Neuroendocrine Tumors (NETs) Support Group | Page 12

Everybody responds to treatments differently. My husband had a completely different result after his y90 which...

https://connect.mayoclinic.org/comment/1360675/

Discussion: Anyone on cabozantinib after Y90

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 31, 2025

I have a 4.5 cm tumor in the head of the pancreas and an atrophied tail...

https://connect.mayoclinic.org/comment/1336098/

Discussion: Y90 AND Captem Combo

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 27, 2025

Hi Renee, I am also in the same frustrating situation as have gone for CT scan,...

https://connect.mayoclinic.org/comment/1265384/

Discussion: Diagnosis Frustrated: How you were diagnosed with NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 24, 2025

Hello! I have similar diagnosis - pNET and liver metastases. Surgery for the pNET and debulking...

https://connect.mayoclinic.org/comment/1076200/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 28, 2024

I just visited Mayo Rochester. Was diagnosed in April 2023 with Neuroendocrine cancer of the small...

https://connect.mayoclinic.org/comment/873758/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 6, 2023

Welcome, Christine. You're not alone. I moved your message to this existing discussion: - Newly diagnosed...

https://connect.mayoclinic.org/comment/750122/

Discussion: Newly diagnosed with NET in liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 15, 2022

We did find this out that there is extra help for Medicare patients with the drug...

https://connect.mayoclinic.org/comment/1135041/

Discussion: Short acting Ocreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 2, 2024

Hello @ggp and welcome to Mayo Clinic Connect. I can certainly understand your confusion, and I...

https://connect.mayoclinic.org/comment/1538709/

Discussion: Does anyone have neuroendocrine small cell carcinoma of the liver?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 30 10:58am

Hey all. My husband was diagnosed with NET that metastasized to liver 5 years ago. Since...

https://connect.mayoclinic.org/comment/1356472/

Discussion: NET tumor of pancreas (1 cm) diagnosed

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 25, 2025

Waiting is some times the hardest part. Pnet is the acronym for pancreatic neuroendocrine tumors. Mine...

https://connect.mayoclinic.org/comment/917143/

Discussion: Laparoscopic Possible Open Surgery Resection - Small Bowel NETS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 22, 2023

@tinerobison My wife was diagnosed with NET in April 22, with about a 3x5cm mass on...

https://connect.mayoclinic.org/comment/997134/

Discussion: Found PNET on tail of pancreas but told it’s nonfunctional

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 14, 2024

@jasonrex86 I had distal pancreatectomy, gall bladder and spleen along with RFA in 2025. After RFA...

https://connect.mayoclinic.org/comment/1526673/

Discussion: Pancreatic NETs: Looking to connect with anyone with insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 14 10:47am

My husband just had surgery for NETS through the Winship Cancer Institute at Emory University Hospital...

https://connect.mayoclinic.org/comment/1531937/

Discussion: DIPNECH dr in GA- Atlanta

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 21 9:00am

Hello @pete1962 and welcome to the NETs discussion on Mayo Clinic Connect. I am glad that...

https://connect.mayoclinic.org/comment/814506/

Discussion: Scared - Suspected NET on tail of the pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 20, 2023

I have been on Everlimos for 12 weeks. A follow up CT done recently showed slight...

https://connect.mayoclinic.org/comment/1524872/

Discussion: Previous heart surgery & risks of surgery to remove lung net

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 11 7:07pm

Hello...I am a new member here and I am scared. And was recently diagnosed with neuroendocrine...

https://connect.mayoclinic.org/comment/818982/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 28, 2023

Update for folks who have been so helpful - doctor appointment hard but useful. Lanreotide alone...

https://connect.mayoclinic.org/comment/1328851/

Discussion: Help understand interval progression

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 17, 2025

@splendrous, I hope you saw the helpful post from @jlsgt. Sometimes the original source, also known...

https://connect.mayoclinic.org/comment/1161138/

Discussion: Dotatate lights only in liver, but report says metastatic to liver?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 22, 2024

Hi Everyone! I had my liver embolization on the right side of my liver which is...

https://connect.mayoclinic.org/comment/805129/

Discussion: Bland embolization or transarterial chemoembolization (TACE)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 1, 2023

My wife was diagnosed in April 2022, with NET with primary on pancreas, and too many...

https://connect.mayoclinic.org/comment/1207477/

Discussion: Any advice for someone recently diagnosed with NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 9, 2025