Neuroendocrine Tumors (NETs) Support Group | Page 11

Thanks for sharing this video. As advances in medicine are rapidly growing, and as this video...

https://connect.mayoclinic.org/comment/928128/

Discussion: What do I need to know about NETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 11, 2023

Where is your NET? Could that be partially blocking your GI system? I had a partial,...

https://connect.mayoclinic.org/comment/862953/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 19, 2023

Hi cu2 The contrast dye in the C.T. scans makes quite a difference. Plus, like me,...

https://connect.mayoclinic.org/comment/1280465/

Discussion: I recently had surgery to remove NET in small intestine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 12, 2025

I have the same situation but have persevered with the Lanreotide injections monthly for 6 yrs...

https://connect.mayoclinic.org/comment/964447/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 14, 2023

I have liverNET cancer. I was diagnosed almost one year ago. I had 4 intense chemo...

https://connect.mayoclinic.org/comment/963078/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 11, 2023

Good morning to (hello it’s me) I was diagnosed Dec. 2022.. started in small intestine and...

https://connect.mayoclinic.org/comment/851326/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 29, 2023

Yes, I had the swollen feet and joints before I started Lanreotide shots every month. I...

https://connect.mayoclinic.org/comment/1197423/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 26, 2024

@hopeful33250 @ahtaylor @joannem @tomewilson It’s nice to meet everyone. I will be happy to connect with...

https://connect.mayoclinic.org/comment/134544/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 19, 2019

ALSO ask your oncologist and your insurance provider why they are 'substituting' Samotuline Depot with Lanreotide....

https://connect.mayoclinic.org/comment/1357972/

Discussion: Should NET w/liver met patient stop rx that has Seratonin?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 27, 2025

I get Lanreotide and have gotten the lumps at the injection site. It is a big...

https://connect.mayoclinic.org/comment/1357956/

Discussion: Should NET w/liver met patient stop rx that has Seratonin?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 27, 2025

https://connect.mayoclinic.org/discussion/is-there-a-particular-diet-to-have-when-beginning-lanreotide-injection/Reading what others have said confirms that as NET patients we are all different. I was...

https://connect.mayoclinic.org/comment/1252413/

Discussion: Is there a particular diet to have when starting Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 7, 2025

I have the same cancer as you. I have been on lanreotide almost a year. So...

https://connect.mayoclinic.org/comment/1106183/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 15, 2024

I have not. Had debulking surgery and am having CT scans every three months and no...

https://connect.mayoclinic.org/comment/1038990/

Discussion: Anyone have experience with "functioning" Pancreatic NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 23, 2024

I’ve received 12 lanreotide injections (every 21 days) and had diarrhea and fatigue after the first...

https://connect.mayoclinic.org/comment/967418/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 19, 2023

My journey since diagnosis of pets, metastasis to liver, Jan.2025 has been monthly Lanreotide, now every...

https://connect.mayoclinic.org/comment/1329038/

Discussion: First scan after 3 months of lanreotidec

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 17, 2025

I’ve had almost 30 Lanreotide injections and have two side effects…which have dissipated overtime…bump at site...

https://connect.mayoclinic.org/comment/1166502/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 2, 2024

If the injection is Lanreotide every 28! I did 3 injections and had to switch to...

https://connect.mayoclinic.org/comment/1197109/

Discussion: Stage 4 Carcinoid tumor: What treatments have you had?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 25, 2024

@myboys02 So glad to hear you are going for a second opinion at Sloan Kettering. Smart...

https://connect.mayoclinic.org/comment/1554907/

Discussion: I am 75 and have carcinoid tumors NET in lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 20 4:07am

I have received the short term Octreotide while in the hospital. It was given to me...

https://connect.mayoclinic.org/comment/1132551/

Discussion: Short acting Ocreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 28, 2024

It sounds like it would have been within a month, but our son is getting married...

https://connect.mayoclinic.org/comment/1528196/

Discussion: New spots showing up

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 16 10:45am