Neuroendocrine Tumors (NETs): Discussions | Page 12

They did a pet scan right before surgery, and did not find any metastasis to my...

https://connect.mayoclinic.org/comment/902877/

Discussion: Should I want more treatment after pancreatic nets with lymph nodes?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 27, 2023

Surgery update: Kim had surgery today to remove remove remaining mass on pancreas, remove gall bladder,...

https://connect.mayoclinic.org/comment/819734/

Discussion: PNET Surgery: My recovery journey

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 2, 2023

Our case also was stage 4 with too many tumors on liver to count. Not eligible...

https://connect.mayoclinic.org/comment/1106247/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 15 7:05pm

Hello @carcinoid and let me add my welcome to that of Colleens. I am sorry to...

https://connect.mayoclinic.org/comment/240130/

Discussion: Carcinoid cancer in intestine or NETs (Neuroendocrine Tumors)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 17, 2019

One more thing I just want to note, I had NO symptoms. I had a hernia...

https://connect.mayoclinic.org/comment/805957/

Discussion: What's the best way to detect liver metastases?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 3, 2023

I’m being treated at Mayo Jax. Was diagnosed with NETs (Carcinoid Syndrome)December 2022, started in the...

https://connect.mayoclinic.org/comment/831689/

Discussion: Anyone treated for NETs at Mayo Clinic in Jacksonville, FL

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 25, 2023

Hi @gaylejean Since you posted about embolization in September and there were no responses, I was...

https://connect.mayoclinic.org/comment/217312/

Discussion: Embolization

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 1, 2018

Hello @sophiarose, I certainly look forward to hearing from you again. Has your MRI of the...

https://connect.mayoclinic.org/comment/829494/

Discussion: Bland embolization or transarterial chemoembolization (TACE)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 21, 2023

iam doing ok. but i have lots of diarrhea. liver is swollen, very fatigue. The oncologist...

https://connect.mayoclinic.org/comment/1038396/

Discussion: Treatment for GI NET with liver mets not working: Options?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 22 2:18pm

Hi Margaret, every year my husband has a Dototate (sp?) PET scan. It is a more...

https://connect.mayoclinic.org/comment/764697/

Discussion: Prognosis for Metastasized NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 23, 2022

The problem with blanket statements like your doctor told is that we all have different types...

https://connect.mayoclinic.org/comment/861136/

Discussion: Dying from car accident can cause death more so this cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 17, 2023

Hello @rushlakekathy and welcome to the NET discussion on Mayo Clinic Connect. I am glad that...

https://connect.mayoclinic.org/comment/814504/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 20, 2023

I appreciate Your follow up. Unfortunately I was disregarded by the oncologist, the only thing that...

https://connect.mayoclinic.org/comment/807767/

Discussion: Pancreatic neuroendocrine insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 7, 2023

I have pNET grade stage4 with liver metastases. I have not noticed any swelling. I am...

https://connect.mayoclinic.org/comment/883583/

Discussion: Anyone have swelling with liver metastases?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 23, 2023

I'm not a Dr, but I Play one on the internet. I think the answer is...

https://connect.mayoclinic.org/comment/808032/

Discussion: Can a second Neuroendocrine tumor appear or is it always metastatic?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 8, 2023

It’s a long list! Surgery to remove the primary Y90 to address a 50% tumor burden...

https://connect.mayoclinic.org/comment/1123233/

Discussion: Everolimus for multiple Neuroendocrine tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 13 9:59pm

I'm am 56yrs old with liver NETs metastatic as well. Ki-67 is 4, well differentiated as...

https://connect.mayoclinic.org/comment/1167298/

Discussion: Dotatate lights only in liver, but report says metastatic to liver?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 3 11:58am

In reply to Blue Dane: I was very recenty diagnosed with 1 NET in my liver...

https://connect.mayoclinic.org/comment/813633/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 18, 2023

@t26 My wife had very similar surgery as you. Mass on pancreas was removed, tail of...

https://connect.mayoclinic.org/comment/834063/

Discussion: Anyone have surgery for metastatic PNET done in stages?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 29, 2023

Thank you and we feel the same way. Why not monitor at this point. She feels...

https://connect.mayoclinic.org/comment/1111437/

Discussion: NET on liver: Question about treatments when no symptoms

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 25 7:54am

Neuroendocrine Tumors (NETs) Support Group