Neuroendocrine Tumors (NETs): Discussions | Page 20

Karen, thank you for sharing that. I was diagnosed in March, 22. I’ve been on Lanreotide...

https://connect.mayoclinic.org/comment/729591/

Discussion: PRRT for NETs: Questioning whether I should continue or not

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 22, 2022

My wife just finished 4 PRRT treatments and are awaiting our PET scan on June 7th,...

https://connect.mayoclinic.org/comment/1048867/

Discussion: Questions Regarding Results after PRRT Treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 11 9:05am

Hello @trivia I appreciate you describing Bland Liver Embolization. I had not heard of this procedure...

https://connect.mayoclinic.org/comment/768682/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 2, 2022

I’m in the same boat. I had no symptoms. It started in my pancreas and spread...

https://connect.mayoclinic.org/comment/811233/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 14, 2023

@harley4650 Sorry, the links somehow combined so I'll try again: West coast hospitals with histotripsy https://blog.providence.org/blog/revolutionary-procedure-brings-new-hope-to-liver-cancer-patients-at-providence-providence-swedish...

https://connect.mayoclinic.org/comment/1047150/

Discussion: Spreading NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 7 10:50pm

Hi @lindabees , Thanks for your encouraging story. What did the second doctor do to erase...

https://connect.mayoclinic.org/comment/1003894/

Discussion: PNET on tail of pancreas with numerous bilobar hepatic metastases

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 26 6:38am

I have metastatic insulinoma. Mets to the liver. PRRT has not been part of my treatment...

https://connect.mayoclinic.org/comment/1087158/

Discussion: Pancreatic neuroendocrine insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 15 7:17am

Just following up. I had the calcium stimulation test on Tuesday. The liver was positive for...

https://connect.mayoclinic.org/comment/843297/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 14, 2023

I was diagnosed with Stage 4 midgut NETs in Sept. 2021. I have metastses in the...

https://connect.mayoclinic.org/comment/668464/

Discussion: Liver neuroendocrine tumors: I would like to talk with others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 6, 2022

Hello @jenntx10 and welcome to Mayo Connect. Is it my understanding that you are sharing an...

https://connect.mayoclinic.org/comment/771344/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 9, 2022

@kc43, the liver is an amazing organ. I'm glad to hear that it has recovered 70%...

https://connect.mayoclinic.org/comment/1013222/

Discussion: Update: Lutethera treatment is over

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 10 2:34pm

I don’t know what to say. Mine is an Insulinoma, Pancreas and spread to my Liver....

https://connect.mayoclinic.org/comment/866991/

Discussion: Life expectancy with NETs and lifetyle as it progresses

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 26, 2023

I am very curious also. I had breast cancer 11 years ago, now I have a...

https://connect.mayoclinic.org/comment/664484/

Discussion: I've had 3 cancers: Thyroid cancer, Lung Cancer and Breast Cancer

Support Group: Cancer

Posted: Dec 22, 2021

Hi. I too am on a watch and wait recommendation and am very uncomfortable with that....

https://connect.mayoclinic.org/comment/848478/

Discussion: Has anyone chosen the Watch and Wait and regretted that choice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 24, 2023

We aren't doctors, but generally NET is slow growing in most cases, and the key is...

https://connect.mayoclinic.org/comment/859028/

Discussion: Just diagnosed with PNET: Any thoughts on watch & wait approach?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 12, 2023

Hi @mayberries, welcome. I see that you have recently been diagnosed with pancreatic NET and you...

https://connect.mayoclinic.org/comment/804962/

Discussion: What's the best way to detect liver metastases?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 1, 2023

Hi, I also have Neuroendocrine of in the body pancreas along with small spots on my...

https://connect.mayoclinic.org/comment/796907/

Discussion: Pancreatic NF-NET stable since 2005 - surgery or not?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 15, 2023

I see Dr Chauhan at UM in Miami and he is excellent and leading authority in...

https://connect.mayoclinic.org/comment/1108755/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 20 9:49am

I am doing great. On my 11th cycle of just capecitabine. My scan last Friday still...

https://connect.mayoclinic.org/comment/1104625/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 12 8:41pm

Hi all! This is my first post so I probably won't be brief, but I have...

https://connect.mayoclinic.org/comment/1103421/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 11 7:29am

Neuroendocrine Tumors (NETs) Support Group