Neuroendocrine Tumors (NETs) Support Group | Page 19

@tomrennie Thank you for the warm welcome, I appreciate it. At this stage, the main plan...

https://connect.mayoclinic.org/comment/1496306/

Discussion: Someone can help?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 2 10:56am

I also have been diagnosed with liver NETS here in Panama. My oncologist started me on...

https://connect.mayoclinic.org/comment/1539378/

Discussion: Does anyone have neuroendocrine small cell carcinoma of the liver?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 31 8:18am

Dear Doonman Lanreotide shots have been helpful for me with lowering progression and symptoms. I have...

https://connect.mayoclinic.org/comment/1505397/

Discussion: What helps with muscle aches and weakness after Lanreotide injections?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 14 8:19am

Hi Peter Are the liver Mets the full extent of your disease now? If so, has...

https://connect.mayoclinic.org/comment/1000541/

Discussion: Statistics on progression free survival while on SSA / Lanreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 20, 2024

Thank you for your encouragement. The exhaustion comes & goes. The primary is a carcinoid, very...

https://connect.mayoclinic.org/comment/977617/

Discussion: After liver embolization: Looking for the best diet + food suggestions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 9, 2023

I will have my 4th injection next week. My symptoms include the tumor pains, chills, wetting...

https://connect.mayoclinic.org/comment/849018/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 25, 2023

@cu2 I just started Lanreotide. My first injection this morning. Barely made the 20 min ride...

https://connect.mayoclinic.org/comment/825586/

Discussion: Lanreotide Manufacturers: anyone have experience with either?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 13, 2023

I've been told by Oncologist they are working on oral versions of Octreotide and Lanreotide. But...

https://connect.mayoclinic.org/comment/1334042/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 24, 2025

My husband has a neuroendocrine tumor in the small intestine found by accident as they were...

https://connect.mayoclinic.org/comment/1272927/

Discussion: Anyone have a neuroendocrine tumor in small intestine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 2, 2025

Lanreotide 120 mg injection’s are treatment for NET patients. I have received them every 28 days...

https://connect.mayoclinic.org/comment/1229012/

Discussion: Lanreotide Question: Why start before the next scan?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 4, 2025

Interesting. The main symptom I have is the constant diarrhea however when I was taking lanreotide...

https://connect.mayoclinic.org/comment/933770/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 21, 2023

@tomrennie I was diagnosed in January of 2024. Unfortunately, since I had very few symptoms the...

https://connect.mayoclinic.org/comment/1488216/

Discussion: Reccurrenct NETs and side effects of cap/tem

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 21 2:25pm

Greetings. I am a newbee and just joined. I have a lung carcinoid. Actually there are...

https://connect.mayoclinic.org/comment/134267/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 10, 2018

Hi I was diagnosed with stage 4 pNET in July of 2023, I had a Whipple...

https://connect.mayoclinic.org/comment/1268507/

Discussion: Pancreatic Cancer: Anyone have liver metastasis after Whipple?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 28, 2025

Hello Mlassen1. I've had 3 opinions from qualified oncologist and so far the best they can...

https://connect.mayoclinic.org/comment/1486701/

Discussion: Tips about preparing for my second opinion appointment at Mayo

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 19 4:16pm

My wife was given lanreotide injections for many years. After encountering the same lump issue as...

https://connect.mayoclinic.org/comment/826801/

Discussion: Lanreotide Manufacturers: anyone have experience with either?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 16, 2023

You are on the right track by finding NET specialist! Relax, and give him your support!...

https://connect.mayoclinic.org/comment/1291405/

Discussion: Son, 48 diagnosed with PNET pancreatic cancer 8cm tail & spleen

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 27, 2025

Good morning I have NETS in my small bowels and Liver, also with carcinoid syndrome, diarrhea,...

https://connect.mayoclinic.org/comment/1507896/

Discussion: Anyone have pancreatic neuroendocrine tumors with carcinoid syndrome?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 17 8:12am

Mostly well. I go to Moffitt in Tampa every 8 months for my check and MRI...

https://connect.mayoclinic.org/comment/1218131/

Discussion: Is there anything I can do for the bloating?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 21, 2025

I've stopped the lanreotide and am restarting the immunotherapy. My dr told me we would know...

https://connect.mayoclinic.org/comment/1214885/

Discussion: I have 3 neuroendocrine tumors in left lung: Can I handle radiation?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 17, 2025