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MAC & Bronchiectasis Support Group

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Discussions (95)
Four years with Bronchiectasis, no major systems.
My lungs are getting worse per CTs. Pulmonologist gave me vest, to use twice a day. I am 77 years old, no major symptoms, ache...
Support Group: MAC & Bronchiectasis
Last active: Nov 2, 2023
Need drug to suppress RA that does not flare up my BE or MAI.
Have BE and MAI, both stable, for 2 years. No major flare up with Mullein,NAC and vest. 2 months ago RA appears, on steroids for...
Support Group: MAC & Bronchiectasis
Last active: Nov 10, 2025
Volara-phobia
I have BE and MAC and have some difficulty coughing up sputum. Until recently I was using a percussion vest but stopped after it became...
Support Group: MAC & Bronchiectasis
Last active: Sep 29, 2025
Anyone taken the Big 3 on every other day dosing schedule?
My ID Dr is thinking about skipping a day between antibotics since they stay in the system 24 hrs or more to make treatment a...
Support Group: MAC & Bronchiectasis
Last active: Jun 16, 2024
Monaghan Med & Noah Greenspan webinar 3/18 6 pm ET
Wow! Can you believe how many webinars there have been lately? Before you hit webinar overload, here is one you won’t want to miss, sponsored...
Support Group: MAC & Bronchiectasis
Last active: 5 days ago
Ideas for getting mucus Out
Had my CT scan yesterday there has been an increase in mucus compared to 6months ago. I also been diagnosed with pseudomonosis. (Which I inhaled...
Support Group: MAC & Bronchiectasis
Last active: Jun 8, 2025
Trying to cope with bronchiectasis
I am a 73 year old female who has been diagnosed with bronchiectasis in the last year. I have seen 3 pulmonogists including one at...
Support Group: MAC & Bronchiectasis
Last active: Oct 3, 2023
Change in mucus production
A couple years ago, I was diagnosed with Mac after several sputum cultures. I’ve been hesitant to go on the big three since then, however,...
Support Group: MAC & Bronchiectasis
Last active: Jul 14, 2024
Bronchiectasis , MAC nebulizing and airway clearance equipment
Please advise- how do you organize the airway clearance space. I have boxes with levalbuterol, sodium chloride ( 3 and 7. %), nebulizer, vest compressor...
Support Group: MAC & Bronchiectasis
Last active: Nov 13, 2024
Does anyone know a good pulmonologist in Connecticut
I spent 2 hours trying to find a pulmonologist that knows about bronchiectasis and Mac, I have no clue. My current pulmonologist canceled my 6...
Support Group: MAC & Bronchiectasis
Last active: Aug 4, 2023
Newly diagnosed with MAI, to start antibiotics or not
Started my journey in 2019, first bronchoscopy found Streptococcus salivarius, 10 days of antibiotics and cough was gone. After a ct scan, two years later,...
Support Group: MAC & Bronchiectasis
Last active: Jun 22, 2024
Just started Smartvest therapy last night
I just got a smartvest. I don’t have guidelines yet for when to use it, but did for 15 minutes last night and 20 for...
Support Group: MAC & Bronchiectasis
Last active: Nov 19, 2025
Mac with Bronchiectasis and collapsed middle lobe
I was recently confirmed to have Mac lung disease and bronchiectasis in the middle lobe of my right lung which is also collapsed. I have...
Support Group: MAC & Bronchiectasis
Last active: Dec 15, 2022
New Podcasts--NTM & Bronchiectasis--Drs Swenson & Drummond
NTMTalk.com is a podcast series dedicated to nontuberculous mycobacterial lung disease and bronchiectasis. Dr. Wendi Drummond, an infectious disease expert, and Dr. Colin Swenson, a...
Support Group: MAC & Bronchiectasis
Last active: Dec 28, 2025
Bronchiectasis and lung infection
I have Bronchiectasis, never been told I have MAC or NMT , I am on 3 inhalents by nebulizer and do ACT and have cystic...
Support Group: MAC & Bronchiectasis
Last active: Sep 10, 2024
Dry Heaving and Airway Clearance
Does anyone get dry heaves when doing airway clearance? I caught a cold two weeks ago and have been experiencing the usual increase in coughing,...
Support Group: MAC & Bronchiectasis
Last active: Apr 21, 2025
resentment about restrictions and effort for managing BE
How do you cope with resentment about the lifestyle modifications BE imposes? If I felt healthy, it would help mitigate my resentment. But I do...
Support Group: MAC & Bronchiectasis
Last active: Nov 13, 2025
Has anyone had green mucus for over a year?
I was diagnosed with BE about 10 years ago. Never did anything about it. May 2023 I caught a really bad lower respiratory virus and...
Support Group: MAC & Bronchiectasis
Last active: May 25, 2025
Deciding to discontinue meds
I had an initial appointment with a new provider today as my prior ID physician left his practice. Upon reviewing my records, in particular the...
Support Group: MAC & Bronchiectasis
Last active: Jul 12, 2025
Has anyone taken the Big 3 Daily?
I have had bronchiectasis for 7 years....Also diagnosed with Mac then too...Pulmonary Doctor put me on the Big 3 right away......Took 3 times a week...
Support Group: MAC & Bronchiectasis
Last active: Sep 9, 2022