Neuroendocrine Tumors (NETs) Support Group

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I was diagnosed accidentally in November last year with stage 4 NET's after having a CT...

https://connect.mayoclinic.org/comment/1479087/

Discussion: What does the future look like for a stage 4 NET patient?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 10 3:43pm

Hello @ggp and welcome to Mayo Clinic Connect. I can certainly understand your confusion, and I...

https://connect.mayoclinic.org/comment/1538709/

Discussion: Does anyone have neuroendocrine small cell carcinoma of the liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 30 10:58am

Hey all. My husband was diagnosed with NET that metastasized to liver 5 years ago. Since...

https://connect.mayoclinic.org/comment/1356472/

Discussion: NET tumor of pancreas (1 cm) diagnosed

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 25, 2025

Waiting is some times the hardest part. Pnet is the acronym for pancreatic neuroendocrine tumors. Mine...

https://connect.mayoclinic.org/comment/917143/

Discussion: Laparoscopic Possible Open Surgery Resection - Small Bowel NETS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 22, 2023

@tinerobison My wife was diagnosed with NET in April 22, with about a 3x5cm mass on...

https://connect.mayoclinic.org/comment/997134/

Discussion: Found PNET on tail of pancreas but told it’s nonfunctional

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 14, 2024

Hello @pete1962 and welcome to the NETs discussion on Mayo Clinic Connect. I am glad that...

https://connect.mayoclinic.org/comment/814506/

Discussion: Scared - Suspected NET on tail of the pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 20, 2023

Update for folks who have been so helpful - doctor appointment hard but useful. Lanreotide alone...

https://connect.mayoclinic.org/comment/1328851/

Discussion: Help understand interval progression

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 17, 2025

@splendrous, I hope you saw the helpful post from @jlsgt. Sometimes the original source, also known...

https://connect.mayoclinic.org/comment/1161138/

Discussion: Dotatate lights only in liver, but report says metastatic to liver?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 22, 2024

Hello...I am a new member here and I am scared. And was recently diagnosed with neuroendocrine...

https://connect.mayoclinic.org/comment/818982/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 28, 2023

Hi Everyone! I had my liver embolization on the right side of my liver which is...

https://connect.mayoclinic.org/comment/805129/

Discussion: Bland embolization or transarterial chemoembolization (TACE)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 1, 2023

My wife was diagnosed in April 2022, with NET with primary on pancreas, and too many...

https://connect.mayoclinic.org/comment/1207477/

Discussion: Any advice for someone recently diagnosed with NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 9, 2025

Is there a NET team anyone can recommend? I had a right upper lobe lobectomy in...

https://connect.mayoclinic.org/comment/794019/

Discussion: NET (Lung + liver metastatis) Radical nephrectomy done for RCC

Support Group: Kidney Cancer

Posted: Jan 8, 2023

I too have grade 2 NET liver metastasis but there was no mention of necrosis. Sorry...

https://connect.mayoclinic.org/comment/1062149/

Discussion: pNET with liver metastases: What is necrosis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 4, 2024

MRI every 3 months w/ and w/o contrast substance. I've been told safer and better for...

https://connect.mayoclinic.org/comment/1207619/

Discussion: MRI or CatScan as follow up imaging for metastatic liver tumor?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 9, 2025

My large tumor is in the liver. Anyone know of how that size located there is...

https://connect.mayoclinic.org/comment/1203264/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 3, 2025

@marct First of all, I can only tell our story which is very similar. My wife...

https://connect.mayoclinic.org/comment/992359/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 6, 2024

Hello Karen, @immmm Understanding the difference between lesions, cystic lesions, liver metastasis and tumors can be...

https://connect.mayoclinic.org/comment/167649/

Discussion: Lesions, Cystic liver mets, vs Tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 17, 2017

I'm stage 4 pancreatic and liver cancer, tail end pnets I've had no surgeries,radiation very little...

https://connect.mayoclinic.org/comment/803506/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 29, 2023

@nofire right now I am not receiving any form of treatment but monitoring of lesions on...

https://connect.mayoclinic.org/comment/1433221/

Discussion: S4, G2 NETS in mesentery. Declined Exploratory Surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 7, 2025

To answer your question, yes if it spreads (metastasized) I have it in my liver, mesentery,...

https://connect.mayoclinic.org/comment/1238682/

Discussion: Diagnosed with NET si-NET Stage 1 Grade 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 16, 2025

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