Neuroendocrine Tumors (NETs) Support Group

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In my case: I was told that the NET in small bowel (near duodenum) metastasized to...

https://connect.mayoclinic.org/comment/1241121/

Discussion: I recently had surgery to remove NET in small intestine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 20 12:03am

Our case also was stage 4 with too many tumors on liver to count. Not eligible...

https://connect.mayoclinic.org/comment/1106247/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 15, 2024

They did a pet scan right before surgery, and did not find any metastasis to my...

https://connect.mayoclinic.org/comment/902877/

Discussion: Should I want more treatment after pancreatic nets with lymph nodes?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 27, 2023

Surgery update: Kim had surgery today to remove remove remaining mass on pancreas, remove gall bladder,...

https://connect.mayoclinic.org/comment/819734/

Discussion: PNET Surgery: My recovery journey

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 2, 2023

The problem with blanket statements like your doctor told is that we all have different types...

https://connect.mayoclinic.org/comment/861136/

Discussion: Dying from car accident can cause death more so this cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 17, 2023

Hello @rushlakekathy and welcome to the NET discussion on Mayo Clinic Connect. I am glad that...

https://connect.mayoclinic.org/comment/814504/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 20, 2023

I have pNET grade stage4 with liver metastases. I have not noticed any swelling. I am...

https://connect.mayoclinic.org/comment/883583/

Discussion: Anyone have swelling with liver metastases?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 23, 2023

So your NET started in your liver too? That is rare. Was it therefore stage 4...

https://connect.mayoclinic.org/comment/1148306/

Discussion: Straight to the liver: Anyone have NETs originating in strange areas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 27, 2024

iam doing ok. but i have lots of diarrhea. liver is swollen, very fatigue. The oncologist...

https://connect.mayoclinic.org/comment/1038396/

Discussion: Treatment for GI NET with liver mets not working: Options?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 22, 2024

I’m being treated at Mayo Jax. Was diagnosed with NETs (Carcinoid Syndrome)December 2022, started in the...

https://connect.mayoclinic.org/comment/831689/

Discussion: Anyone treated for NETs at Mayo Clinic in Jacksonville, FL

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 25, 2023

Hello @sophiarose, I certainly look forward to hearing from you again. Has your MRI of the...

https://connect.mayoclinic.org/comment/829494/

Discussion: Bland embolization or transarterial chemoembolization (TACE)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 21, 2023

One more thing I just want to note, I had NO symptoms. I had a hernia...

https://connect.mayoclinic.org/comment/805957/

Discussion: What's the best way to detect liver metastases?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 3, 2023

Hi @gaylejean Since you posted about embolization in September and there were no responses, I was...

https://connect.mayoclinic.org/comment/217312/

Discussion: Embolization

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 1, 2018

A few months ago, they detected 2 NETs in my liver. One golf ball size. The...

https://connect.mayoclinic.org/comment/809673/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 11, 2023

Hello @felo and welcome to Mayo Clinic Connect. I can understand that you would want to...

https://connect.mayoclinic.org/comment/667746/

Discussion: Liver neuroendocrine tumors: I would like to talk with others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 4, 2022

Of course I’m not a doctor, Kim’s case is after 9 months of chemo, she had...

https://connect.mayoclinic.org/comment/877443/

Discussion: Is it common to start on Lanreotide with no known tumors?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 12, 2023

I am equally confused with all these scans reports. On 8 July 24, CT scan revealed...

https://connect.mayoclinic.org/comment/1185942/

Discussion: What causes differences in reading of CAT Scan and MRI imaging?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 7, 2024

Primary NET in duodenum with Mets to liver and spine. No pain in my back, T-11...

https://connect.mayoclinic.org/comment/1199897/

Discussion: Anyone have a neuroendocrine tumor (NET) in the spine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 29, 2024

I tolerated CAPTEM very well for 5 months and only went off it when there was...

https://connect.mayoclinic.org/comment/1358618/

Discussion: Neuroendocrine tumor pancreatic tail

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 28 3:19pm

It’s a long list! Surgery to remove the primary Y90 to address a 50% tumor burden...

https://connect.mayoclinic.org/comment/1123233/

Discussion: Everolimus for multiple Neuroendocrine tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 13, 2024

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