Connect
Public Support Group 715 total results
Comments (653)
Hi, Sandostation Octreotide 30mg. He had the last one two weeks ago on a Friday. I...
https://connect.mayoclinic.org/comment/832647/
@rachismarie Sorry to hear about all you’re going thru. I understand how scary it can all...
https://connect.mayoclinic.org/comment/1181823/
This is @amd12. I wasn't actually diagnosed with DIPNECH, but I was told that I seemed...
https://connect.mayoclinic.org/comment/772509/
I'm sorry you're seeing progression. Sounds like it's time for some treatment. I strongly recommend that...
https://connect.mayoclinic.org/comment/1432863/
It takes time for due diligence. Sometimes surgery doesn't go as planned because there wasn't enough...
https://connect.mayoclinic.org/comment/1385970/
@jhhaas Glad the surgery is behind you. Yes, you should have a NETs multidisciplinary team at...
https://connect.mayoclinic.org/comment/976633/
I have also been diagnosed with DIPNECH and have probably had for 20 years. I have...
https://connect.mayoclinic.org/comment/1172007/
Allow me to be the acronym buster for this discussion: - SSA = Somatostatin analogue https://www.cancerresearchuk.org/about-cancer/neuroendocrine-tumours-nets/treatment/somatostatin-analogues/what-are...
https://connect.mayoclinic.org/comment/1001311/
@llr9f, It is so good to hear from you again. I'm glad that you have some...
https://connect.mayoclinic.org/comment/1329466/
@triveraderubio I had to go back and read through this entire thread to remember what you...
https://connect.mayoclinic.org/comment/962925/
What type of NETs do you have? Are you currently taking the shots and having issues?...
https://connect.mayoclinic.org/comment/1417947/
Thank you! I'm actually doing good with the octreotide( bi-weekly shots) and hopefully scheduled scans in...
https://connect.mayoclinic.org/comment/1000147/
Was an insulinoma the cause for his hypoglycemia? I have not researched on Octreotide much. Was...
https://connect.mayoclinic.org/comment/895885/
Yes, it came back with a vengeance, it had metastasized to peritoneal lining, liver, gallbladder, bladder,...
https://connect.mayoclinic.org/comment/1350383/
@jhhaas Good idea to get a second opinion. Glad you don’t have coughing. Octreotide also helps...
https://connect.mayoclinic.org/comment/1143685/
But what does the octreotide do to you? From what I've found when web searching, it...
https://connect.mayoclinic.org/comment/1254930/
i appreciate your sharing. Were your tumors growing and that is why they gave you 4...
https://connect.mayoclinic.org/comment/1344045/
@nannybb Hi. No, the breast cancer is not related to the NETs/DIPNECH. I actually had the...
https://connect.mayoclinic.org/comment/1541386/
Sophiarose, Octreotide is used to help manage the effects of neuroendocrine tumors such as flushing and...
https://connect.mayoclinic.org/comment/830230/
Hi @californiazebra, This is my firs post here, but my diagnosis and treatment is very similar...
https://connect.mayoclinic.org/comment/1071013/
- First
- Previous
- ...
- 8
- 9
- 10
- 11
- 12
- 13
- 14
- ...
- Next
- Last
Connect