MAC & Bronchiectasis Support Group

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Comments (123)

Hello Ireland! I am very thin and went from 115 to 99lbs when first diagnosed. For...

https://connect.mayoclinic.org/comment/786080/

Discussion: Tolerating medication

Support Group: MAC & Bronchiectasis

Posted: Dec 18, 2022

Hi, I am new to this forum. I started the Big 3 around two months ago...

https://connect.mayoclinic.org/comment/780586/

Discussion: How MAC patients have tolerated taking the 3 antibiotics

Support Group: MAC & Bronchiectasis

Posted: Dec 3, 2022

When I began the Big 3 in August 2021, I took all three one hour before...

https://connect.mayoclinic.org/comment/695780/

Discussion: Taking All 3 At The Same Time Every Day?

Support Group: MAC & Bronchiectasis

Posted: Apr 3, 2022

^ This. Dr Huitt from NJH recommends this very regimen. She said it makes it easy...

https://connect.mayoclinic.org/comment/649143/

Discussion: Starting MAC treatment with "big three" drugs: What to expect?

Support Group: MAC & Bronchiectasis

Posted: Oct 28, 2021

Yes, I take VSL#3, 2capsules daily. I find that it does help my stomach and IBS...

https://connect.mayoclinic.org/comment/632661/

Discussion: Probiotics for MAC, MAI, MABS: Do you take them daily?

Support Group: MAC & Bronchiectasis

Posted: Sep 4, 2021

@n4seth The schedule for taking the Big 3 has to be what is best for you...

https://connect.mayoclinic.org/comment/305274/

Discussion: Just started big 3 for MAC: Questions about dosing and more

Support Group: MAC & Bronchiectasis

Posted: May 20, 2020

@hayn3705 I've been on the Big 3 since September 2018. A couple of months ago my...

https://connect.mayoclinic.org/comment/310217/

Discussion: Could Mac treatment cause food to taste bad?

Support Group: MAC & Bronchiectasis

Posted: May 10, 2020

I’ve been on clofazimine for 3 months now. Bothered my stomach for the first month or...

https://connect.mayoclinic.org/comment/1519290/

Discussion: Have you had a wedge resection?

Support Group: MAC & Bronchiectasis

Posted: Mar 4 9:15am

Hi there, I cannot remember what dosage I was on but I took the big 3...

https://connect.mayoclinic.org/comment/1487426/

Discussion: MAC Medication Side Effects

Support Group: MAC & Bronchiectasis

Posted: Jan 20 1:58pm

@shirleyrr0 Sorry to hear you're feeling so poorly. When I was initially prescribed the Big 3,...

https://connect.mayoclinic.org/comment/1419580/

Discussion: Suggestions on taking the Big 3

Support Group: MAC & Bronchiectasis

Posted: Oct 20, 2025

@linda1334 When I read "...now my doctor put me on azithromycin and rifabutin every day along...

https://connect.mayoclinic.org/comment/1330381/

Discussion: Anyone else have really bad gastro side effects from Azithromycin?

Support Group: MAC & Bronchiectasis

Posted: Jun 19, 2025

Hi Laura. I started the Big 3 three times a week in February, had a rocky...

https://connect.mayoclinic.org/comment/1307576/

Discussion: Did your MAC symptoms improve once you started Big3?

Support Group: MAC & Bronchiectasis

Posted: May 19, 2025

Hi there don’t stress! I started the big 3 4 months ago. I took them all...

https://connect.mayoclinic.org/comment/1304248/

Discussion: Penn Medicine/Rifampin

Support Group: MAC & Bronchiectasis

Posted: May 14, 2025

Oh dear! @kellykvent welcome to this forum. I’m so glad you found us now! If the...

https://connect.mayoclinic.org/comment/1269105/

Discussion: New to Forum & new to treatment what 2 expect

Support Group: MAC & Bronchiectasis

Posted: Mar 29, 2025

I found out I had Bronchiectasis by accident when my cardiologist did a CT scan to...

https://connect.mayoclinic.org/comment/1221195/

Discussion: If medication worked for you, did you begin to feel better right away?

Support Group: MAC & Bronchiectasis

Posted: Jan 25, 2025

melb06, I was diagnosed with MAC and BE early this year. I went through a number...

https://connect.mayoclinic.org/comment/1187205/

Discussion: Newly diagnosed and scared

Support Group: MAC & Bronchiectasis

Posted: Dec 9, 2024

@cindyrue, Hi Cindy. I don't have any personal experience with mai that has disseminated to other...

https://connect.mayoclinic.org/comment/215517/

Discussion: New Diagnosis of MAC/MAI & I'm scared

Support Group: MAC & Bronchiectasis

Posted: Mar 21, 2019

Hi Phyllistamara! I have been on these drugs for over 4 months now - started on...

https://connect.mayoclinic.org/comment/65863/

Discussion: (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

Support Group: MAC & Bronchiectasis

Posted: Feb 6, 2019

@xfirerose Hi. If you were referred to UCLA you can't be too far from me. I...

https://connect.mayoclinic.org/comment/232144/

Discussion: Daily dosage of Rifampin Ethanbutol and Azithromycin

Support Group: MAC & Bronchiectasis

Posted: Dec 22, 2018

Hello Joanne & skylarkny - I too am an active young senior, and was recently (June...

https://connect.mayoclinic.org/comment/65637/

Discussion: (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

Support Group: MAC & Bronchiectasis

Posted: Dec 9, 2018

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