Neuroendocrine Tumors (NETs): Discussions | Page 1

That’s great news. I also have multiple tumors on my liver..I had my first treatment of...

https://connect.mayoclinic.org/comment/1194080/

Discussion: I recently learned of histotripsy treatment for metastatic NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 20, 2024

Hi, PNet is one that starts in the pancreas then spreads to other parts like the...

https://connect.mayoclinic.org/comment/1071577/

Discussion: pNET with liver metastases: What is necrosis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 20, 2024

How old is your wife? I'm 55yr old Male and I had a SI resection, primary...

https://connect.mayoclinic.org/comment/994044/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 8, 2024

@ricki8- I have been on Lanreotide for 2 yrs on March 10 :). My gallbladder was...

https://connect.mayoclinic.org/comment/1255238/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 11 6:48am

Kim, I remember. Thanks for asking. I stopped taking temozolomide about 5 months ago and now...

https://connect.mayoclinic.org/comment/1038499/

Discussion: Treatment for GI NET with liver mets not working: Options?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 22, 2024

Thanks for your reply. Have your doctors ever run any tests to determine if pancreas or...

https://connect.mayoclinic.org/comment/1207772/

Discussion: Clay colored bowels & diarrhea side effects with Octreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 9 3:18pm

They suspect my brother may have some but haven't done anything for them yet, as I...

https://connect.mayoclinic.org/comment/877312/

Discussion: Anyone have a neuroendocrine tumor (NET) in the spine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 12, 2023

Had appts at Mayo this week and CT scan shows growth in multiple liver tumors. Switching...

https://connect.mayoclinic.org/comment/771583/

Discussion: Anyone gone to Mayo Clinic in Rochester Minnesota for carcinoid tumors?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 10, 2022

Sorry to read about your circumstance. My NET is a Insulinoma, pancreas to liver, also too...

https://connect.mayoclinic.org/comment/874444/

Discussion: Diagnosed with Stage 4 pNET: What should I know?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 7, 2023

Hi I was diagnosed with stage 4 pNET in July of 2023, I had a Whipple...

https://connect.mayoclinic.org/comment/1268507/

Discussion: Pancreatic Cancer: Anyone have liver metastasis after Whipple?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 28 9:29am

Have worsening symptoms for close to 20 years but much progression since Sep 21 with multiple...

https://connect.mayoclinic.org/comment/748820/

Discussion: Liver mets mistaken as hemangioma or harmatoma on MRI

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 12, 2022

I am right with you with your feelings. I had stage 4 Neuroendocrine cancer of small...

https://connect.mayoclinic.org/comment/163994/

Discussion: The Roller Coaster Ride of Cancer

Support Group: Cancer

Posted: Dec 4, 2019

That report my say metastatic to liver because I've read that neuroendocrine doesn't typically originate in...

https://connect.mayoclinic.org/comment/1158066/

Discussion: Dotatate lights only in liver, but report says metastatic to liver?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 16, 2024

Husband was diagnosed in Nov. of last year with low grade neuroendocrine carcinoma which started at...

https://connect.mayoclinic.org/comment/941333/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 3, 2023

Sherry, your experience sounds exactly like mine. I have been getting injections of octreotide every 4...

https://connect.mayoclinic.org/comment/1268153/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 27 3:47pm

My embolization was January 12, 2023 It took me about a month to truly recover After...

https://connect.mayoclinic.org/comment/829069/

Discussion: Bland embolization or transarterial chemoembolization (TACE)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 20, 2023

I was diagnosed with NETS WITH METASTASIS to my liver. I had a transplant. It was...

https://connect.mayoclinic.org/comment/949270/

Discussion: Liver Transplant to Treat NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 17, 2023

It was a ' combined' pancreatectomy ( with spleen and gallbladder removal), liver debulking AND hysterectomy...

https://connect.mayoclinic.org/comment/847119/

Discussion: Who has had Distal Pancreatectomy and regretted it?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 21, 2023

Hello @dbamos1945 I just noticed that @caitrina's post is in the liver debulking group, however, she...

https://connect.mayoclinic.org/comment/780507/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 3, 2022

Hello @carm1011 and welcome to the NETs support group on Mayo Connect. I am glad that...

https://connect.mayoclinic.org/comment/890939/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 6, 2023

Neuroendocrine Tumors (NETs) Support Group