Neuroendocrine Tumors (NETs) Support Group

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Comments (271)

Pippa05, I am so very sorry to hear about your struggles. And I appreciate and can...

https://connect.mayoclinic.org/comment/897706/

Discussion: NET symptoms despite follow-up lab work ok

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 17, 2023

@sop, I’m sorry to hear that your husband has been diagnosed with these rare tumors, but...

https://connect.mayoclinic.org/comment/943323/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 6, 2023

Hi there, fist off.. fellow Wisconsinite.....GoPackGo. back to the NETS. My hubs was diagnosed back in...

https://connect.mayoclinic.org/comment/1231196/

Discussion: New Diagnosis: husband's labs are all indicating NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 7 1:58am

Talkativeinfl, first of all, I’m so very sorry to hear about your husband’s situation and your...

https://connect.mayoclinic.org/comment/873777/

Discussion: Diagnosed with Stage 4 pNET: What should I know?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 6, 2023

It’s so hard to generalize one experience to others except as an example. In 2014-15, I...

https://connect.mayoclinic.org/comment/1001387/

Discussion: Statistics on progression free survival while on SSA / Lanreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 21, 2024

The Whipple procedure involves the resection of the head of the pancreas. This section is where...

https://connect.mayoclinic.org/comment/985469/

Discussion: Weight Loss after Whipple: What strategies helped you?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 23, 2023

He was diagnosed in December 2019, had surgery in March 2020, I think the first six...

https://connect.mayoclinic.org/comment/899229/

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 20, 2023

To people in the NorthEast Upstate Cancer Center now offers robotic surgery for Wipple procedure. Dr.Dhir...

https://connect.mayoclinic.org/comment/1001632/

Discussion: Need more information on NET in head of pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 22, 2024

Hi Colleen, My cancer is neuroendocrine small cell carcinoma originating in the gut and metastases to...

https://connect.mayoclinic.org/comment/1071318/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 20, 2024

Wow! Let me saw that I was treated like a rock star at Mayo in Jacksonville....

https://connect.mayoclinic.org/comment/770718/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 8, 2022

Hi Teresa: I would be glad to share my journey with you and your followers. In...

https://connect.mayoclinic.org/comment/107245/

Discussion: Ga-68 for detecting NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 2, 2017

@mgb20, I totally agree with @phyllisden ! It was probably 15 years before I was finally...

https://connect.mayoclinic.org/comment/831438/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 24, 2023

Hi Eileen; I’m sure you’re in complete shock with your diagnosis. Your case sounds a lot...

https://connect.mayoclinic.org/comment/1284362/

Discussion: New To NETS - Stage 4 / Grade 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: 3 days ago

Hi, I have had a resection in my small bowel 12/24. It took about a year...

https://connect.mayoclinic.org/comment/1271695/

Discussion: Small Intestine Resection

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 1 11:00am

Hi all, hoping spring is good and well for you. I’m circling back to my post...

https://connect.mayoclinic.org/comment/1275884/

Discussion: Cu-64 Dotatate PET results show no malignancy. What’s next?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 6 5:38pm

Here’s a brief summary prior to starting treatment with Dr Wolin. 59 year old male presents...

https://connect.mayoclinic.org/comment/1238487/

Discussion: Diagnosed with NET si-NET Stage 1 Grade 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 16 4:10pm

@swede79: I am assuming you have been diagnosed with Neuroendocrine tumor (carcinoid) cancer. Lanreotide 120 mg...

https://connect.mayoclinic.org/comment/1252202/

Discussion: Is there a particular diet to have when starting Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 7 3:21am

I also have Grade 2, KI - 67 of 6.6% Stage 4, metastasized from small intestines...

https://connect.mayoclinic.org/comment/1261758/

Discussion: Liver function (birirubin, globulin, glucose, iron) and Octreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 19 9:25am

Hi anyone with NETS recurrence? I had laparoscopy surgery to remove the tumor from my small...

https://connect.mayoclinic.org/comment/1255264/

Discussion: New Diagnosis: husband's labs are all indicating NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 11 7:29am

I was diagnosed 17 months ago with a metastatic stage 4, grade 2-3 small intestinal NET....

https://connect.mayoclinic.org/comment/1165976/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 1, 2024

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