Neuroendocrine Tumors (NETs): Discussions

@rogo @triveraderubio @bcraft @bluedane @amd12 @tatteesmom3 @pattirushing @hopeful33250 @larenn @colleenyoung @kristen3 This is an exciting study...

https://connect.mayoclinic.org/comment/871424/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 3, 2023

Hello @ocean3131, as @hopeful33250 mentioned, I have moved your discussion and combined it with an existing...

https://connect.mayoclinic.org/comment/987664/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 28, 2023

I was diagnosed with a lung disorder - DIPNECH. I’m looking to connect with others who...

https://connect.mayoclinic.org/comment/987590/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 28, 2023

Is the endometrium cancer NETs? If not, I’m not sure how they would be related unless...

https://connect.mayoclinic.org/comment/1223490/

Discussion: Relationship between endometrium cancer and DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 28 12:14am

Hello @mlbschuler, I moved your discussion and combined it with an existing discussion titled, "Neuroendocrine cells...

https://connect.mayoclinic.org/comment/1004013/

Discussion: Neuroendocrine cells in Breast and Lungs DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 26, 2024

It went really well, thank you! It appears that I have DIPNECH and NETs. He is...

https://connect.mayoclinic.org/comment/1024730/

Discussion: Neuroendocrine cells in Breast and Lungs DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 29, 2024

Hello @aulynn and welcome to the NETs support group on Mayo Connect. I'm so glad that...

https://connect.mayoclinic.org/comment/1161114/

Discussion: New DIPNECH diagnosis, need advice on doctors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 22, 2024

Hello @tatteesmom3, It is good to hear from you again. I can understand your frustration at...

https://connect.mayoclinic.org/comment/844670/

Discussion: What do I need to know about NETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 17, 2023

I had no idea that DIPNECH did not have any somatostatin receptors. Thanks for sharing.

https://connect.mayoclinic.org/comment/1361394/

Discussion: Recently diagnosed with a NET in my middle lobe of my right lung.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 1 11:02am

I too am in Australia Qld. Like you I have dipnech, hypertension and AF among other...

https://connect.mayoclinic.org/comment/1254944/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 10 3:52pm

Hello @rachismarie, I'm glad that you found Mayo Connect. We have a number of members who...

https://connect.mayoclinic.org/comment/1181711/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 29, 2024

Hi @amd12 -- Are you still using this message board? Just wondering what the status of...

https://connect.mayoclinic.org/comment/867413/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 27, 2023

I was just diagnosed with DIPNECH, what can I expect?

https://connect.mayoclinic.org/comment/1003522/

Discussion: Neuroendocrine cells in Breast and Lungs DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 25, 2024

In addition to sharing more detail about your DIPNECH symptoms, in what way do you not...

https://connect.mayoclinic.org/comment/1108016/

Discussion: DIPNECH (diffuse idiopathic pulmonary neuroendocrine cell hyperplasia)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 19, 2024

Hi, another DIPNECH ‘club’ member here. My diagnosis was late 2023 and I had an ablation...

https://connect.mayoclinic.org/comment/1392689/

Discussion: Biopsy showed DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: 1 day ago

Hi @josey1 I responded to your other post as I have DIPNECH, lung NETs and breast...

https://connect.mayoclinic.org/comment/906759/

Discussion: Neuroendocrine cells in Breast and Lungs DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 3, 2023

@rachismarie Sorry to hear about all you’re going thru. I understand how scary it can all...

https://connect.mayoclinic.org/comment/1181823/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 29, 2024

@sadragliz Welcome to the DIPNECH club. Are you being followed by a NETs team?

https://connect.mayoclinic.org/comment/1288226/

Discussion: I am 75 and have carcinoid tumors NET in lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 23 12:20pm

Hello @mimi206 and welcome to the DIPNECH support group on Mayo Connect, I would like to...

https://connect.mayoclinic.org/comment/1250451/

Discussion: DIPNECH diagnosis. Has anyone had radiation?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 4 3:25pm

@mcohan Most doctors, even radiologists, pulmonologists and oncologists haven't even heard of DIPNECH. I recently went...

https://connect.mayoclinic.org/comment/965599/

Discussion: Anyone had surgery to remove typical carcinoids of the lung?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 16, 2023

Neuroendocrine Tumors (NETs) Support Group