MAC & Bronchiectasis: Discussions | Page 4

@sueinmn Thank you Sue and other writers, for the valuable advice in this thread. I have...

https://connect.mayoclinic.org/comment/1443269/

Discussion: Gardening with Bronch and MAC

Support Group: MAC & Bronchiectasis

Posted: Nov 20 12:28pm

Thank you for your reply. Please message me. I have an active pseudomonas infection since the...

https://connect.mayoclinic.org/comment/1292526/

Discussion: Volara and Medicare

Support Group: MAC & Bronchiectasis

Posted: Apr 29 8:51am

I have been through a couple with prescriptions. Am presently using the Hillrom Volara system which...

https://connect.mayoclinic.org/comment/846823/

Discussion: How does bronchiectasis progress?

Support Group: MAC & Bronchiectasis

Posted: Apr 21, 2023

I have been on 7% saline now twice daily for about 2 weeks. Starting to feel...

https://connect.mayoclinic.org/comment/620350/

Discussion: 7% saline continues to deliver.

Support Group: MAC & Bronchiectasis

Posted: Jul 27, 2021

Yes I got Volara system in late fall after NJH doctor’s recommendation and Hillrom’s appeal to...

https://connect.mayoclinic.org/comment/1198560/

Discussion: Any suggestions for expelling tenacioius mucus plugs?

Support Group: MAC & Bronchiectasis

Posted: Dec 28, 2024

For me it does however I suffer from side effects. My first 4 months, my breathing...

https://connect.mayoclinic.org/comment/934289/

Discussion: Volara and Medicare

Support Group: MAC & Bronchiectasis

Posted: Sep 22, 2023

I just had my appt. with my pulmonologist and a CT scan. He showed me the...

https://connect.mayoclinic.org/comment/642885/

Discussion: Good News

Support Group: MAC & Bronchiectasis

Posted: Oct 7, 2021

I wondered myself about the detriment of skipping nebulizing. I am supposed to do it twice...

https://connect.mayoclinic.org/comment/673203/

Discussion: The Wages of a missed Neb session.

Support Group: MAC & Bronchiectasis

Posted: Jan 20, 2022

The volara gets in pretty deeply to the lungs. It’s also a quick therapy. Cons are...

https://connect.mayoclinic.org/comment/1290166/

Discussion: Smart Vest…Possible alternative

Support Group: MAC & Bronchiectasis

Posted: Apr 26 8:08am

If you are having a hard time acquiring a vest, you may need to see another...

https://connect.mayoclinic.org/comment/1398076/

Discussion: need help: how to cut back time spent managing BE and MAC

Support Group: MAC & Bronchiectasis

Posted: Sep 21 12:35pm

@scoop Thanks for the comments. Yes, my doc and I discussed Brinsupri and I'm expecting the...

https://connect.mayoclinic.org/comment/1400649/

Discussion: Volara-phobia

Support Group: MAC & Bronchiectasis

Posted: Sep 24 5:35pm

Hmmm, if my regimen was working, bronchiectasis stable and no or few exacerbations in a year,...

https://connect.mayoclinic.org/comment/642919/

Discussion: Good News

Support Group: MAC & Bronchiectasis

Posted: Oct 7, 2021

I am treated at National Jewish Health in Denver. My understanding is that if you visit...

https://connect.mayoclinic.org/comment/1177439/

Discussion: A quirky manifestation of bronchiectasis

Support Group: MAC & Bronchiectasis

Posted: Nov 21, 2024

Hello! I have bronchiectasis without MAC at this time. My pulmonologist started me on a nebulizer...

https://connect.mayoclinic.org/comment/845895/

Discussion: How does bronchiectasis progress?

Support Group: MAC & Bronchiectasis

Posted: Apr 19, 2023

Happy2023 honestly I don’t think it makes a difference. I hardly ever expectorate anything during airway...

https://connect.mayoclinic.org/comment/1291720/

Discussion: Volara and Medicare

Support Group: MAC & Bronchiectasis

Posted: Apr 28 7:49am

I just now saw your reply about your using the Volara system. And I thank you...

https://connect.mayoclinic.org/comment/1170857/

Discussion: How does bronchiectasis progress?

Support Group: MAC & Bronchiectasis

Posted: Nov 9, 2024

I was diagnosed with bronchiectasis and my pulmomologist felt I had MAC from my CT scan....

https://connect.mayoclinic.org/comment/713222/

Discussion: Why do daily airway clearance?

Support Group: MAC & Bronchiectasis

Posted: Jun 1, 2022

This is just a thought but it seems like hospital neb supplies generally are used single...

https://connect.mayoclinic.org/comment/1332763/

Discussion: Has anyone tried an Aerogen Solo nebulizer?

Support Group: MAC & Bronchiectasis

Posted: Jun 22 12:57pm

I have Bronchiectasis and Pseudomonas. I am treated at National Jewish Health in Denver since November...

https://connect.mayoclinic.org/comment/1170859/

Discussion: Have MAC with pseudemonas

Support Group: MAC & Bronchiectasis

Posted: Nov 9, 2024

Even though I was sensitive to most antibiotics, Cipro did not get rid of my Pseudomonas....

https://connect.mayoclinic.org/comment/1175161/

Discussion: Have MAC with pseudemonas

Support Group: MAC & Bronchiectasis

Posted: Nov 17, 2024

MAC & Bronchiectasis Support Group