Neuroendocrine Tumors (NETs): Discussions | Page 1

Hello @feebee I found some information about liver embolization at the Carcinoid Foundation website. Here is...

https://connect.mayoclinic.org/comment/217320/

Discussion: Embolization

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 6, 2019

Hi harley4650, sorry to hear that treatment is not working as hoped. In addition to the...

https://connect.mayoclinic.org/comment/1037432/

Discussion: Treatment for GI NET with liver mets not working: Options?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 20, 2024

MRI’s are more accurate than CT scans for best visualization and measuring of liver tumors. For...

https://connect.mayoclinic.org/comment/1184777/

Discussion: What causes differences in reading of CAT Scan and MRI imaging?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 5, 2024

Did anyone here had Copper64 v Gallium68 for liver findings? Did anyone had harmatomas or hemangiomas...

https://connect.mayoclinic.org/comment/748754/

Discussion: Pancreastatin level at 1500

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 12, 2022

@ginnym3, you're in great hands with Dr. Starr and team. You may also be interested in...

https://connect.mayoclinic.org/comment/968149/

Discussion: Any tips about Cytoreductive, debulking Surgery?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 20, 2023

grade 2 k-67 7% Stage 4 neuroendocrine primary in pancreas with inoperable liver tumors on both...

https://connect.mayoclinic.org/comment/1042055/

Discussion: Anyone have experience with "functioning" Pancreatic NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 29, 2024

As you likely already know, histotripsy is a recently FDA-approved ultrasound device to treat liver tumors....

https://connect.mayoclinic.org/comment/1139038/

Discussion: Has anyone out there tried Histotripsy for tumors in the liver?

Support Group: Liver Cancer

Posted: Sep 9, 2024

I had the same and it spread to my lymph nodes and liver

https://connect.mayoclinic.org/comment/1216778/

Discussion: PNET removed 2 years ago: Can it come back at another site?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 19 4:27pm

Hi @ahtaylor, This is a great question! I had my first surgery for NETs in the...

https://connect.mayoclinic.org/comment/828910/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 20, 2023

My husband was diagnosed with stage four grade 2 NET in October 2022. He had a...

https://connect.mayoclinic.org/comment/1213981/

Discussion: Anyone had a large NET in the liver? What treatment did you have?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 15 3:27pm

Terry998: This is the first time I have found a person willing to talk about Cysts...

https://connect.mayoclinic.org/comment/819547/

Discussion: Lesions, Cystic liver mets, vs Tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 1, 2023

@tomrennie How big were your tumors? On liver? TYou

https://connect.mayoclinic.org/comment/1251244/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 5 4:47pm

Correct there is no hope to beat it. One of the first things I asked about...

https://connect.mayoclinic.org/comment/292372/

Discussion: Multiple Endocrine Neoplasia 1 (MEN1): What treatments have you had?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 13, 2020

I had a liver biopsy taken from the dominant tumor.

https://connect.mayoclinic.org/comment/1227873/

Discussion: 4 treatment options from my doctor, which one should I start with?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 2 3:51pm

Hi Teresa, Thanks for your concern and prayers. Yes, it will be a liver resection. The...

https://connect.mayoclinic.org/comment/637391/

Discussion: Possible NET with No Evidence of Tumor: Mediastinal Mass

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 20, 2021

My pancreas had an 8x6cm tumor. My liver also had innumerable lesions with the largest being...

https://connect.mayoclinic.org/comment/1254696/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 10 10:54am

I just finished PRRT for sm. Intestine NET primary w/ liver metastases. I choose 3mo follow-up...

https://connect.mayoclinic.org/comment/1211469/

Discussion: MRI or CatScan as follow up imaging for metastatic liver tumor?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 14 3:22pm

Hello Everyone I also have NETs that has metastasized on the inside of my Liver. I...

https://connect.mayoclinic.org/comment/739390/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 19, 2022

my primary NET was small intestine with secondary tumor in mesentery. Liver mets were detected 3...

https://connect.mayoclinic.org/comment/828228/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 18, 2023

Hi Peter Are the liver Mets the full extent of your disease now? If so, has...

https://connect.mayoclinic.org/comment/1000541/

Discussion: Statistics on progression free survival while on SSA / Lanreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 20, 2024

Neuroendocrine Tumors (NETs) Support Group