Neuroendocrine Tumors (NETs) Support Group

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My Journey of doctors and second opinions - Local Community PCP ordered Ultrasound because of Liver...

https://connect.mayoclinic.org/comment/842699/

Discussion: Has anyone chosen the Watch and Wait and regretted that choice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 13, 2023

@ahtaylor I was noticing that you were going to have a calcium stimulation test. Has that...

https://connect.mayoclinic.org/comment/839748/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 8, 2023

She has a well-differentiated grade 3 PNET that metastases to the liver. There were quite a...

https://connect.mayoclinic.org/comment/934866/

Discussion: Carcinoid syndrome; NET not found

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 23, 2023

Hi, Mark! I started PRRT with Lutathera in December 2022. I had three treatments. Scans in...

https://connect.mayoclinic.org/comment/881873/

Discussion: Post Lu177 PRRT Treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 20, 2023

I have not had the calcium stimulation test yet. It is coming up soon. However, I...

https://connect.mayoclinic.org/comment/839764/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 8, 2023

I had surgery on Feb.1. Distal pancreatectomy, removal of part of the stomach, gallbladder and spleen.,...

https://connect.mayoclinic.org/comment/822921/

Discussion: NET lung with Liver Metastasis (stage 4)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 8, 2023

Start of a new journey: Pathology report of liver biopsy indicating metastatic high grade neuroendocrine cell...

https://connect.mayoclinic.org/comment/810954/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 13, 2023

I had 60% of my colon removed 5 years ago. I am glad you caught it...

https://connect.mayoclinic.org/comment/1011779/

Discussion: NET in illeum, surgery or proper nutrition?!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 8, 2024

Hello, @aliciabusiness5, and welcome to Mayo Connect. I you are dealing with lung NETs as well...

https://connect.mayoclinic.org/comment/1266869/

Discussion: Liver function (birirubin, globulin, glucose, iron) and Octreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 25 8:47pm

MRI about every 4 months, eating is going too well. Thus the increased severity of Fatty...

https://connect.mayoclinic.org/comment/1203376/

Discussion: Anyone have a neuroendocrine tumor (NET) in the spine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 3 7:54pm

That was 8/22 when I got diagnosed with a pancreatic NET that spread to my liver....

https://connect.mayoclinic.org/comment/935792/

Discussion: Follow up surgery for PNET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 24, 2023

My experience is very similar to those of @firepowr. Three of the largest tumors in my...

https://connect.mayoclinic.org/comment/828121/

Discussion: High grade 2 and 3 neuroendocrine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 18, 2023

@hollywood817 What prompted the biopsy, did You have imaging done before. I have plenty of liver...

https://connect.mayoclinic.org/comment/812431/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 16, 2023

My husband has a neuroendocrine tumor in the small intestine found by accident as they were...

https://connect.mayoclinic.org/comment/1272927/

Discussion: Anyone have a neuroendocrine tumor in small intestine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 2 8:35pm

My wife was diagnosed with NET in April 2022, with mass on tail of pancreas, and...

https://connect.mayoclinic.org/comment/797689/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 16, 2023

@jiamgmx: I want to personally thank you for your Histrotripsy consultation update. You have helped me...

https://connect.mayoclinic.org/comment/1189162/

Discussion: Has anyone out there tried Histotripsy for tumors in the liver?

Support Group: Liver Cancer

Posted: Dec 12, 2024

Hello Elenor, I too was diagnosed with grade 1 stage 4 NET colon cancer in September....

https://connect.mayoclinic.org/comment/1283867/

Discussion: New To NETS - Stage 4 / Grade 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: 1 hour ago

My husband was diagnosed with GI tract stage 4 Neuroendocrine carcinoid tumor March,2022. He had surgery...

https://connect.mayoclinic.org/comment/1048670/

Discussion: Questions Regarding Results after PRRT Treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 10, 2024

Thanks for your post melmangen. A hemangioma is like a birthmark. I have them on my...

https://connect.mayoclinic.org/comment/794072/

Discussion: NET (Lung + liver metastatis) Radical nephrectomy done for RCC

Support Group: Kidney Cancer

Posted: Jan 8, 2023

As I said there have no treatments for the past 5 months. I did have Lanreotide...

https://connect.mayoclinic.org/comment/1209962/

Discussion: I am one year out with my diagnosis just finished 4th round of PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 12 1:54pm

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