Neuroendocrine Tumors (NETs) Support Group

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Kaw627: It seems your NET experience is very similar to mine. I am very interested in...

https://connect.mayoclinic.org/comment/948956/

Discussion: Anyone heard about Histotripsy for liver NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 17, 2023

TY. Interesting my oncologist didn't comment on replacing my liver as I have a similar situation...

https://connect.mayoclinic.org/comment/952673/

Discussion: Liver Transplant to Treat NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 23, 2023

My primary tumors removed have over 20 in liver they have been stable for over 4...

https://connect.mayoclinic.org/comment/303700/

Discussion: NETs, Toilet Paper, a rant and a little humor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 25, 2020

I go to Moffitt in Tampa. I get santosattan. (sp) I have 23 tumors on my...

https://connect.mayoclinic.org/comment/881449/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 19, 2023

@ahtaylor My wife’s primary tumor was a mass on the pancreas tail. Our initial findings of...

https://connect.mayoclinic.org/comment/828363/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 19, 2023

My wife has similar mass on her pancreas, we are 9 cycles into chemotherapy (pill version)...

https://connect.mayoclinic.org/comment/802019/

Discussion: NET in body of pancreas: What are my treatment options?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 26, 2023

I know this is a bit of an older thread, but for those who had metastasis...

https://connect.mayoclinic.org/comment/842575/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 13, 2023

@michellesimpson10 My wife received a diagnosis of mass of pancreas near tail of pancreas, and too...

https://connect.mayoclinic.org/comment/845638/

Discussion: New diagnosis of NET: What should I know and do to plan?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 19, 2023

Hoping all is going well for you. My husband is in the middle of his 4th...

https://connect.mayoclinic.org/comment/942780/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 6, 2023

Hi GAP, Last May 2022 I had a lung NET removed with the right upper lobe...

https://connect.mayoclinic.org/comment/802258/

Discussion: Neuroendocrine Lung stage 4B with metastasis in liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 27, 2023

Family member recent diagnosis of NETS in ileum, lymph node, and liver. Awaiting removal surgery. First...

https://connect.mayoclinic.org/comment/914810/

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 17, 2023

I had one in my colon 12 yrs and surgery ago now in the breast surgery...

https://connect.mayoclinic.org/comment/945075/

Discussion: Type 1 Neuroendocrine Tumor with no risk: What should I ask doctor?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 9, 2023

I have neuroendocrine cancer that had metastasized to my liver when diagnosed. I have had this...

https://connect.mayoclinic.org/comment/847070/

Discussion: New DIPNECH diagnosis, need advice on doctors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 21, 2023

This is a great news! Looks like Lanreotide is keeping the growth in check! I just...

https://connect.mayoclinic.org/comment/937359/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 27, 2023

I have Neuroendocrine tumors (small intestine metastases to liver). My treatment for the last year is...

https://connect.mayoclinic.org/comment/1017449/

Discussion: I have 3 nueroendocrine tumors in my left lung

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 17 12:10pm

No on bland embolization, did not try lanretide, been on octreotide for 1 yr. had 4...

https://connect.mayoclinic.org/comment/1037570/

Discussion: Treatment for GI NET with liver mets not working: Options?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 21 8:00am

I did the watch and wait for a small (1cm) PNET on the head of my...

https://connect.mayoclinic.org/comment/815227/

Discussion: Cough ! What could it be?!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 21, 2023

Hello @tomatlanta, I appreciate you sharing about your wife's journey with a NETs diagnosis. Everyone's journey...

https://connect.mayoclinic.org/comment/877795/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 13, 2023

Hello, I just finished my third round of Lutathera treatment. Each treatment takes 5-6 hrs, no...

https://connect.mayoclinic.org/comment/942546/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 5, 2023

Links, Sounds like you have what I have. Mine started in my Pancreas and is in...

https://connect.mayoclinic.org/comment/807256/

Discussion: Pancreatic neuroendocrine insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 6, 2023

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