Neuroendocrine Tumors (NETs) Support Group | Page 18

I have pNET grade 2 stage 4 ( due to metastases in liver). I had distal...

https://connect.mayoclinic.org/comment/881155/

Discussion: My Sister and Best Friend

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 19, 2023

@tgsenn70 It's a small world. I was referred to Dr Rose too back in '23. Due...

https://connect.mayoclinic.org/comment/1445215/

Discussion: NET Specialist: Can you share?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 23, 2025

Hello, my NET is metastasized to my liver from my lung diagnosis in Dec 2022. My...

https://connect.mayoclinic.org/comment/1349514/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 16, 2025

Kwan: Based on our own experiences dealing exclusively with NET's: There may be cases in which...

https://connect.mayoclinic.org/comment/969303/

Discussion: Octreotide Injections - Skipping One or More?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 22, 2023

I also have Carcinoid Syndrome, PET scan shows it started in the small intestines and metastasized...

https://connect.mayoclinic.org/comment/878862/

Discussion: Where can I find a carcinoid syndrome specialist in Florida?!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 15, 2023

Hi, I was recently diagnosed with, carcinoid syndrome, the tumors (NET) started in my small intestine...

https://connect.mayoclinic.org/comment/815553/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 22, 2023

I was on lanreotide now on octreotide and yesterday my MRI showed my tumors are still...

https://connect.mayoclinic.org/comment/741450/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 25, 2022

@ricki8: Thank you for the clinical info on Everolimus & Lanreotide combo to control tumor growth....

https://connect.mayoclinic.org/comment/1419171/

Discussion: I have a neuroendocrine tumour in the small bowel and liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 19, 2025

Thank you for answering. I'm only two shots in, but my blood sugar has been insane...

https://connect.mayoclinic.org/comment/1208442/

Discussion: I have 3 neuroendocrine tumors in left lung: Can I handle radiation?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 10, 2025

Me too. Im 55yr old man and had my 3rd injection 2 days ago for the...

https://connect.mayoclinic.org/comment/842731/

Discussion: What do I need to know about NETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 13, 2023

Hello @roseflame and welcome to Mayo Connect. I appreciate you sharing your journey with NETs. You...

https://connect.mayoclinic.org/comment/795422/

Discussion: Bland embolization or transarterial chemoembolization (TACE)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 11, 2023

I only had a biopsy on my liver. I have many tumors of all sizes on...

https://connect.mayoclinic.org/comment/1237754/

Discussion: Lanreotide Question: Why start before the next scan?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 15, 2025

This page is active I watch the comments and jump in when appropriate. Great way to...

https://connect.mayoclinic.org/comment/1463460/

Discussion: Anyone have problems with elevated blood pressure while on Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 18, 2025

My wife was diagnosed with NET with mass on tail of pancreas, and too many tumors...

https://connect.mayoclinic.org/comment/866558/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 25, 2023

Sophiarose, Octreotide is used to help manage the effects of neuroendocrine tumors such as flushing and...

https://connect.mayoclinic.org/comment/830230/

Discussion: Stopping Octreotide???

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 22, 2023

My NET was primary in lung (Jan 2023) 3 cm and metastasized to liver stage 1,...

https://connect.mayoclinic.org/comment/1350571/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 17, 2025

Sorry to hear what you are going through! I have stage 4 grade 2 metatastic to...

https://connect.mayoclinic.org/comment/1282937/

Discussion: New To NETS - Stage 4 / Grade 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 16, 2025

Hi Kathy, My sister just started her Lanreotide injections two months ago. After her first one,...

https://connect.mayoclinic.org/comment/934805/

Discussion: Carcinoid syndrome; NET not found

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 23, 2023

It's hard to say what any one person's imaging frequency or technology used will be. I...

https://connect.mayoclinic.org/comment/1521916/

Discussion: What is the surveillance protocol for typical pulmonary NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 7 4:04pm

@tomrennie Thank you for the warm welcome, I appreciate it. At this stage, the main plan...

https://connect.mayoclinic.org/comment/1496306/

Discussion: Someone can help?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 2 10:56am