Neuroendocrine Tumors (NETs): Discussions | Page 22

@dipnech67 Robert Ramirez MD at Vanderbilt in Nashville is a NETS specialist who talks about DIPNECH...

https://connect.mayoclinic.org/comment/1054381/

Discussion: New DIPNECH diagnosis, need advice on doctors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 20, 2024

@triveraderubio I had to go back and read through this entire thread to remember what you...

https://connect.mayoclinic.org/comment/962925/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 11, 2023

Welcome @surbhi1. I added your message to the NETs Support Group as well as the cancer...

https://connect.mayoclinic.org/comment/793761/

Discussion: NET (Lung + liver metastatis) Radical nephrectomy done for RCC

Support Group: Kidney Cancer

Posted: Jan 7, 2023

Hi @mimi206 I have DIPNECH and lung NETs (typical carcinoids) with 50+ nodules so we are...

https://connect.mayoclinic.org/comment/1250591/

Discussion: DIPNECH diagnosis. Has anyone had radiation?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 4 7:24pm

@firepowr if you don’t mind me asking, what have they said about yours that is considered...

https://connect.mayoclinic.org/comment/813521/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 18, 2023

Hi, my lung nodule was found incidentally. I had a benign lipoma removed from my abdomen,...

https://connect.mayoclinic.org/comment/827217/

Discussion: Newly diagnosed-Primary Malignant Neuroendocrine of Lung

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 16, 2023

Is there a NET team anyone can recommend? I had a right upper lobe lobectomy in...

https://connect.mayoclinic.org/comment/794019/

Discussion: NET (Lung + liver metastatis) Radical nephrectomy done for RCC

Support Group: Kidney Cancer

Posted: Jan 8, 2023

Hi. Gulp. I should be happy — wonderful wife who has taken care of me through...

https://connect.mayoclinic.org/comment/232991/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Aug 13, 2019

Hello all! New to the group. Diagnosed with PNET that have metastasized to liver, bone, lung....

https://connect.mayoclinic.org/comment/890587/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 5, 2023

@netnan I also have lung NETs (atypical carcinoids) and DIPNECH with 50+ tumors scattered across both...

https://connect.mayoclinic.org/comment/1107096/

Discussion: Sarcoidosis and Lung NET, upcoming surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 17, 2024

I wish you well . It’s been 8 years since my diagnosis. I still go for...

https://connect.mayoclinic.org/comment/1268925/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 28 6:21pm

Hi @monroeed, I'm just catching up with this discussion and have a few more areas of...

https://connect.mayoclinic.org/comment/284806/

Discussion: I've had 3 cancers: Thyroid cancer, Lung Cancer and Breast Cancer

Support Group: Cancer

Posted: Jan 4, 2020

@lkent Can I ask how large your NETs tumors are? Why another biopsy if you were...

https://connect.mayoclinic.org/comment/1318269/

Discussion: Diagnosis Difficulties

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 2 2:50am

@karendb- Fatigue takes quite a while to dissipate. After my chemo of 16 weeks for my...

https://connect.mayoclinic.org/comment/232816/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Jan 12, 2019

https://connect.mayoclinic.org/discussion/is-there-a-particular-diet-to-have-when-beginning-lanreotide-injection/Reading what others have said confirms that as NET patients we are all different. I was...

https://connect.mayoclinic.org/comment/1252413/

Discussion: Is there a particular diet to have when starting Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 7 9:30am

I’ve had my first significant change recently. 3 months ago it looked like I had a...

https://connect.mayoclinic.org/comment/1223495/

Discussion: Already on oxygen - diagnosed with DIPNECH: What happens next?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 28 12:43am

Yes, I am scheduled to fly back to Rochester for appts Sept 29 through Oct 1....

https://connect.mayoclinic.org/comment/1346484/

Discussion: Femoral catheterization before carotid tumor removed?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 12 11:21am

I’m glad your allergies have improved and general wellness. I did allergy testing about 25 years...

https://connect.mayoclinic.org/comment/1330239/

Discussion: DIPNCEH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 18 10:15pm

Thanks for all that info. I will certainly look up the website you suggested. The carcinoids...

https://connect.mayoclinic.org/comment/845019/

Discussion: Anyone had surgery to remove typical carcinoids of the lung?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 18, 2023

The one thing all cancer patients have in common -- regardless of where they are in...

https://connect.mayoclinic.org/comment/828798/

Discussion: The Roller Coaster Ride of Cancer

Support Group: Cancer

Posted: Mar 20, 2023

Neuroendocrine Tumors (NETs) Support Group