Neuroendocrine Tumors (NETs): Discussions | Page 2

Correct there is no hope to beat it. One of the first things I asked about...

https://connect.mayoclinic.org/comment/292372/

Discussion: Multiple Endocrine Neoplasia 1 (MEN1): What treatments have you had?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 13, 2020

Hi Peter Are the liver Mets the full extent of your disease now? If so, has...

https://connect.mayoclinic.org/comment/1000541/

Discussion: Statistics on progression free survival while on SSA / Lanreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 20 10:01am

Hello Everyone I also have NETs that has metastasized on the inside of my Liver. I...

https://connect.mayoclinic.org/comment/739390/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 19, 2022

my primary NET was small intestine with secondary tumor in mesentery. Liver mets were detected 3...

https://connect.mayoclinic.org/comment/828228/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 18, 2023

Thank you for responding As per my liver surgeon I have to get an MRI to...

https://connect.mayoclinic.org/comment/829075/

Discussion: Bland embolization or transarterial chemoembolization (TACE)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 20, 2023

I was in for a healthy heart check and spots were seen my liver. I promptly...

https://connect.mayoclinic.org/comment/812546/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 16, 2023

@carcinoid23462 Hello Sandy I appreciate you sharing your treatments for carcinoids. You mentioned that the doctor...

https://connect.mayoclinic.org/comment/746356/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 6, 2022

Hi mssewest, I had three cancerous liver carcinomas in my liver and was treated with Y90...

https://connect.mayoclinic.org/comment/664839/

Discussion: I've had 3 cancers: Thyroid cancer, Lung Cancer and Breast Cancer

Support Group: Cancer

Posted: Dec 23, 2021

I've only just been diagnosed with two neuroendocrine tumors in the liver. I'm very interested in...

https://connect.mayoclinic.org/comment/795642/

Discussion: What topics do you want for the Neuroendocrine Support Group?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 12, 2023

Hi I am so sorry to hear of your situation I had primary NET liver cancer...

https://connect.mayoclinic.org/comment/776351/

Discussion: Does sandostatin work?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 22, 2022

Thank you,,,, l called Dana Farber, Boston for second opinion. Will see May 10th. I do...

https://connect.mayoclinic.org/comment/1056725/

Discussion: NET not found on PET/CT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 24 11:25pm

I was diagnosed with stage 4 pancreatic NET with liver metastasis in 8/22. I learned what...

https://connect.mayoclinic.org/comment/995254/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 10 9:06pm

Thank you Your information was very interesting I am just starting my road to wherever I...

https://connect.mayoclinic.org/comment/718692/

Discussion: Newly diagnosed with NET in liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 18, 2022

Thanks carcinoid tumors/liver.

https://connect.mayoclinic.org/comment/85537/

Discussion: Anyone gone to Mayo Clinic in Rochester Minnesota for carcinoid tumors?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 24, 2015

I have neuroendocrine primary in midgut and mets to liver about 20 small tumors, the primary...

https://connect.mayoclinic.org/comment/90144/

Discussion: I have recently been diagnosed with my third neuroendocrine tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 31, 2016

I was diagnosed March 2022 stage 4 grade 2 18%, primary tumour on the tail of...

https://connect.mayoclinic.org/comment/1049788/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 12 8:41pm

Yes, the plan is to remove the mass on tail of pancreas, spleen, gall badder, and...

https://connect.mayoclinic.org/comment/817761/

Discussion: PNET Surgery: My recovery journey

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 26, 2023

I had Whipple and liver ablation, liver resection in 2019 primary NET was on the head...

https://connect.mayoclinic.org/comment/958846/

Discussion: Found PNET on tail of pancreas but told it’s nonfunctional

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 4, 2023

My liver panels have all been normal. For the most part, the liver lesions have been...

https://connect.mayoclinic.org/comment/828983/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 20, 2023

Hi @aliatl I was diagnosed with lung to liver net July 2021; first dr very negative:...

https://connect.mayoclinic.org/comment/824589/

Discussion: NET lung with Liver Metastasis (stage 4)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 11, 2023

Neuroendocrine Tumors (NETs) Support Group