussion: I recently had surgery to remove NET in small intestine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 17 3:19pm

Thank you! I had my first CT scan after surgery and 3 Lan injections. No tumour...

https://connect.mayoclinic.org/comment/876264/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 10, 2023

Thank you for sharing. This is very good, helpful information. Im in Oklahoma, and have found...

https://connect.mayoclinic.org/comment/872994/

Discussion: Pheochromocytoma: Anyone being treated for an adrenal mass?

Support Group: Diabetes & Endocrine System

Posted: Jun 5, 2023

What a situation There is a transplant team in New York st Mount Sinai Hospital it...

https://connect.mayoclinic.org/comment/1328862/

Discussion: Liver transplant and Neuroendocrine Carcinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 17 6:22am

So I am also grade 2 stage 4 ki-67 7% metatasic to both sides of the...

https://connect.mayoclinic.org/comment/978339/

Discussion: After liver embolization: Looking for the best diet + food suggestions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 11, 2023

@fae As a fellow Wisconsin Badger, my wife has dealt with the past 9 months, similar...

https://connect.mayoclinic.org/comment/827529/

Discussion: Lanreotide Manufacturers: anyone have experience with either?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 17, 2023

I was diagnosed with multiple Net’s in the small bowel, and 16 Net’s on my liver...

https://connect.mayoclinic.org/comment/1023918/

Discussion: I have a neuroendocrine tumour in the small bowel and liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 27, 2024

My husband also has one in the small intestine that metastasized to the liver & spine,...

https://connect.mayoclinic.org/comment/885632/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 26, 2023

I have had all stool tests, ct liver belly, pancreas and ldct lung which showed 6...

https://connect.mayoclinic.org/comment/823720/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 9, 2023

@cangre82, a lot of us have done your path, and we tell you our story and...

https://connect.mayoclinic.org/comment/1074865/

Discussion: newly diagnosed pNET on tail of pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 26, 2024

Always keeping the fight! Glad to hear you have a great experience at Dana Farber. Being...

https://connect.mayoclinic.org/comment/943748/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 7, 2023

100% agree, make sure the doctor is a NET specialist. I’m on my 3rd hospital. The...

https://connect.mayoclinic.org/comment/824035/

Discussion: NET lung with Liver Metastasis (stage 4)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 10, 2023

Hello @osiejay26 and welcome to the NET discussion group on Mayo Connect. I can understand that...

https://connect.mayoclinic.org/comment/804430/

Discussion: Straight to the liver: Anyone have NETs originating in strange areas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 31, 2023

I totally understand the desire for a conservative approach. While there is likely a primary somewhere,...

https://connect.mayoclinic.org/comment/1157998/

Discussion: NET on liver: Question about treatments when no symptoms

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 16, 2024

I do not see my specialist until mid June, but I did see my gp. I...

https://connect.mayoclinic.org/comment/1075835/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 27, 2024

Neuroendocrine Tumors (NETs) Support Group