Neuroendocrine Tumors (NETs): Discussions | Page 16

Morning! My primary was on my ilieum which metastasized to my liver and pancreas. I was...

https://connect.mayoclinic.org/comment/897949/

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 18, 2023

Hi @pamsbass, I had a Pyloric preserving pancreaticoduodenectomy (modified Whipple) liver resection and liver ablation in...

https://connect.mayoclinic.org/comment/1001236/

Discussion: Need more information on net in head of pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 21 1:16pm

I have Pnet with 23 tumors on my liver, and else where. They are looking at...

https://connect.mayoclinic.org/comment/712279/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 28, 2022

Thank you for sharing your information. 10/07/22 2nd opinion verified tumor as Carcinoid. PET revealed liver...

https://connect.mayoclinic.org/comment/775983/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 21, 2022

Don’t forget Lanreotide also causes exhaustion atleast it did for me I have an unknown primary...

https://connect.mayoclinic.org/comment/978236/

Discussion: After liver embolization: Looking for the best diet + food suggestions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 10, 2023

@keisham808 - I had a large mass in the pancreas, that was discovered on a CT...

https://connect.mayoclinic.org/comment/865736/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 24, 2023

I'm curious - do you have lesions in your liver that are considered cancerous? While 'waiting',...

https://connect.mayoclinic.org/comment/917145/

Discussion: Laparoscopic Possible Open Surgery Resection - Small Bowel NETS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 22, 2023

Thank you so much for the information. I’ll start Lutethera infusion on February 6th . I...

https://connect.mayoclinic.org/comment/995130/

Discussion: Update: Lutethera treatment is over

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 10 4:32pm

I have neuroendrocrine tumors in my liver.six years ago it was near my bowels. Then the...

https://connect.mayoclinic.org/comment/1109539/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 21 7:28pm

My understanding is a grade 3 of the lung is considered small cell or non small...

https://connect.mayoclinic.org/comment/813610/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 18, 2023

Cyst in the liver are pretty common. I have several. They are only a problem if...

https://connect.mayoclinic.org/comment/818581/

Discussion: Lesions, Cystic liver mets, vs Tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 28, 2023

The hematologist's PA called me yesterday with my scan results. I have small tumors in my...

https://connect.mayoclinic.org/comment/809220/

Discussion: Long Time Survivor With Concerns re Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 10, 2023

Sorry you haven’t had luck with the lanreotide injections. My husband was diagnosed as a high...

https://connect.mayoclinic.org/comment/1050488/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 14 8:59am

Hello. Just wanted to share that I did have liver mets that they thought were hemangiomas...

https://connect.mayoclinic.org/comment/749213/

Discussion: Liver mets mistaken as hemangioma or harmatoma on MRI

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 13, 2022

I’m 63, no systems at all. NET discovered while getting a hernia repaired in April of...

https://connect.mayoclinic.org/comment/837694/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 4, 2023

Hi,Sorry to hear about your diagnosis. One thing doctors and research haveshown is that most neuroendicrine...

https://connect.mayoclinic.org/comment/90131/

Discussion: I have recently been diagnosed with my third neuroendocrine tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 10, 2016

@gismole1: how has your histotripsy treatment been - both in side effects and scan results? Please...

https://connect.mayoclinic.org/comment/1158735/

Discussion: PRRT side effects and results

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 18 12:45am

I have NET cancer of the liver it started in the small intestine tumor was removed...

https://connect.mayoclinic.org/comment/750858/

Discussion: Newly diagnosed with NET in liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 17, 2022

I know Dr. Sonbol myself. Started off with CAPTEM and everything shrunk. I completed 13 cycles...

https://connect.mayoclinic.org/comment/1123223/

Discussion: Everolimus for multiple Neuroendocrine tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 13 9:30pm

Thank you Colleen. I was told I will have a distal pancreatic surgery and that it...

https://connect.mayoclinic.org/comment/805137/

Discussion: What's the best way to detect liver metastases?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 1, 2023

Neuroendocrine Tumors (NETs) Support Group