7% saline continues to deliver.

Posted by thumperguy @thumperguy, Jun 25 11:36pm

Here I am, again singing the praises of 7% saline solution, the introduction of which into my daily lung treatment, correlates convincingly with the disappearance of predictable twice yearly episodes of acute (febrile) bronchitis requiring antibiotic treatment; nineteen months now without a flare up. My apologies to any English teachers on the forum; can’t seem to learn when to end a sentence. Don

Really great to hear these stories. I changed from 3% to 7% last year and no problem tolerating it. After the latest round of Tobi treatments early this month I set up my nebulizer with 7%. It was like I had dropped a bomb into my throat. Yikes. Just could not tolerate it. Went back to 3%–no problem. Hoping I will be able to get back to 7% at some point. Even though I contracted Pseudomonas I feel 7% is better. My repeat pseudomonas is, most likely, never completely eradicated (just surpressed) so it will grow back again. Praying for us all.

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Fdixon- did you try rinsing your mouth and gargling after nebulizing? I found that rinsing my mouth and gargling really helped with a dry mouth and sore throat after nebulizing. I think I read about it on this forum.

Related to that, I have read that nebulizing with 7% is hard on tooth enamel and rinsing your mouth with water or a mouthwash such as Biotene is really helpful. Has anyone heard about that side effect of the 7% saline?

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@fdixon63

Really great to hear these stories. I changed from 3% to 7% last year and no problem tolerating it. After the latest round of Tobi treatments early this month I set up my nebulizer with 7%. It was like I had dropped a bomb into my throat. Yikes. Just could not tolerate it. Went back to 3%–no problem. Hoping I will be able to get back to 7% at some point. Even though I contracted Pseudomonas I feel 7% is better. My repeat pseudomonas is, most likely, never completely eradicated (just surpressed) so it will grow back again. Praying for us all.

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Hi –
I found Tobi to be immensely irritating to my throat. It was before my 7% days, but for a few weeks afterward, even cold air or drinks above lukewarm were intolerable. This healed after a couple months. Right now, allergies are making my throat miserable, so I had to drop to 3% saline – I'll ramp up by mixing 7% and 3% half and half for a few days before I jump back to full 7%.
Sue

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I had thought about mixing the two but just had not tried it yet.Great suggestion. Thanks.

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@kathyhg

Fdixon- did you try rinsing your mouth and gargling after nebulizing? I found that rinsing my mouth and gargling really helped with a dry mouth and sore throat after nebulizing. I think I read about it on this forum.

Related to that, I have read that nebulizing with 7% is hard on tooth enamel and rinsing your mouth with water or a mouthwash such as Biotene is really helpful. Has anyone heard about that side effect of the 7% saline?

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Hi Kathy. I did gargle when nebbing Tobi but backed off after treatments over. Thanks for the info.

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@sueinmn

Hi –
I found Tobi to be immensely irritating to my throat. It was before my 7% days, but for a few weeks afterward, even cold air or drinks above lukewarm were intolerable. This healed after a couple months. Right now, allergies are making my throat miserable, so I had to drop to 3% saline – I'll ramp up by mixing 7% and 3% half and half for a few days before I jump back to full 7%.
Sue

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That sounds mighty rough. “An ammonia-soaked Brillo pad dropped down my throat.” That’s how I’d characterize my first encounter with 7% saline.

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I am grateful for 7%…I am presently off the cocktail of 3 drugs…and nebulizing 7% daily in place. At NJH to try to induce a sputum sample (which was unsuccessful after 5 days) the respiratory therapist used 10% (in the booth)…the exercise was physically draining and depressing (no sputum). After several bad drug reactions…the saline is a good alternative for me. My throat seems to tolerate…although it does cause me to choke at some point…I control that by slowing down on my exhale, holding breath a few seconds (Aerobika), and using the setting that is “not continuous flow” (as therapist taught me. On the Aerobika it appears as a triangle with little bumps…that cuts down on the continuous assault of saline and choking. Also lots of ginger tea and throat coat tea..plus almost drinking 6 pints of water (plus teas) daily.
I hope to have the success others have had😎and remain flare free from infections and meds.
All stay strong and healthy.
Regina

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@sueinmn

Hi –
I found Tobi to be immensely irritating to my throat. It was before my 7% days, but for a few weeks afterward, even cold air or drinks above lukewarm were intolerable. This healed after a couple months. Right now, allergies are making my throat miserable, so I had to drop to 3% saline – I'll ramp up by mixing 7% and 3% half and half for a few days before I jump back to full 7%.
Sue

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New to this forum & need to ask what Tobi is.

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Has anyone tried nebulizing with glutathione? In addition to saline? My naturopath recommended it to me. My respirologist would not comment on it but said to continue nebulizing with 7% twice a day if I decide to try it.
Does anyone have any experience with this and, if so, was it helpful?

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I see there are some older conversations here about glutathione, which I should have read before posting this question. However, I’m still interesting in any other comments/suggestions if there are any out there.
Thanks,

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@montsy

New to this forum & need to ask what Tobi is.

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Tobi is our nickname for the step-up drug Tobramycin, used in the nebulizer to knock out stubborn pseudomonas infections.
Sorry to by cryptic!
Sue

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@kathyhg

I see there are some older conversations here about glutathione, which I should have read before posting this question. However, I’m still interesting in any other comments/suggestions if there are any out there.
Thanks,

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Thank you for helping me learn the terms.

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