Neuroendocrine Tumors (NETs) Support Group

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Oh so sorry for the bad stuff following embolization. Not sure if it is helpful but...

https://connect.mayoclinic.org/comment/828461/

Discussion: Bland embolization or transarterial chemoembolization (TACE)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 19, 2023

yes was found in routine blood work with liver values off further testing revealed tumors in...

https://connect.mayoclinic.org/comment/671990/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 18, 2022

Did the Radiotherapy reduce the liver Mets?

https://connect.mayoclinic.org/comment/1352422/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 20 11:56am

We have a number of members in the NET support group who have discussed their experiences...

https://connect.mayoclinic.org/comment/1146709/

Discussion: After initial tests/consults at Mayo: When does NETs treatment start?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 24, 2024

Was diagnosed with stage IV with primary in Duednum and 4 tumors in liver. Been on...

https://connect.mayoclinic.org/comment/1365332/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 6 8:57pm

Hello @feebee I found some information about liver embolization at the Carcinoid Foundation website. Here is...

https://connect.mayoclinic.org/comment/217320/

Discussion: Embolization

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 6, 2019

So the liver is where the net started or did it start somewhere else and spread...

https://connect.mayoclinic.org/comment/267666/

Discussion: Newly diagnosed with NET in liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 4, 2019

Hi harley4650, sorry to hear that treatment is not working as hoped. In addition to the...

https://connect.mayoclinic.org/comment/1037432/

Discussion: Treatment for GI NET with liver mets not working: Options?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 20, 2024

You could ask for an MRI of the liver if it continues. MRIs are commonly used...

https://connect.mayoclinic.org/comment/1308851/

Discussion: Primary Small Bowel NETS, Liver Mets

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 20 4:45pm

MRI’s are more accurate than CT scans for best visualization and measuring of liver tumors. For...

https://connect.mayoclinic.org/comment/1184777/

Discussion: What causes differences in reading of CAT Scan and MRI imaging?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 5, 2024

Did anyone here had Copper64 v Gallium68 for liver findings? Did anyone had harmatomas or hemangiomas...

https://connect.mayoclinic.org/comment/748754/

Discussion: Pancreastatin level at 1500

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 12, 2022

Sorry primary is the small intestine and secondary the liver.

https://connect.mayoclinic.org/comment/1352923/

Discussion: PRRT and lanreotide questions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 21 2:35am

grade 2 k-67 7% Stage 4 neuroendocrine primary in pancreas with inoperable liver tumors on both...

https://connect.mayoclinic.org/comment/1042055/

Discussion: Anyone have experience with "functioning" Pancreatic NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 29, 2024

Don’t remember the grade in our case, but my wife had stage 4. She had primary...

https://connect.mayoclinic.org/comment/1344908/

Discussion: PRRT and lanreotide questions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 10 7:36am

@ginnym3, you're in great hands with Dr. Starr and team. You may also be interested in...

https://connect.mayoclinic.org/comment/968149/

Discussion: Any tips about Cytoreductive, debulking Surgery?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 20, 2023

Thank you. I’m curious if you had surgery to remove the liver Mets and the primary...

https://connect.mayoclinic.org/comment/1232879/

Discussion: Lanreotide Question

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 9 10:16am

As you likely already know, histotripsy is a recently FDA-approved ultrasound device to treat liver tumors....

https://connect.mayoclinic.org/comment/1139038/

Discussion: Has anyone out there tried Histotripsy for tumors in the liver?

Support Group: Liver Cancer

Posted: Sep 9, 2024

Hi @ahtaylor, This is a great question! I had my first surgery for NETs in the...

https://connect.mayoclinic.org/comment/828910/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 20, 2023

Terry998: This is the first time I have found a person willing to talk about Cysts...

https://connect.mayoclinic.org/comment/819547/

Discussion: Lesions, Cystic liver mets, vs Tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 1, 2023

Correct there is no hope to beat it. One of the first things I asked about...

https://connect.mayoclinic.org/comment/292372/

Discussion: Multiple Endocrine Neoplasia 1 (MEN1): What treatments have you had?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 13, 2020

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