Neuroendocrine Tumors (NETs) Support Group | Page 10

Splendrous, I've been on Octrotide injections monthly since April 2018, a month after my first surgery...

https://connect.mayoclinic.org/comment/1208675/

Discussion: Clay colored bowels & diarrhea side effects with Octreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 10, 2025

My metestatic carcinoid cancer was discovered by accident when my GYN was doing an endoscopic look...

https://connect.mayoclinic.org/comment/827308/

Discussion: Long Time Survivor With Concerns re Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 17, 2023

@panorman3 , I, too, have an inoperable tumor. It’s in my stomach and was found 7...

https://connect.mayoclinic.org/comment/1260726/

Discussion: Diagnosing small bowel NETs with carcinoid syndrome

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 17, 2025

@badi I'm a 59 year old female, and I, too, am Stage IV Carcinoid. My original...

https://connect.mayoclinic.org/comment/822156/

Discussion: Stage 4 Carcinoid tumor: What treatments have you had?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 7, 2023

Terry998: This is the first time I have found a person willing to talk about Cysts...

https://connect.mayoclinic.org/comment/819547/

Discussion: Lesions, Cystic liver mets, vs Tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 1, 2023

@steven1953: I am sorry that you are dealing with the uncertainty of tumor progression. My situation...

https://connect.mayoclinic.org/comment/1110367/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 23, 2024

@rkklinger: congrats to you and your husband recommended to begin PRRT treatment I assume for Neuroendocrine...

https://connect.mayoclinic.org/comment/1586345/

Discussion: PRRT Treatment: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 29 7:21pm

Hi, Teresa. we all appreciate your initiative on the impact of surgery on our digestive tract,...

https://connect.mayoclinic.org/comment/1352877/

Discussion: How do I eat after digestive tract surgery?

Support Group: Digestive Health

Posted: Jul 20, 2025

Hi @Jestjohn, I have NET small intestine primary tumor near pyloric channel & duodenum that was...

https://connect.mayoclinic.org/comment/981222/

Discussion: Anyone have a neuroendocrine tumor in small intestine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 15, 2023

@tjatsaufr: I relate to your concern over radionuclide radiation; however, the nuclear medicine department at your...

https://connect.mayoclinic.org/comment/1358334/

Discussion: Questions Regarding Results after PRRT Treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 28, 2025

@dtkach37 Thank you for responding. Just a little background on my situation. I had a Pnet...

https://connect.mayoclinic.org/comment/1586047/

Discussion: Need more information on NET in head of pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 29 10:41am

I was diagnosed with Carcinoid in 2007. The mass had grown around several loops of my...

https://connect.mayoclinic.org/comment/804478/

Discussion: Lanreotide Manufacturers: anyone have experience with either?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 31, 2023

I had a hemicolectomy because of a NET tumor of the small intestine and had many...

https://connect.mayoclinic.org/comment/745966/

Discussion: What helps with gas and pain after surgery?

Support Group: Cancer: Managing Symptoms

Posted: Sep 5, 2022

I've had a Whipple and 2 colon cancer colonectomies; so very little of digestive system left...

https://connect.mayoclinic.org/comment/1483228/

Discussion: How do I eat after digestive tract surgery?

Support Group: Digestive Health

Posted: Jan 15 3:54pm

@briana311 I was diagnosed two years ago. The primary was near my small intestine. The biopsy...

https://connect.mayoclinic.org/comment/1530719/

Discussion: NETs growing despite 3 months of capecitabine and temozolomide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 19 12:17pm

@sarahfloranne, Sorry to hear you’ve had this side effect to the Lanreotide - which unfortunately is...

https://connect.mayoclinic.org/comment/876306/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 10, 2023

If you Google neoendrocrine carcinoid tumors and read the neoendrocrine tumors q and a plus right...

https://connect.mayoclinic.org/comment/1231828/

Discussion: How does Alcohol use affect Liver NET?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 7, 2025

PRRT is hung up with the FDA approval process. I can't post messages with links yet,...

https://connect.mayoclinic.org/comment/127206/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 9, 2016

Welcome, Christine. You're not alone. I moved your message to this existing discussion: - Newly diagnosed...

https://connect.mayoclinic.org/comment/750122/

Discussion: Newly diagnosed with NET in liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 15, 2022

@billbo: I have Neuroendocrine cancer primary tumor small intestine (duodenum junction) that metastasized to liver. When...

https://connect.mayoclinic.org/comment/1553235/

Discussion: Anyone had PRRT treatment for liver metastasis NETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 18 1:38am