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MAC & Bronchiectasis Support Group

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Discussions (89)
coughing alot again
My husband is nebulizing and using the vest daily. His coughing has increased quite a bit and I am wondering what is causing that. Any...
Support Group: MAC & Bronchiectasis
Last active: Jan 31 11:25pm
Need drug to suppress RA that does not flare up my BE or MAI.
Have BE and MAI, both stable, for 2 years. No major flare up with Mullein,NAC and vest. 2 months ago RA appears, on steroids for...
Support Group: MAC & Bronchiectasis
Last active: 6 days ago
Flare up
I am having a bad flare up, probably pseudomonas showing it’s vicious side. Last Thursday, before the holiday I had mild sinus infection and I...
Support Group: MAC & Bronchiectasis
Last active: Jun 4, 2024
Cough & Performance Anxiety
I am a professional musician. MAC and bronchiectasis is relatively new to me. I started the compression vest in December and have been nebulizing 2x...
Support Group: MAC & Bronchiectasis
Last active: May 25, 2023
Confused about saline
I was diagnosed with bronchiectasis and MAC and am relatively new to this whole battle. I have a constant cough which is much worse at...
Support Group: MAC & Bronchiectasis
Last active: Sep 17, 2024
What are the stages and symptoms of Bronchiectasis?
I was diagnosed with bronchiectasis about the time that Covid hit the US and the pulmonologist are overworked, so I have lots of unanswered questions....
Support Group: MAC & Bronchiectasis
Last active: Sep 3 9:24am
Chronic cough
At 63 years old, I developed symptoms in 2015, and was diagnosed with bronchiectasis in 2016 with MAC as the culprit. I was put on...
Support Group: MAC & Bronchiectasis
Last active: Sep 29 6:10pm
Post Covid Care
I have bronchiectasis with Pseudomanosis Well after all these years of not getting Covid. We got it on a trip to Tucson. We wore masks...
Support Group: MAC & Bronchiectasis
Last active: Sep 7 9:59am
Just started Smartvest therapy last night
I just got a smartvest. I don’t have guidelines yet for when to use it, but did for 15 minutes last night and 20 for...
Support Group: MAC & Bronchiectasis
Last active: 7 hours ago
Helpful Devices for MAC
Has anyone purchased and used Molekule, an air cleaner, It is quite expensive, around $700. I've seen it advertised but it's too pricey unless it...
Support Group: MAC & Bronchiectasis
Last active: Aug 13, 2019
Unable to produce sputum
I have asthma, bronchiectasis , mild emphysema, and undetermined Mac. I cannot produce a sputum sample. I nebulize levabuterol and saline 3%. I have a...
Support Group: MAC & Bronchiectasis
Last active: Feb 13 11:23am
Should I worry if I can’t bring up mucus every day when doing ACT?
I do the compression vest, nebulizer 7% saline 2x a day and postural drainage 1x a day. Some days I am able to clear a...
Support Group: MAC & Bronchiectasis
Last active: May 6, 2023
Volara-phobia
I have BE and MAC and have some difficulty coughing up sputum. Until recently I was using a percussion vest but stopped after it became...
Support Group: MAC & Bronchiectasis
Last active: Sep 29 2:26pm
resentment about restrictions and effort for managing BE
How do you cope with resentment about the lifestyle modifications BE imposes? If I felt healthy, it would help mitigate my resentment. But I do...
Support Group: MAC & Bronchiectasis
Last active: 2 days ago
He cant stop coughing.
My husband cant get rid of this cough and it is really draining him. He has tried nebulizing w sodium and then wearing the vest....
Support Group: MAC & Bronchiectasis
Last active: Feb 16 7:44pm
Remission
Several months ago I reported going into remission from obvious symptoms of MAC and BRONCH. It’s been months since I last nebulized, even longer since...
Support Group: MAC & Bronchiectasis
Last active: Apr 19, 2023
Tight chest and chest pain
The last few days I experience chest pain and tight chest. I decreased the intensity of my airway clearance- stopped using a vest and switched...
Support Group: MAC & Bronchiectasis
Last active: Aug 4 8:05am
Smartvest (2) & wrap (1) Free too large for me.
I guessed at the size when 1st ordered the Smart Vest. I was sent a Large which was too large. Then I was sent medium...
Support Group: MAC & Bronchiectasis
Last active: May 14, 2024
Budesonide nabulizing
Good morning. My pulmonologist changed albuterol to levalbuterol inhaler because of heart palpitations and high pulse. I must say it helps to certain degree. She...
Support Group: MAC & Bronchiectasis
Last active: May 17 6:50am
Airway clearance after abdominal surgery
First of all, thank you for all the ports and information in this group. I've been loitering for several months and have really gained valuable...
Support Group: MAC & Bronchiectasis
Last active: Oct 12, 2024