Neuroendocrine Tumors (NETs) Support Group

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Comments (260)

My sister and I both ended up with this in our lung. We, both, found out...

https://connect.mayoclinic.org/comment/801184/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 24, 2023

Hello @jacqquie, As you probably know, Squamous Cell Carcinoma is a type of skin cancer. Here...

https://connect.mayoclinic.org/comment/798257/

Discussion: Confused about diagnosis: Carcinoid tumor in rectal area

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 18, 2023

Welcome, @4237220. I agree with @maya8238 that it sounds like the cancer has been caught early...

https://connect.mayoclinic.org/comment/797237/

Discussion: Confused about diagnosis: Carcinoid tumor in rectal area

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 15, 2023

I was diagnosed with atypical carcinoid neuroendicrine tumors in March of 2022. I underwent surgery to...

https://connect.mayoclinic.org/comment/793653/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 7, 2023

Where did you do the trial at in Florida? Currently I am with Moffitt Cancer Center,...

https://connect.mayoclinic.org/comment/749790/

Discussion: Anyone gone to Mayo Clinic in Rochester Minnesota for carcinoid tumors?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 15, 2022

Just recently went to Mayo for continued evaluation. The Oncologist there agreed that my symptoms were...

https://connect.mayoclinic.org/comment/271254/

Discussion: Possible NET with No Evidence of Tumor: Mediastinal Mass

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 27, 2019

I was diagnosed with a .4c rectal carcinoid in 2000 and a recurrence in 2010. Four...

https://connect.mayoclinic.org/comment/134276/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 25, 2018

Hello @ghassan and welcome to Mayo Connect. I appreciate your sharing about your lung carcinoid. While...

https://connect.mayoclinic.org/comment/134274/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 25, 2018

Hello @gapsc and welcome to Mayo Connect I am Teresa, a volunteer mentor with Connect and...

https://connect.mayoclinic.org/comment/134268/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 10, 2018

Since my diagnosis in 2002 at Mayo Clinic, I have had surgery to remove appendix, gallbladder,...

https://connect.mayoclinic.org/comment/137542/

Discussion: My Husband was newly diagnosed with Carcinoid Cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 15, 2017

@dzertas, I did a little research and found this website that you might find helpful. It...

https://connect.mayoclinic.org/comment/134264/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 17, 2017

@jessie1990 I was just going to tell you everything Colleen is saying. Everything they are doing...

https://connect.mayoclinic.org/comment/1455754/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 8, 2025

@nannybb ya mine is in right lung also .. is the other carcinoids also typical ones

https://connect.mayoclinic.org/comment/1449197/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 29, 2025

@nannybb I have no idea I've asked lung nurse will I need like chemo or any...

https://connect.mayoclinic.org/comment/1436250/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 11, 2025

@nannybb Good question. Because there are 3x as many people with GI NETs as lung NETs,...

https://connect.mayoclinic.org/comment/1431581/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 5, 2025

He is a cancer specialist who told me he knew all about carcinoid tumors. He never...

https://connect.mayoclinic.org/comment/1430573/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 4, 2025

@tomrennie Thank you for your input. Typical (grade 1) and atypical (grade 2) classifications are specific...

https://connect.mayoclinic.org/comment/1430349/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 3, 2025

@jessie1990 My net tumors were never classified as typical or atypical. The growth rate of my...

https://connect.mayoclinic.org/comment/1430272/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 3, 2025

@jessie1990 That’s a good question for the NET specialist. No one has suggested to me that...

https://connect.mayoclinic.org/comment/1428039/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 1, 2025

I am recovering from surgery for lung carcinoid tumor. I still have 3 other tumors they...

https://connect.mayoclinic.org/comment/1417643/

Discussion: Carcinoid Crisis Questions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 17, 2025

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