Neuroendocrine Tumors (NETs) Support Group

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Comments (1,498)

Well I got my news early and the 2 cm spot on my liver is indeed...

https://connect.mayoclinic.org/comment/783362/

Discussion: Merkel cell-radiation effective on chest-new 2 cm spot on liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 10, 2022

I had both sides of my liver done I found eating small meals multiple times a...

https://connect.mayoclinic.org/comment/977500/

Discussion: After liver embolization: Looking for the best diet + food suggestions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 9, 2023

P.S. I was given 3 to 5 years initially. A lot of what oncologists say about...

https://connect.mayoclinic.org/comment/772405/

Discussion: Prognosis for Metastasized NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 12, 2022

@kim1965 That is great to hear about how well treatment has gone for your wife. My...

https://connect.mayoclinic.org/comment/834225/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 29, 2023

My wife has stage 4 technically with mass on pancreas and metastasis on liver. But after...

https://connect.mayoclinic.org/comment/843780/

Discussion: High grade 2 and 3 neuroendocrine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 15, 2023

Thank you. I’ve heard so many good things about Dr Sonbol and I’m feeling really comfortable...

https://connect.mayoclinic.org/comment/858487/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 12, 2023

Very interested in your second opinion that indicated you did not need the Octreotide injections. I...

https://connect.mayoclinic.org/comment/1171874/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: 6 days ago

A quick update for my wife is doing ok, 90 day checkup after surgery showed no...

https://connect.mayoclinic.org/comment/907311/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 3, 2023

I had emergency surgery in Dec of 2020. That is when the tumors were found. However,...

https://connect.mayoclinic.org/comment/728274/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 18, 2022

I will be having another MRI 2/29/24. My last one was Feb 2023. I have multiple...

https://connect.mayoclinic.org/comment/1003831/

Discussion: PNET on tail of pancreas with numerous bilobar hepatic metastases

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 25 9:34pm

Hello @feebee and welcome to Mayo Clinic Connect's discussion about NETs. Personally, I am a survivor...

https://connect.mayoclinic.org/comment/217319/

Discussion: Embolization

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 6, 2019

I have a primary pancreatic net with metastasis to the liver functioning gastrinomas. I was first...

https://connect.mayoclinic.org/comment/1035496/

Discussion: Anyone have experience with "functioning" Pancreatic NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 17 11:29pm

I've been dealing with it. I had multiple tumors on my pancreas, with lesions on my...

https://connect.mayoclinic.org/comment/830996/

Discussion: Neuroendocrine Insulinoma: Is treatment different for this type?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 24, 2023

@stevestenberg31 My wife@Kim1965, in April 22 diagnosed with mass on pancreas and also too many lesions...

https://connect.mayoclinic.org/comment/830142/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 22, 2023

Just FYI, my NETs in my liver that is the largest tumor is metastatic from my...

https://connect.mayoclinic.org/comment/939449/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 30, 2023

Kim has had a rocky first week after surgery on March 1st. Went home from hospital...

https://connect.mayoclinic.org/comment/824732/

Discussion: PNET Surgery: My recovery journey

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 11, 2023

Hello @bluedane and welcome to the NETs discussion on Mayo Clinic Connect. I am so glad...

https://connect.mayoclinic.org/comment/814509/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 20, 2023

I took lanreotide injections for a year and the side effects for me were worse than...

https://connect.mayoclinic.org/comment/933243/

Discussion: Anyone still have pancreas pain while taking Lanteotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 20, 2023

I was diagnosed in 2012 as a typical mid-gut, Ileum primary, liver mets and lymphnode mets...

https://connect.mayoclinic.org/comment/869112/

Discussion: Life expectancy with NETs and lifetyle as it progresses

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 30, 2023

@helloitsme It is nice to see so many comments to you! Congrats for choosing Mayo Phoenix...

https://connect.mayoclinic.org/comment/851553/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 29, 2023

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