MAC & Bronchiectasis Support Group

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Comments (561)

Reduced L-Glutathione is what I use. You can purchase it capsule or in powder form. I...

https://connect.mayoclinic.org/comment/817530/

Discussion: Glutathione: What dosage do you use? Where do you get it?

Support Group: MAC & Bronchiectasis

Posted: Feb 26, 2023

Your comment about flimsy and unreliable is why I splurged on the Pari eFlow. I've posted...

https://connect.mayoclinic.org/comment/1309381/

Discussion: Mesh Nebulizer— does anyone use one they love?

Support Group: MAC & Bronchiectasis

Posted: May 21 10:16am

That's a good question. I got my "big" Pari Vios Green compressor through Medicare, but I...

https://connect.mayoclinic.org/comment/865821/

Discussion: Why is breath holding important during airway clearance?

Support Group: MAC & Bronchiectasis

Posted: May 24, 2023

I don’t know if this will address the problem or not, but a few weeks ago,...

https://connect.mayoclinic.org/comment/821240/

Discussion: Again, which nebulizer...HELP!!

Support Group: MAC & Bronchiectasis

Posted: Mar 5, 2023

I recently traveled in the US, my first trip staying in a hotel since my diagnosis...

https://connect.mayoclinic.org/comment/965095/

Discussion: Need Advice for Traveling Internationally

Support Group: MAC & Bronchiectasis

Posted: Nov 15, 2023

@woot - My old workhorse Pari Vios (the big greenish neb Medicare pays for) empties a...

https://connect.mayoclinic.org/comment/333000/

Discussion: Knocking on Wood

Support Group: MAC & Bronchiectasis

Posted: Feb 13, 2021

I use the Pari Trek S and Pari LC Sprint nebulizer cups all the time, not...

https://connect.mayoclinic.org/comment/1021819/

Discussion: Any recommendations for a fast & durable Nebulizer Compressor?

Support Group: MAC & Bronchiectasis

Posted: Feb 24, 2024

Hi Sue - I am a bit confused. We are to be careful diet wise regarding...

https://connect.mayoclinic.org/comment/1000813/

Discussion: 7% Saline Success Story that warmed my heart.

Support Group: MAC & Bronchiectasis

Posted: Jan 20, 2024

I don't use a Pari, but I do boil my nebulizers - just a cheapo reusable...

https://connect.mayoclinic.org/comment/1331980/

Discussion: How much time do you spend managing bronchiectasis?

Support Group: MAC & Bronchiectasis

Posted: Jun 21 11:44am

I found the DeVilBiss great in the beginning. Faithfully changed the filters every 4-5 months. After...

https://connect.mayoclinic.org/comment/1370906/

Discussion: Looking for a decent portable nebulizer

Support Group: MAC & Bronchiectasis

Posted: Aug 14 9:21pm

The Aerobika manual states that, in addition to daily soaking, the device should be disinfected weekly...

https://connect.mayoclinic.org/comment/949284/

Discussion: Cleaning of Aerobika

Support Group: MAC & Bronchiectasis

Posted: Oct 17, 2023

I agree. I bought the Pari Trek S and sprint nebulizing cups recently because I was...

https://connect.mayoclinic.org/comment/834904/

Discussion: Pari Trek Sprint treatment times

Support Group: MAC & Bronchiectasis

Posted: Mar 31, 2023

When I started the hypertonic saline, my little Omron compressor took forever and I ordered a...

https://connect.mayoclinic.org/comment/1172154/

Discussion: Is it okay to microwave nebulizer or in baby bottle sterilizer?

Support Group: MAC & Bronchiectasis

Posted: Nov 12, 2024

@woot I was prescribed Arikayce (Amikacin liposome inhalation suspension) and the Pari eRapid Nebulizer system is...

https://connect.mayoclinic.org/comment/308185/

Discussion: Nebulizing Equipment

Support Group: MAC & Bronchiectasis

Posted: May 4, 2020

Looking for a nebulizer recommendation. My husband & I both use it. We currently have a...

https://connect.mayoclinic.org/comment/65301/

Discussion: (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

Support Group: MAC & Bronchiectasis

Posted: Sep 16, 2018

--Apple-Mail-864669C3-13E9-4A01-BE4D-A183CD13BF7F Content-Type: text/html; charset=utf-8 Content-Transfer-Encoding: quoted-printable Sue,I purchased the cups you recommend= ed and received them...

https://connect.mayoclinic.org/comment/843870/

Discussion: Anyone have any nebulizer recommendations?

Support Group: MAC & Bronchiectasis

Posted: Apr 16, 2023

I have been using ombra A for the last year and it works well plus it’s...

https://connect.mayoclinic.org/comment/1098363/

Discussion: You tips for Best (fast and cheap!) nebulizer with easy replacements

Support Group: MAC & Bronchiectasis

Posted: Jul 3, 2024

Pretty sure that 1-12 minute time is with what I call the "Big Green Machine" -...

https://connect.mayoclinic.org/comment/736806/

Discussion: Saline nebulized inhalation

Support Group: MAC & Bronchiectasis

Posted: Aug 12, 2022

@anniepie This is Irene. I am part of the Arikayce clinical trial in the US ....

https://connect.mayoclinic.org/comment/67147/

Discussion: (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

Support Group: MAC & Bronchiectasis

Posted: Feb 5, 2021

Hi all. I'm back from trip. Thanks to all of your help, I had the tools...

https://connect.mayoclinic.org/comment/972903/

Discussion: Need Advice for Traveling Internationally

Support Group: MAC & Bronchiectasis

Posted: Nov 30, 2023

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