MAC & Bronchiectasis Support Group

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Comments (120)

@hayn3705 I've been on the Big 3 since September 2018. A couple of months ago my...

https://connect.mayoclinic.org/comment/310217/

Discussion: Could Mac treatment cause food to taste bad?

Support Group: MAC & Bronchiectasis

Posted: May 10, 2020

@cindyrue, Hi Cindy. I don't have any personal experience with mai that has disseminated to other...

https://connect.mayoclinic.org/comment/215517/

Discussion: New Diagnosis of MAC/MAI & I'm scared

Support Group: MAC & Bronchiectasis

Posted: Mar 21, 2019

Hi Phyllistamara! I have been on these drugs for over 4 months now - started on...

https://connect.mayoclinic.org/comment/65863/

Discussion: (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

Support Group: MAC & Bronchiectasis

Posted: Feb 6, 2019

@xfirerose Hi. If you were referred to UCLA you can't be too far from me. I...

https://connect.mayoclinic.org/comment/232144/

Discussion: Daily dosage of Rifampin Ethanbutol and Azithromycin

Support Group: MAC & Bronchiectasis

Posted: Dec 22, 2018

Hello Joanne & skylarkny - I too am an active young senior, and was recently (June...

https://connect.mayoclinic.org/comment/65637/

Discussion: (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

Support Group: MAC & Bronchiectasis

Posted: Dec 9, 2018

@onana Welcome, I wish you didn't have to be here but we all are here to...

https://connect.mayoclinic.org/comment/212897/

Discussion: about to begin treatment for MAC

Support Group: MAC & Bronchiectasis

Posted: Aug 20, 2018

@soflo Hi, I read your post to Terri. I am new too. I just started the...

https://connect.mayoclinic.org/comment/64595/

Discussion: (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

Support Group: MAC & Bronchiectasis

Posted: Jun 10, 2018

@rmason, Hi Roxanne. @jkiemen (Jo Ann) might have some input for you. I think she may...

https://connect.mayoclinic.org/comment/64549/

Discussion: (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

Support Group: MAC & Bronchiectasis

Posted: Jun 2, 2018

@gaelawree welcome to this group! I am Nick an I have bronchiectasis and had a MAC!...

https://connect.mayoclinic.org/comment/64349/

Discussion: (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

Support Group: MAC & Bronchiectasis

Posted: May 20, 2018

Hello again. Many, many thanks for all the responses to my post. The insights shared were...

https://connect.mayoclinic.org/comment/180309/

Discussion: Bronchiectasis: Understanding symptoms

Support Group: MAC & Bronchiectasis

Posted: Jan 12, 2018

Thanks Terri M. have been felling well since I'm off on the big 3 but about...

https://connect.mayoclinic.org/comment/63366/

Discussion: (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

Support Group: MAC & Bronchiectasis

Posted: Nov 8, 2017

Cid120....I went there in NJH in January 2017 for a second opinion for the MAC that...

https://connect.mayoclinic.org/comment/164339/

Discussion: Possible causes of MAC/MAI Re-Infections

Support Group: MAC & Bronchiectasis

Posted: Aug 31, 2017

Hi all, it's Jen Taylor, I haven't been in touch with you via "connect" for 2...

https://connect.mayoclinic.org/comment/61256/

Discussion: (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

Support Group: MAC & Bronchiectasis

Posted: May 27, 2017

Hello Jan, I can offer my experience with MAC. Was misdiagnosed for 2-3 years (erroneously treated...

https://connect.mayoclinic.org/comment/58458/

Discussion: (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

Support Group: MAC & Bronchiectasis

Posted: Mar 29, 2016

@shirleyrr0 Sorry to hear you're feeling so poorly. When I was initially prescribed the Big 3,...

https://connect.mayoclinic.org/comment/1419580/

Discussion: Suggestions on taking the Big 3

Support Group: MAC & Bronchiectasis

Posted: Oct 20, 2025

@linda1334 When I read "...now my doctor put me on azithromycin and rifabutin every day along...

https://connect.mayoclinic.org/comment/1330381/

Discussion: Anyone else have really bad gastro side effects from Azithromycin?

Support Group: MAC & Bronchiectasis

Posted: Jun 19, 2025

Hi Laura. I started the Big 3 three times a week in February, had a rocky...

https://connect.mayoclinic.org/comment/1307576/

Discussion: Did your MAC symptoms improve once you started Big3?

Support Group: MAC & Bronchiectasis

Posted: May 19, 2025

Hi there don’t stress! I started the big 3 4 months ago. I took them all...

https://connect.mayoclinic.org/comment/1304248/

Discussion: Penn Medicine/Rifampin

Support Group: MAC & Bronchiectasis

Posted: May 14, 2025

Oh dear! @kellykvent welcome to this forum. I’m so glad you found us now! If the...

https://connect.mayoclinic.org/comment/1269105/

Discussion: New to Forum & new to treatment what 2 expect

Support Group: MAC & Bronchiectasis

Posted: Mar 29, 2025

I found out I had Bronchiectasis by accident when my cardiologist did a CT scan to...

https://connect.mayoclinic.org/comment/1221195/

Discussion: If medication worked for you, did you begin to feel better right away?

Support Group: MAC & Bronchiectasis

Posted: Jan 25, 2025

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