MAC & Bronchiectasis Support Group

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Comments (655)

I picked up my 3% Sod Chlo from CVS today. The box contains 50 vials--each contains...

https://connect.mayoclinic.org/comment/851126/

Discussion: How does bronchiectasis progress?

Support Group: MAC & Bronchiectasis

Posted: Apr 28, 2023

Sorry, took so long to get back. But I do want to share that the Pari...

https://connect.mayoclinic.org/comment/691866/

Discussion: What are the stages and symptoms of Bronchiectasis?

Support Group: MAC & Bronchiectasis

Posted: Mar 22, 2022

@macinfo2020 Hi, I think you will get as many opinions as there are people in the...

https://connect.mayoclinic.org/comment/288986/

Discussion: 7% Saline Solution

Support Group: MAC & Bronchiectasis

Posted: Jun 26, 2020

After my Phillips nebulizer got noisy I bought an Ombra. I use Ipratropium and the 7%...

https://connect.mayoclinic.org/comment/1264305/

Discussion: Recommendations for nebulizer machine

Support Group: MAC & Bronchiectasis

Posted: Mar 22, 2025

The budesonide is a premixed vile 0.25 mg/2mL. As I said in my initial post, the...

https://connect.mayoclinic.org/comment/783797/

Discussion: Again, which nebulizer...HELP!!

Support Group: MAC & Bronchiectasis

Posted: Dec 11, 2022

How often do you sanitize? Daily How many nebulizer sets do you sanitize at once? 3...

https://connect.mayoclinic.org/comment/1409054/

Discussion: How do you use the Bololo?

Support Group: MAC & Bronchiectasis

Posted: Oct 5, 2025

@scoop yes scoop I do use a baby bottle dryer. I usually neb 3x daily. My...

https://connect.mayoclinic.org/comment/1409972/

Discussion: How do you use the Bololo?

Support Group: MAC & Bronchiectasis

Posted: Oct 6, 2025

irenea8, one of those terrible reviews was mine! The unit itself is unreliable. If you are...

https://connect.mayoclinic.org/comment/1097870/

Discussion: Omron NE-U100 have you used it?

Support Group: MAC & Bronchiectasis

Posted: Jul 2, 2024

I sterilize my 2 PARI e rapid sets plus my one Aerobika set once a day...

https://connect.mayoclinic.org/comment/1428269/

Discussion: How do you use the Bololo?

Support Group: MAC & Bronchiectasis

Posted: Nov 1, 2025

Answers below: How often do you sanitize? Every other day or less. How many nebulizer sets...

https://connect.mayoclinic.org/comment/1408805/

Discussion: How do you use the Bololo?

Support Group: MAC & Bronchiectasis

Posted: Oct 5, 2025

I too have colonized Pseudomonas Aerginosaand have been using inhaled colistemethate since May 2025. (2 times...

https://connect.mayoclinic.org/comment/1499979/

Discussion: I am using inhaled colistimethate for the first tume

Support Group: MAC & Bronchiectasis

Posted: Feb 7 7:42am

I use the Pari trek S at home and while traveling. I cannot compare it with...

https://connect.mayoclinic.org/comment/968525/

Discussion: Pari Trek S vs Ombra compressor

Support Group: MAC & Bronchiectasis

Posted: Nov 21, 2023

I use my Pari Vios - it is a dinosaur, big and sort of noisy -...

https://connect.mayoclinic.org/comment/636062/

Discussion: Please Share your MAC and Bronch Success Stories - However Small

Support Group: MAC & Bronchiectasis

Posted: Sep 16, 2021

I too have been free of exacerbations for over a year which I contribute to mask...

https://connect.mayoclinic.org/comment/337019/

Discussion: Living Dangerously - Nebulizer Cleaning

Support Group: MAC & Bronchiectasis

Posted: Mar 13, 2021

I just returned from traveling for a month in Italy. I use the Pari Trek S...

https://connect.mayoclinic.org/comment/965627/

Discussion: Need Advice for Traveling Internationally

Support Group: MAC & Bronchiectasis

Posted: Nov 16, 2023

Hi Irene5. I was put on the Big 3 when first diagnosed 4 years ago--nausea, lost...

https://connect.mayoclinic.org/comment/832426/

Discussion: Why Dr has NOT prescribed me Rifampin for MAC/NTM?

Support Group: MAC & Bronchiectasis

Posted: Mar 26, 2023

I travel with a drizzle pot. Foldable silicone pot with a heating element built in. Boils...

https://connect.mayoclinic.org/comment/1045326/

Discussion: (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

Support Group: MAC & Bronchiectasis

Posted: Apr 4, 2024

Oh boy, I'm glad I found this thread. I was seen at Mayo-Jacksonville in October and...

https://connect.mayoclinic.org/comment/1463983/

Discussion: Survey: nebulizers and compressor systems speed, etc.

Support Group: MAC & Bronchiectasis

Posted: Dec 19, 2025

Hi Terri! Everything's fine so far. Yesterday morning watched a bobcat try to sneak up on...

https://connect.mayoclinic.org/comment/288953/

Discussion: 7% Saline Solution

Support Group: MAC & Bronchiectasis

Posted: Mar 30, 2020

@minute22 I cannot answer the question regarding Arikayce because I’ve never used it. Twice a day...

https://connect.mayoclinic.org/comment/1440973/

Discussion: Is the PARI eRapid® Nebulizer System worth what it costs?

Support Group: MAC & Bronchiectasis

Posted: Nov 17, 2025