MAC & Bronchiectasis Support Group

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Comments (559)

@atlantabec Has your doctor tried doing induced sputum testing, where they have you go into respiratory...

https://connect.mayoclinic.org/comment/1270492/

Discussion: No sputum - how to test

Support Group: MAC & Bronchiectasis

Posted: Mar 30 8:15pm

I experienced the same issue. My first Vios compressor began having less output by month 5....

https://connect.mayoclinic.org/comment/980292/

Discussion: Nebulizer Malfunction

Support Group: MAC & Bronchiectasis

Posted: Dec 14, 2023

I’m glad to see that it has lasted for 4 years; I was sceptical because it...

https://connect.mayoclinic.org/comment/1065205/

Discussion: Disposable Pari nebulizer cups

Support Group: MAC & Bronchiectasis

Posted: May 10, 2024

Woot, your question prompted me to examine my nebulizer which. When I took a look I...

https://connect.mayoclinic.org/comment/333003/

Discussion: Knocking on Wood

Support Group: MAC & Bronchiectasis

Posted: Feb 14, 2021

Hi Barbara I had the pseudomonas twice last year and it was successfully, treated with clarithromycin...

https://connect.mayoclinic.org/comment/1178584/

Discussion: Did your MAC symptoms improve once you started Big3?

Support Group: MAC & Bronchiectasis

Posted: Nov 23, 2024

Hi Coleen, I'll be following this post as I have similar situation. I have bronciectasis, MAC...

https://connect.mayoclinic.org/comment/1091001/

Discussion: M. accessus treatments? Inhaled colistin

Support Group: MAC & Bronchiectasis

Posted: Jun 21, 2024

THIS IS A LONG POST SO MEANT ONLY FOR e3451 .. rest of you can ignore...

https://connect.mayoclinic.org/comment/58537/

Discussion: (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

Support Group: MAC & Bronchiectasis

Posted: May 4, 2016

I used glutathione for our shared condition bronchiectasis. Theranaturals (link below) is where I purchased. I...

https://connect.mayoclinic.org/comment/1076359/

Discussion: Nebuliser suitable for saline and powdered glutathione

Support Group: MAC & Bronchiectasis

Posted: May 28, 2024

I replace the tubing and neb cup pieces around every 6 months. After the morning airway...

https://connect.mayoclinic.org/comment/308141/

Discussion: Nebulizing Equipment

Support Group: MAC & Bronchiectasis

Posted: Apr 29, 2020

@lauraws, good for you to be going on a cruise! I hope you have tons of...

https://connect.mayoclinic.org/comment/1324200/

Discussion: How to clean and sterilize nebulizer on a cruise ship?

Support Group: MAC & Bronchiectasis

Posted: Jun 10 10:02am

@sallyb827 Sally, You asked "How long does it take for you to nebulize 7 ml of...

https://connect.mayoclinic.org/comment/845631/

Discussion: Confused about saline

Support Group: MAC & Bronchiectasis

Posted: Apr 19, 2023

Hi Nancy, I hesitate to recommend a single nebulizer because everyone develops their own preference based...

https://connect.mayoclinic.org/comment/1112154/

Discussion: MAC/NTM is Different for Everyone, Treatment might be different too

Support Group: MAC & Bronchiectasis

Posted: Jul 26, 2024

As some of you know .. I was very ill starting 2/5/17 with extreme fatigue/no appetite/Brain...

https://connect.mayoclinic.org/comment/139995/

Discussion: Have Bronchiectasis, recently diagnosed with pseudomonas

Support Group: MAC & Bronchiectasis

Posted: May 12, 2017

Hi Jennifer, Nebulizing is a form of airway clearance because doing it with the 7% hypertonic...

https://connect.mayoclinic.org/comment/1020506/

Discussion: MAC: Anyone ever felt pain from MAC? So many questions

Support Group: MAC & Bronchiectasis

Posted: Feb 22, 2024

Has anyone gotten a sinus or eye infection from using a nebulizer that wasn’t propertly cleaned?...

https://connect.mayoclinic.org/comment/751495/

Discussion: Cleaning + disinfecting nebulizer and aerobica

Support Group: MAC & Bronchiectasis

Posted: Sep 19, 2022

I joined the “7% club” 5 days ago. Here’s my experience: I was able to convince...

https://connect.mayoclinic.org/comment/288949/

Discussion: 7% Saline Solution

Support Group: MAC & Bronchiectasis

Posted: Mar 17, 2020

IMHO, you are doing the right thing -- experimenting with what works best for you. I...

https://connect.mayoclinic.org/comment/1180074/

Discussion: Albuterol to open airways

Support Group: MAC & Bronchiectasis

Posted: Nov 26, 2024

Gbooth54. I nebulize twice a day- am before breakfast and pm usually at 6-7 because later...

https://connect.mayoclinic.org/comment/1251644/

Discussion: How to live after you stop. Meds

Support Group: MAC & Bronchiectasis

Posted: Mar 6 9:41am

It sure sounds like you've been through the wringer with your health issues the past few...

https://connect.mayoclinic.org/comment/1391134/

Discussion: Is treatment for Mac and airway clearance really necessary

Support Group: MAC & Bronchiectasis

Posted: 5 days ago

The short answer i "No..." Very smart to be studying this. I wish I could link...

https://connect.mayoclinic.org/comment/1390458/

Discussion: Newly diagnosed

Support Group: MAC & Bronchiectasis

Posted: 6 days ago