Neuroendocrine Tumors (NETs) Support Group

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Comments (721)

Hello @annie12345, I am glad that you found this forum. It will help you find support...

https://connect.mayoclinic.org/comment/1328967/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 17 8:53am

Hello @sydmiller1 and welcome to the NETs support group on Mayo Connect. It appears from your...

https://connect.mayoclinic.org/comment/1333446/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 23 11:08am

I see a nets oncologist now. I did have the dotate pet scan and it came...

https://connect.mayoclinic.org/comment/1360087/

Discussion: stage 1A Net removed from upper left lobe

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 30 1:38pm

@lisaonthegoco, welcome. You sound like a woman of action. Sitting around waiting for the other shoe...

https://connect.mayoclinic.org/comment/761186/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 14, 2022

Hello @ineedawhale and welcome to the NETs support group on Mayo Connect. On Connect, we have...

https://connect.mayoclinic.org/comment/1357814/

Discussion: Initial imaging and tests; what to expect after initial NETs diagnosis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 27 3:36pm

Hello @katinka58, I'm sorry to hear the recent MRI showed more problems with your husband's lung....

https://connect.mayoclinic.org/comment/1269539/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 29 4:01pm

Hello @netnan and welcome to Connect. Looking for voices of experience is what Connect is all...

https://connect.mayoclinic.org/comment/1106504/

Discussion: Sarcoidosis and Lung NET, upcoming surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 16, 2024

I can only answer for lung. If you have a carcinoid tumor in your lung, the...

https://connect.mayoclinic.org/comment/1254782/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 10 12:20pm

@bjh369- Hello and welcome to our group. You are right, you just keep on keeping on....

https://connect.mayoclinic.org/comment/232797/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Jan 7, 2019

Yes, that was what was recommended. I consulted a surgeon and he also recommended radiation as...

https://connect.mayoclinic.org/comment/943959/

Discussion: Atypical Lung NET treated with radiation: What was your outcome?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 8, 2023

77 years old, female, no symptoms still being diagnosed. Tumor in left lower lung and left...

https://connect.mayoclinic.org/comment/1022376/

Discussion: Carcinoid tumor right middle lobe.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 25, 2024

But what does the octreotide do to you? From what I've found when web searching, it...

https://connect.mayoclinic.org/comment/1254930/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 10 3:27pm

yes they are just reference Dt. Willin and net team and their patient caregiver presentations are...

https://connect.mayoclinic.org/comment/673631/

Discussion: Feeling discouraged and too many specialists

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 21, 2022

Hi there! No, I had the middle lobe of my right lung removed surgically in 2019....

https://connect.mayoclinic.org/comment/1243372/

Discussion: DIPNECH diagnosis. Has anyone had radiation?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 23 1:22am

Hello @ghassan and welcome to Mayo Connect. I appreciate your sharing about your lung carcinoid. While...

https://connect.mayoclinic.org/comment/134274/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 25, 2018

Hi, I was diagnosed with carcinoid tumor in my lower left lung, after ct scans, bronchoscopy...

https://connect.mayoclinic.org/comment/975118/

Discussion: Anyone with carcinoid tumors in lung and stomach?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 4, 2023

@annie12345 After you read thru all the posts, let me know what questions you still have....

https://connect.mayoclinic.org/comment/1329039/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 17 10:13am

No. He has pnets. I know lung nets are a bit of different animal. In addition...

https://connect.mayoclinic.org/comment/1329069/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 17 10:38am

Hello @blm1024 and welcome to the NETs group on Mayo Connect. We have several discussion groups...

https://connect.mayoclinic.org/comment/1350220/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 17 10:15am

@pammy229 I appreciate the added information on your recent lung NET diagnosis. I'll invite some other...

https://connect.mayoclinic.org/comment/1198262/

Discussion: Any advice for someone recently diagnosed with NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 27, 2024

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