Neuroendocrine Tumors (NETs) Support Group

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@cindypat1 Let's see what happens in May. Keep positive thoughts. A grade 2 isn't the fastest...

https://connect.mayoclinic.org/comment/1518109/

Discussion: New spots showing up

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 2 6:10pm

My wife was diagnosed with NET in April 2022, with mass on tail of pancreas, and...

https://connect.mayoclinic.org/comment/797689/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 16, 2023

I do not have experience with ostricide shots but usually given it prior to any medical...

https://connect.mayoclinic.org/comment/1266755/

Discussion: Liver function (birirubin, globulin, glucose, iron) and Octreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 25, 2025

@jiamgmx: I want to personally thank you for your Histrotripsy consultation update. You have helped me...

https://connect.mayoclinic.org/comment/1189162/

Discussion: Has anyone out there tried Histotripsy for tumors in the liver?

Support Group: Liver Cancer

Posted: Dec 12, 2024

Hi I had an exceptional NET specialist who started me Lanreotide after 3 injections the side...

https://connect.mayoclinic.org/comment/847916/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 23, 2023

My husband was diagnosed with GI tract stage 4 Neuroendocrine carcinoid tumor March,2022. He had surgery...

https://connect.mayoclinic.org/comment/1048670/

Discussion: Questions Regarding Results after PRRT Treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 10, 2024

Thanks for your post melmangen. A hemangioma is like a birthmark. I have them on my...

https://connect.mayoclinic.org/comment/794072/

Discussion: NET (Lung + liver metastatis) Radical nephrectomy done for RCC

Support Group: Kidney Cancer

Posted: Jan 8, 2023

Hello @jiangmx24, I appreciate your update regarding the consultation for Histotripsy. It sounds like you received...

https://connect.mayoclinic.org/comment/1189081/

Discussion: Has anyone out there tried Histotripsy for tumors in the liver?

Support Group: Liver Cancer

Posted: Dec 12, 2024

I'm sorry you have to through this. CT is a common imaging test. But MRI is...

https://connect.mayoclinic.org/comment/1350256/

Discussion: Has anyone had a CT Triple Phase Liver test after the removal of Net.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 17, 2025

As I said there have no treatments for the past 5 months. I did have Lanreotide...

https://connect.mayoclinic.org/comment/1209962/

Discussion: I am one year out with my diagnosis just finished 4th round of PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 12, 2025

Update: interval progression with growth in both lobes of liver, growth of pancreatic mass, probably colon,...

https://connect.mayoclinic.org/comment/1326182/

Discussion: First scan after 3 months of lanreotidec

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 13, 2025

There are many liver directed therapies available, including surgery. Different forms of embolizations, ablation, histotripsy, etc....

https://connect.mayoclinic.org/comment/1294976/

Discussion: Pancreatic Cancer: Anyone have liver metastasis after Whipple?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 2, 2025

Thanks for sharing your story. My doctor told me good chance my next one would probably...

https://connect.mayoclinic.org/comment/1236677/

Discussion: I recently had surgery to remove NET in small intestine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 14, 2025

Me. 2 yrs. PNET with liver mets, stage 4. Also endometrial cancer There is a good...

https://connect.mayoclinic.org/comment/1225138/

Discussion: 68Ga DOTATATE Positron Emission Tomography (PET) at Mayo Clinic

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 30, 2025

My husband just had esophageal cancer identified after a CT scan due to a car accident....

https://connect.mayoclinic.org/comment/1455605/

Discussion: Siewert type 2 Gastroesophageal adenocarcinoma

Support Group: Esophageal Cancer

Posted: Dec 7, 2025

Hello @willam and welcome to the NETs support group on Mayo Connect. You ask an interesting...

https://connect.mayoclinic.org/comment/883410/

Discussion: Anyone have swelling with liver metastases?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 23, 2023

The Y 90 treatment was to my husband‘s liver, 1/2 at a time, after a mapping...

https://connect.mayoclinic.org/comment/1055461/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 22, 2024

Good morning all, I have NET, pancreas to liver. I don’t have diabetes but the numerous...

https://connect.mayoclinic.org/comment/836139/

Discussion: Anyone dealing with Carcinoid NETs with Diabetes?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 2, 2023

I have NET metastasis liver cancer I have been told by 3 drs that they don’t...

https://connect.mayoclinic.org/comment/835279/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 31, 2023

@gangcarotid1 my primary is in my pancreas and spread primarily to my liver. I also have...

https://connect.mayoclinic.org/comment/1411076/

Discussion: NET's Metastasis to Brain

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 8, 2025

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