Neuroendocrine Tumors (NETs): Discussions | Page 2

yes they are just reference Dt. Willin and net team and their patient caregiver presentations are...

https://connect.mayoclinic.org/comment/673631/

Discussion: Feeling discouraged and too many specialists

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 21, 2022

Hi there! No, I had the middle lobe of my right lung removed surgically in 2019....

https://connect.mayoclinic.org/comment/1243372/

Discussion: DIPNECH diagnosis. Has anyone had radiation?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 23 1:22am

Hello @ghassan and welcome to Mayo Connect. I appreciate your sharing about your lung carcinoid. While...

https://connect.mayoclinic.org/comment/134274/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 25, 2018

Hi, I was diagnosed with carcinoid tumor in my lower left lung, after ct scans, bronchoscopy...

https://connect.mayoclinic.org/comment/975118/

Discussion: Anyone with carcinoid tumors in lung and stomach?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 4, 2023

Hi @blm1024 Welcome! Glad you’re in the other side of surgery. I have typical lung carcinoids...

https://connect.mayoclinic.org/comment/1350349/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 17 12:27pm

@pammy229 I appreciate the added information on your recent lung NET diagnosis. I'll invite some other...

https://connect.mayoclinic.org/comment/1198262/

Discussion: Any advice for someone recently diagnosed with NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 27, 2024

@breck, Here is a discussion group on Connect that you might find helpful. Here you will...

https://connect.mayoclinic.org/comment/1169616/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 7, 2024

It is an Atypical Lung Neuroendocrine Carcinoma. It is a rare Cancer.

https://connect.mayoclinic.org/comment/939328/

Discussion: Atypical Lung NET treated with radiation: What was your outcome?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 30, 2023

I found out today that I have 2 NET’s in my lung. Found inadvertently while scanning...

https://connect.mayoclinic.org/comment/816366/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 23, 2023

Yes, I mean Lung Atypical NET

https://connect.mayoclinic.org/comment/938969/

Discussion: Atypical Lung NET treated with radiation: What was your outcome?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 29, 2023

Mark, sorry to hear about the progression and all you’re going through. My brother had lung...

https://connect.mayoclinic.org/comment/1410645/

Discussion: NET's Metastasis to Brain

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 7 2:58pm

@colleenyoung Hi Colleen, I'm so glad you posted this article. Believe it or not, it was...

https://connect.mayoclinic.org/comment/1055394/

Discussion: New DIPNECH diagnosis, need advice on doctors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 22, 2024

Hi @dougmck Are your lung nodules typical carcinoids, other lung cancer or small benign nodules? DIPNECH?...

https://connect.mayoclinic.org/comment/1206138/

Discussion: Concerns after lobectomy for carcinoid tumor in lung

Support Group: Lung Cancer

Posted: Jan 7 1:45pm

Yes, I'm also glad the surgeon you saw is so experienced with NET lung tumors. Experience...

https://connect.mayoclinic.org/comment/913585/

Discussion: How do I know somatostatin is in my system?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 15, 2023

I am going back in two months to get another CT of my lungs as well...

https://connect.mayoclinic.org/comment/1360055/

Discussion: stage 1A Net removed from upper left lobe

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 30 1:02pm

Hi @amd12, welcome. You've certainly come to the right place. I can imagine that you are...

https://connect.mayoclinic.org/comment/657244/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 24, 2021

Has anyone with Lung NETS suffer from pain through to back under shoulder blades? Can only...

https://connect.mayoclinic.org/comment/1057873/

Discussion: Lung nodule could be slow growing carcinoid: Watch and wait is scary

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 26, 2024

@hopeful2, I add my welcome along with Teresa's. You'll notice that I moved your post to...

https://connect.mayoclinic.org/comment/718967/

Discussion: Looking for neuroendocrine tumor (NET) with carcinoid syndrome support

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 19, 2022

@hopeful33250 Thank you so much for your prompt response. Yes, It is my first post. Small...

https://connect.mayoclinic.org/comment/1415809/

Discussion: I have a neuroendocrine tumour in the small bowel and liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: 1 day ago

Hi. Only found out about a neuroendocrine tumor in my lung lingula three weeks ago. Been...

https://connect.mayoclinic.org/comment/1394242/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 16 2:21am

Neuroendocrine Tumors (NETs) Support Group