Neuroendocrine Tumors (NETs) Support Group

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Comments (323)

Hi 👏 from AU. My partner (x army) was going to have his hernia repaired so...

https://connect.mayoclinic.org/comment/921716/

Discussion: Found PNET on tail of pancreas but told it’s nonfunctional

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 30, 2023

Hi @donnarushing55 I’m sorry you’re going through this. Even if you were comfortable with a specialists...

https://connect.mayoclinic.org/comment/1000560/

Discussion: PNET on tail of pancreas with numerous bilobar hepatic metastases

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 20, 2024

Hi vtn. I agree with what has been previously said. You have some people in here...

https://connect.mayoclinic.org/comment/859271/

Discussion: Just diagnosed with PNET: Any thoughts on watch & wait approach?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 13, 2023

Hello, mamandneuroendocrine! I was in a similar situation. My pNET was discovered accidentally during a stroke...

https://connect.mayoclinic.org/comment/953478/

Discussion: Metastatic NeuroEndocrine Grade 3 - ki 80% -

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 25, 2023

Hi, see above on 7/11 from me previously in re: to history. Stage 4 PNET, with...

https://connect.mayoclinic.org/comment/1109828/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 22, 2024

Hi Ken, I had a 5 cm PNET removed in March 2023. So, a year and...

https://connect.mayoclinic.org/comment/1083388/

Discussion: Grade 1 Non-functioning (NF) NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 9, 2024

Hello @ beaglebass! My pNET is functioning, so my story may not be too close to...

https://connect.mayoclinic.org/comment/1065411/

Discussion: Grade 1 Non-functioning (NF) NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 10, 2024

I totally agree with you on the seemingly lack of concern or urgency. It would be...

https://connect.mayoclinic.org/comment/1352023/

Discussion: NET tumor of pancreas (1 cm) diagnosed

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 19, 2025

Kim1965, I was very interesting to read about your wife’s case. Sounds very similar to mine...

https://connect.mayoclinic.org/comment/932191/

Discussion: Diagnosed with Stage 4 pNET: What should I know?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 18, 2023

Hello @carm1011 and welcome to the NETs support group on Mayo Connect. I am glad that...

https://connect.mayoclinic.org/comment/890939/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 6, 2023

I totally understand the desire for a conservative approach. While there is likely a primary somewhere,...

https://connect.mayoclinic.org/comment/1157998/

Discussion: NET on liver: Question about treatments when no symptoms

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 16, 2024

@mcjelly, welcome. If you have read about a diet or supplement that claims to "cure" advanced-stage...

https://connect.mayoclinic.org/comment/980004/

Discussion: Can intermittent fasting and Keto diet help?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 13, 2023

My best advice is to have the surgery if your doctor recommends it. Don't be afraid...

https://connect.mayoclinic.org/comment/902822/

Discussion: What do I need to know about NETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 26, 2023

Oh my goodness! I'm so sorry you have to go through this. It sounds like you...

https://connect.mayoclinic.org/comment/1332307/

Discussion: Stage 4 grade2 Pancreatic Neuroendocrine ki67 20% Lanreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 21, 2025

My sister was diagnosed with PNET. They went in to do the surgery to remove half...

https://connect.mayoclinic.org/comment/780856/

Discussion: Pancreatic NF-NET stable since 2005 - surgery or not?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 4, 2022

Interesting my husband supposably has a Pnet in his tail of his pancreas and has had...

https://connect.mayoclinic.org/comment/1020343/

Discussion: Anyone had plexus nerve block for cancer pain?

Support Group: Pancreatic Cancer

Posted: Feb 22, 2024

Hi vtn, I did the watch and wait for a small PNET on the head of...

https://connect.mayoclinic.org/comment/859339/

Discussion: Just diagnosed with PNET: Any thoughts on watch & wait approach?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 13, 2023

Hi Kate12345 I am also a PNET patient diagnosed in 2017. I had a partial pancreactomy...

https://connect.mayoclinic.org/comment/665403/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 26, 2021

Patrick, were your tumors NET’s? Who is your oncologist at Barnes? I was diagnosed with a...

https://connect.mayoclinic.org/comment/1031029/

Discussion: High risk surgery. Is it worth it?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 10, 2024

Lenora, Thank you so much! My husband is actually PNET I guess? It started in his...

https://connect.mayoclinic.org/comment/669949/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 11, 2022

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