Neuroendocrine Tumors (NETs) Support Group

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Comments (240)

My Husband was diagnosed with GI tract stage 4 Neuroendocrine carcinoid that spread to liver, lymph...

https://connect.mayoclinic.org/comment/1048688/

Discussion: Questions Regarding Results after PRRT Treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 10, 2024

We thought since the endoscope was good and the colonoscopy was good. What are the odds...

https://connect.mayoclinic.org/comment/1003825/

Discussion: NET in illeum, surgery or proper nutrition?!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 25, 2024

I was diagnosed with stage 4 NET’s December 2022, started in small intestines and metastasized to...

https://connect.mayoclinic.org/comment/901156/

Discussion: Should I want more treatment after pancreatic nets with lymph nodes?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 24, 2023

I found out 3 years ago that I have net cancer. Originated in small intestines and...

https://connect.mayoclinic.org/comment/848467/

Discussion: Differentiating Carcinoid syndrome from MCAS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 24, 2023

My dear friend has had the 4 PRRT. She was ready to quit after 3 because...

https://connect.mayoclinic.org/comment/732819/

Discussion: PRRT for NETs: Questioning whether I should continue or not

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 31, 2022

Yesterday I saw an oncologist here in Tucson. His thought was that the primary tumor is...

https://connect.mayoclinic.org/comment/176713/

Discussion: Anyone treated for NETs at Mayo Clinic in Jacksonville, FL

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 28, 2019

We did find this out that there is extra help for Medicare patients with the drug...

https://connect.mayoclinic.org/comment/1135041/

Discussion: Short acting Ocreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 2, 2024

Husband 4.5 years post pancreatectomy, with excision of the duodenum, pylorus, spleen, gallbladder and also has...

https://connect.mayoclinic.org/comment/1072741/

Discussion: Weight Loss after Whipple: What strategies helped you?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 22, 2024

I was diagnosed Dec. 2021 Tumors started in the small intestines and metastasized to the liver...

https://connect.mayoclinic.org/comment/1035643/

Discussion: What questions should I ask oncologist tumor types and chemo treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 18, 2024

just facts here and you will have to decide for yourself--- and this was ten years...

https://connect.mayoclinic.org/comment/1030398/

Discussion: High risk surgery. Is it worth it?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 9, 2024

My husband on 1/22/2022 was diagnosed 3 mm carcinoid tumor in his small intestines. We found...

https://connect.mayoclinic.org/comment/1003703/

Discussion: NET in illeum, surgery or proper nutrition?!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 25, 2024

Did you read something or did someone advise your son against eating beef? I'm not a...

https://connect.mayoclinic.org/comment/969833/

Discussion: Octreotide Injections - Skipping One or More?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 24, 2023

Hello @joy5877 and welcome to the NETs support group on Mayo Connect. I'm pleased that you...

https://connect.mayoclinic.org/comment/940369/

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 2, 2023

I was diagnosed in March 2018 with NETs in multiple locations after having a blockage in...

https://connect.mayoclinic.org/comment/807089/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 6, 2023

Hi I feel every bite of your trails I traveled almost the same road , misdiagnosed...

https://connect.mayoclinic.org/comment/792778/

Discussion: Frustrated with the medical establishment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 5, 2023

I had surgery for carcinoid tumors in my small bowel and abdominal cavity 12 years ago,...

https://connect.mayoclinic.org/comment/752939/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 23, 2022

Hi I was diagnosed with NET in my small intestines just like you in 2011 I...

https://connect.mayoclinic.org/comment/752699/

Discussion: Newly diagnosed with NET in liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 22, 2022

I guess I should introduce myself before I answer people. I am a NET patient at...

https://connect.mayoclinic.org/comment/134540/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 19, 2019

My appt is July 11 with Dr. Stucky. I saw my general surgeon this morning and...

https://connect.mayoclinic.org/comment/176715/

Discussion: Anyone treated for NETs at Mayo Clinic in Jacksonville, FL

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 28, 2019

So relieved to find people with this frustrating disease process. I was beginning to think I...

https://connect.mayoclinic.org/comment/135496/

Discussion: The role of Tumor Marker Labs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 2, 2017

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