Neuroendocrine Tumors (NETs): Discussions | Page 13

Interesting my husband supposably has a Pnet in his tail of his pancreas and has had...

https://connect.mayoclinic.org/comment/1020343/

Discussion: Anyone had plexus nerve block for cancer pain?

Support Group: Pancreatic Cancer

Posted: Feb 22, 2024

Hi vtn, I did the watch and wait for a small PNET on the head of...

https://connect.mayoclinic.org/comment/859339/

Discussion: Just diagnosed with PNET: Any thoughts on watch & wait approach?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 13, 2023

Hi Kate12345 I am also a PNET patient diagnosed in 2017. I had a partial pancreactomy...

https://connect.mayoclinic.org/comment/665403/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 26, 2021

Lenora, Thank you so much! My husband is actually PNET I guess? It started in his...

https://connect.mayoclinic.org/comment/669949/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 11, 2022

Patrick, were your tumors NET’s? Who is your oncologist at Barnes? I was diagnosed with a...

https://connect.mayoclinic.org/comment/1031029/

Discussion: High risk surgery. Is it worth it?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 10, 2024

Hi c2pricorn66 I had a similar story, accidentally found a tumor on my pancreas identified as...

https://connect.mayoclinic.org/comment/921859/

Discussion: Found PNET on tail of pancreas but told it’s nonfunctional

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 31, 2023

Hello @charliepnet, I really admire the steps you are taking to ensure that you are getting...

https://connect.mayoclinic.org/comment/1027149/

Discussion: Is enucleation appropriate for me?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 4, 2024

Thank you so much for your input. We are working with a team at Cancer Specialists...

https://connect.mayoclinic.org/comment/860243/

Discussion: Diagnosed with Stage 4 pNET: What should I know?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 15, 2023

Hi! I had a 1.8cm pnet, with 6 of 8 lymph nodes positive at the time...

https://connect.mayoclinic.org/comment/1348581/

Discussion: 14 CM PNET w/ one year post resection. When will I see reoccurrence?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 15 8:10am

I had a somewhat similar situation when I was diagnosed with my pancreatic neuroendocrine tumor. In...

https://connect.mayoclinic.org/comment/1351342/

Discussion: NET tumor of pancreas (1 cm) diagnosed

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 18 11:06pm

I’m so sorry you have to go through this. My husband was diagnosed with a PNET...

https://connect.mayoclinic.org/comment/984912/

Discussion: Should I see a NET specialist?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 22, 2023

Hi Linda How did your scan go? Lots has happened since my last post. I had...

https://connect.mayoclinic.org/comment/837244/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 4, 2023

We been missing in action due to more hospitalizations. We did just get a bit of...

https://connect.mayoclinic.org/comment/1329420/

Discussion: Son, 48 diagnosed with PNET pancreatic cancer 8cm tail & spleen

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 17 5:59pm

Hi @taf I am one of the folk’s Colleen tagged. There are several thoughts here. If...

https://connect.mayoclinic.org/comment/1276326/

Discussion: Just diagnosed with PNET: Any thoughts on watch & wait approach?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 7 10:29am

Hi @pamsbass, I had a Pyloric preserving pancreaticoduodenectomy (modified Whipple) liver resection and liver ablation in...

https://connect.mayoclinic.org/comment/1001236/

Discussion: Need more information on NET in head of pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 21, 2024

Thank You Colleen, It was also a zoom meeting, so that didn't help......we live 4 and...

https://connect.mayoclinic.org/comment/671245/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 15, 2022

Hello! My name is Karla and I live in SW MO near Branson. I’m 52 years...

https://connect.mayoclinic.org/comment/787752/

Discussion: Anyone out there have PNET experiences and outcomes to share?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 22, 2022

Hi all! This is my first post so I probably won't be brief, but I have...

https://connect.mayoclinic.org/comment/1103421/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 11, 2024

It really, really, really, really sux. Welcome to your new "normal". For me, I had to...

https://connect.mayoclinic.org/comment/1190944/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 15, 2024

"Cutting it out is the only cure!!!!" I have been belittled with that statement many times....

https://connect.mayoclinic.org/comment/1276434/

Discussion: Just diagnosed with PNET: Any thoughts on watch & wait approach?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 7 12:31pm

Neuroendocrine Tumors (NETs) Support Group