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MAC & Bronchiectasis Support Group

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Discussions (89)
Four years with Bronchiectasis, no major systems.
My lungs are getting worse per CTs. Pulmonologist gave me vest, to use twice a day. I am 77 years old, no major symptoms, ache...
Support Group: MAC & Bronchiectasis
Last active: Nov 2, 2023
Anyone taken the Big 3 on every other day dosing schedule?
My ID Dr is thinking about skipping a day between antibotics since they stay in the system 24 hrs or more to make treatment a...
Support Group: MAC & Bronchiectasis
Last active: Jun 16, 2024
Ideas for getting mucus Out
Had my CT scan yesterday there has been an increase in mucus compared to 6months ago. I also been diagnosed with pseudomonosis. (Which I inhaled...
Support Group: MAC & Bronchiectasis
Last active: Jun 8 9:38pm
Trying to cope with bronchiectasis
I am a 73 year old female who has been diagnosed with bronchiectasis in the last year. I have seen 3 pulmonogists including one at...
Support Group: MAC & Bronchiectasis
Last active: Oct 3, 2023
The “wages” of success.
I often have a particularly productive evening neb/vest session. A few minutes in, I begin morphing into a coughing, spitting, sneezing, mucous machine which, from...
Support Group: MAC & Bronchiectasis
Last active: Apr 6, 2021
Change in mucus production
A couple years ago, I was diagnosed with Mac after several sputum cultures. I’ve been hesitant to go on the big three since then, however,...
Support Group: MAC & Bronchiectasis
Last active: Jul 14, 2024
Does anyone know a good pulmonologist in Connecticut
I spent 2 hours trying to find a pulmonologist that knows about bronchiectasis and Mac, I have no clue. My current pulmonologist canceled my 6...
Support Group: MAC & Bronchiectasis
Last active: Aug 4, 2023
Bronchiectasis , MAC nebulizing and airway clearance equipment
Please advise- how do you organize the airway clearance space. I have boxes with levalbuterol, sodium chloride ( 3 and 7. %), nebulizer, vest compressor...
Support Group: MAC & Bronchiectasis
Last active: Nov 13, 2024
Newly diagnosed with MAI, to start antibiotics or not
Started my journey in 2019, first bronchoscopy found Streptococcus salivarius, 10 days of antibiotics and cough was gone. After a ct scan, two years later,...
Support Group: MAC & Bronchiectasis
Last active: Jun 22, 2024
Mac with Bronchiectasis and collapsed middle lobe
I was recently confirmed to have Mac lung disease and bronchiectasis in the middle lobe of my right lung which is also collapsed. I have...
Support Group: MAC & Bronchiectasis
Last active: Dec 15, 2022
Bronchiectasis and lung infection
I have Bronchiectasis, never been told I have MAC or NMT , I am on 3 inhalents by nebulizer and do ACT and have cystic...
Support Group: MAC & Bronchiectasis
Last active: Sep 10, 2024
Dry Heaving and Airway Clearance
Does anyone get dry heaves when doing airway clearance? I caught a cold two weeks ago and have been experiencing the usual increase in coughing,...
Support Group: MAC & Bronchiectasis
Last active: Apr 21 4:48pm
Has anyone had green mucus for over a year?
I was diagnosed with BE about 10 years ago. Never did anything about it. May 2023 I caught a really bad lower respiratory virus and...
Support Group: MAC & Bronchiectasis
Last active: May 25 7:20pm
Deciding to discontinue meds
I had an initial appointment with a new provider today as my prior ID physician left his practice. Upon reviewing my records, in particular the...
Support Group: MAC & Bronchiectasis
Last active: Jul 12 12:50pm
Has anyone taken the Big 3 Daily?
I have had bronchiectasis for 7 years....Also diagnosed with Mac then too...Pulmonary Doctor put me on the Big 3 right away......Took 3 times a week...
Support Group: MAC & Bronchiectasis
Last active: Sep 9, 2022
Anyone Referred To National Jewish Health Due To Intolerance To Meds?
I was diagnosed with MAC in August 2022 and put on the big 3 3x per week. Initially I was okay other than gastro problems...
Support Group: MAC & Bronchiectasis
Last active: Jul 29 6:09pm
Balancing Safety and Social LIfe
Have your doctors given you guidelines regarding how to manage staying safe with NTM and also have some social life? Prior to COVID, I was...
Support Group: MAC & Bronchiectasis
Last active: May 2, 2023
need help: how to cut back time spent managing BE and MAC
I spend much more time than I'd like managing bronchiectasis and MAC. I am taking Azithromycin and Ethambutol and will start Clofazimine tomorrow. I desperately...
Support Group: MAC & Bronchiectasis
Last active: Oct 7 8:03am
Managing coughing fits in public.
Does anyone have any strategies for attempting to control coughing fits in public places? I am thinking most specifically about flying, or other situations when...
Support Group: MAC & Bronchiectasis
Last active: Mar 23, 2023
Severity of mucus accumulation
Can anyone explain to me their severity of mucus accumulation? Mine seems to go in cycles, and it goes like this . I’ll seem to...
Support Group: MAC & Bronchiectasis
Last active: Oct 24, 2024