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Public Support Group 257 total results
Comments (242)
Hi - NETs are neuroendocrine tumors, formerly called carcinoid tumors. They are either “typical” or “atypical”-...
https://connect.mayoclinic.org/comment/1205644/
@sophiarose I’ve been taking octreotide injections for lung NETs and DIPNECH for 3.5 years and it...
https://connect.mayoclinic.org/comment/1181820/
That's amazing ! I feel very blessed an encouraged by this,The largest nodule in my lung...
https://connect.mayoclinic.org/comment/1330481/
Ps- my symptoms primarily are shortness of breath on exertion, like climbing stairs a lot or...
https://connect.mayoclinic.org/comment/1209863/
I’m glad your allergies have improved and general wellness. I did allergy testing about 25 years...
https://connect.mayoclinic.org/comment/1330239/
That’s great it improved your allergies! In my allergy testing, it looked like I was allergic...
https://connect.mayoclinic.org/comment/1330268/
Hi - I’m new here. But I saw your question. I was diagnosed this summer with...
https://connect.mayoclinic.org/comment/974003/
Hello @marciamiller and welcome to Mayo Connect. I am glad that you found this forum. DIPNECH...
https://connect.mayoclinic.org/comment/1163824/
You are a delight! I love your enthusiasm and your sense of humor. I always wanted...
https://connect.mayoclinic.org/comment/1431879/
May I refer to you as California? Thank you for your input. My first lobectomy was...
https://connect.mayoclinic.org/comment/1224839/
Your English is great and your story was easy to follow. Definitely do all the monitoring...
https://connect.mayoclinic.org/comment/1237831/
Great explanation! I also have both, but not needing treatment at this point. It can be...
https://connect.mayoclinic.org/comment/1411054/
It is interesting, isn’t it? However, I didn’t have those allergy symptoms like sneezing, etc. several...
https://connect.mayoclinic.org/comment/1205467/
Hi @peggymariejackson as I mentioned in another one of your posts, I have lung NETs --...
https://connect.mayoclinic.org/comment/861009/
@woundedwarrior1969 Your philosophy certainly may be true for some disorders. In the case of DIPNECH the...
https://connect.mayoclinic.org/comment/965985/
Hi @pammy229 I’m glad you decided to go to Mayo and will undoubtedly be hooked up...
https://connect.mayoclinic.org/comment/1198299/
I has dx’d with DIPNECH last fall after having my right middle lobe removed for 1...
https://connect.mayoclinic.org/comment/1143500/
Sorry your going through this. Thanks for your response. If you do not mind, I would...
https://connect.mayoclinic.org/comment/1055029/
Hi @pattirushing It's a little bit hard for me to single out all the octreotide side...
https://connect.mayoclinic.org/comment/838730/
It was very helpful and encouraging to read your comments . I have not met or...
https://connect.mayoclinic.org/comment/845625/
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